Something important I forgot to ad to my email is that my husband and I have been together since 19 years of age - I love him, care about him and would miss him terribly if he were not here with me. I know many of you have gone through this and are going through this as well. Because of this, I feel you know what I am feeling and maybe can give me your ideas and opinions. Thanks again and Godby Shar - Huntington's Disease Support Center
My husband has HD as did his father and many of his siblings do as well. He is 57 and sublte signs had shown up at about age 45. He has actually done quite well in many ways. The last 9-12 months he is more paranoid and is hard if not impossible to reason with on most items. If I disagree with him on something and he gets to thinking about it while I am at work he sometimes has called me to sby Shar - Huntington's Disease Support Center
I was going through some papers and came across an article I had saved. It talks about PPA (Partnership for Prescription Assistance) and how they have access to 475 assistance programs. Depending on income this organization can help get medications free or at reduced prices for people. The website is www.pparx.org or their toll free number is 1-888-4PPA-NOW. I hope this may help someone. Thby Shar - Huntington's Disease Support Center
Do you have the address as to where this letter needs to be sent? Thank you.by Shar - Huntington's Disease Support Center
I know it is very hard at times. The best thing is to get away for short periods of time. I still work so that helps in my case. Something I always think of when the going gets tough is that one time my husband said "I didn't ask for this" (Meaning the HD) Then, I think of how tough it is for the person with HD and he didn't ask for the HD. No one does. I also think of the song'sby Shar - Huntington's Disease Support Center
Hi, One of the clinics we went to said they really don't check that careful if someone at risk tested and used a bogus name. That way you are protected for sure. This would mean paying in cash, etc.by Shar - Huntington's Disease Support Center
Julie, My husband has been on the miraxion trial 9 months now and has 3 left. The first 6 months he could have been on the miraxion or the placebo-we are not told neither is the site. In talking with the neurologist on our last visit last month she said of the 7 trialing at this site that 3 feel they have gotten worse, 2 notice no difference and one thinks they may be getting a little better aby Shar - Huntington's Disease Support Center
I should probably add to my "novel". My husband and I are both 57 and have been married 37 years. That seems so old but inside the body it seems like time has flown.by Shar - Huntington's Disease Support Center
I found this website only a few days ago and know it is one I have needed for a long time and hopefully one I can help others too. My husband has had HD for 12 years. His father died of HD, he has a younger sister and brother in a NH. Three of his first cousins died of HD and two more cousins are in NH. I have so many questions or feelings that I am not sure how to deal with. I plan on stayiby Shar - Huntington's Disease Support Center
I just wondered if anyone out there or their HD family had or is on the miraxion trial and if so how are they doing. My husband is presently on this.by Shar - Huntington's Disease Support Center