There have been numerous stories of families struggling with issues caused by having one or more family members struggling with Huntington’s disease. I’ve always wondered what an ideal support network might look like and if it’s possible to put together a self sustaining organization to service those needs.
It was five days before Christmas and I was feeling pretty sorry for myself. I wasn't even 50 years old yet, but my husband, David, was living in a nursing home full time with a progressive, degenerative neurological illness. My oldest son had married over the summer and the youngest one had started college in the fall; both were fairly self-sufficient and rarely were around. Also, I had not worked since August, so I was missing the day-to-day interaction with co-workers and the daily challenge