Way to go JL! Sweet dreams!!by Shar - Huntington's Disease Support Center
Marsha- Thank you for the article. I had not seen it. I had corrected myself from stem cell to gene therapy and I thank you for posting the article. I think it looks extremely promising along with a couple other promising trial going on!by Shar - Huntington's Disease Support Center
This study used "gene therapy". I neglected to mention that.by Shar - Huntington's Disease Support Center
Our daughter called tonight to say she had seen on the news where there was a study done in Parkinson's patients starting 4 years ago. This study was done using the own individual's stem cells and evidently was quite a success. She said people with Parkinsons who could not do much 4 years ago can now live decently. She said it was not a cure but enabled Parkinsons patients to live a decent lifby Shar - Huntington's Disease Support Center
I am very disappointed in Bush on his stem cell stance. Years ago there was a reason there was a division of "church and state" and I do not think he should have such a strong hand in opposing what so many think many help millions of people. He is a politician, not a scientist and I think for him to be able to veto an item such as this is a power he should not have. He correlatesby Shar - Huntington's Disease Support Center
I, too, found this site when I was somewhat desperate and in need of answers, understanding, from those in the same boat. I feel everyone in life, if they would admit it, needs someone and I feel this is a wonderful forum for those with a common thread (hd) to find information, vent or whatever. I also realize at one time or another people may be hurting and that may be the reason for the way tby Shar - Huntington's Disease Support Center
I am very sorry for your situation. You sound like a wonderful person who has given all a person can give and still tried to make it work because you cared. One thing a counselor told me which I hadn't thought of but it is true "when a person who has HD is talking to you it is not the actual person speaking but the illness itself". I realize the alcohol only complicates things. Whenby Shar - Huntington's Disease Support Center
I think it is great that this young Doctor has chosen Huntingtons as a disease to help. Sharonby Shar - Huntington's Disease Support Center
Barb- What a beautiful job you did and what a beautiful granddaughter you have. I love your smile too! I admire those who can sew - I have tried in the past and get very frustrated because I was not very good. The last thing I made was an Easter dress for my daughter - that was 28 years ago! - Tells you how my sewing went! Anyway, You should be so proud and I know your granddaughter will wheby Shar - Huntington's Disease Support Center
Barb- I am so glad you feel normal. My husband has HD and I do not, however, I can't say I feel "normal" most the time!! ha I remember a quote I saw a few years ago which I think says alot. It goes something like this: Enjoy the small things in life because they are truly the big things!" I think this is very true. Anyway, good for you Barb and keep it up. I enjoy reading yby Shar - Huntington's Disease Support Center
Carol- Congratulations! Your son is part of you and you have done something very right it sounds like to me. My husband has HD and we have two beautiful young adults who have made wonderful contributions to the human race and are a definitely blessing and addition to this world. They both excelled in school and college and are still taking masters classes in addition to working. We had themby Shar - Huntington's Disease Support Center
Melissa- What a wonderful support group I have found here and you have as well. Everyone cares about you so much. You have got so much on your plate. Just having 5 children, although a blessing from God, could make a person go off to lala land without a break. I had two beautiful wonderful children but even then a person needs a break. Maybe your husband is afraid and feels if he doesn't dby Shar - Huntington's Disease Support Center
Margaret- What an awesome story! Enjoy Walmart Barb! Sharonby Shar - Huntington's Disease Support Center
Hi, What an excellent seminar this sounds like. I wish I could attend but since I am in Nebraska and work the chances are remote. However, if there would ever be a recording made of the session for sale I would love to buy one. Thanksby Shar - Huntington's Disease Support Center
Thanks for sharing this article.by Shar - Huntington's Disease Support Center
Thanks for sharing this article.by Shar - Huntington's Disease Support Center
Eric- I always like to see your take on things because you are honest and have excellent, workable ideas. Thanks for being here.by Shar - Huntington's Disease Support Center
Eric- I always like to see your take on things because you are honest and have excellent, workable ideas. Thanks for being here.by Shar - Huntington's Disease Support Center
I see the Creatine subject is brought up alot. I have a few questions someone may be able to answer. I think it was Ron (forgive me if I am incorrect) who posted his regimen and on it was listed 1000 mg of creatine. My husband presently takes 5 mg and he has it in orange flavored tablets which he said are getting harder to chew. What is the dosage most of you use - 1000 mg or something diffby Shar - Huntington's Disease Support Center
Kelver1- I appreciate your information and I did get the prior information. We go to his urologist this afternoon and I was going to again ask if the risperdal may be contributing to his problem. I was also going to take what you had sent to me. I didn't realize the lower doses are what are to be prescribed. His psy started him with the lower dose .5 but it didn't work very well. He startedby Shar - Huntington's Disease Support Center
My husband is taking risperdal (4 mg daily) and feels he has more movement than before. He doesn't know if this is the drug or HD getting a little worse. Has anyone has experience with risperdal making movements more profound or even making them less? Thank you.by Shar - Huntington's Disease Support Center
I just happened to call the Centre of Excellence for Huntingtons we use today asking about problems with a medication. I told him my father in law used to be on haldol. He said haldol makes a zombie out of a person and there are many better choices now such as risperdal, zyprexa, abilify. Just thought I would let you know since I just questioned this today. You are a very caring person.by Shar - Huntington's Disease Support Center
Fred- You said your wife had taken 2mg then was started on 5mg. Did you mean started at .5 mg or why did they increase it so much after she stopped? I still wonder if risperdal isn't the culprit. Thank you Fredby Shar - Huntington's Disease Support Center
My husband has been on zoloft 100mg for quite sometime. He has been put on risperdal probably 4 months or so ago. The risperdal has definintely helped with his aggressive mooods. He, at present, also has prostrate problems which has been ongoing for the last 4-5 years with him. All along while on zoloft and meds for prostrate problems he has had no sexual side effects. When he was on say .by Shar - Huntington's Disease Support Center
Marsha- My thoughts and prayers are with you. Take one day at a time and take care of you. Sharonby Shar - Huntington's Disease Support Center
Brad- I married my husband 37 years ago. Neither of us knew about HD much less that it was in his family. He is 58 and doing pretty well considering, still self sufficient and can be honery but that is good. We had two children at which time I still didn't know much about HD so unfortunately they are at risk. HOWEVER, I would marry him again and I can't imagine this world without our two beaby Shar - Huntington's Disease Support Center
Thank you Steve and Marsha. I would have no idea where to start to keep a site like this up and running, much less, keep hackers, etc. out. You are both a Godsend. I take this site for granted at times but should it not be for the both of you we would not have it. thank you so muchby Shar - Huntington's Disease Support Center
Marsha- Back to BDNF. Is it something a person can take or is it something a person derives as a benefit of exercise, etc?? Thanks for the information. Sharonby Shar - Huntington's Disease Support Center
Barb- Thank you for informing me on who does what. Thank you Steve, Marsha, Eric and Gordon and also thank you Barb as you have alot of excellent replies. Sharonby Shar - Huntington's Disease Support Center
Probably a foolish question - but what is BDNF? thanks.by Shar - Huntington's Disease Support Center