I agree with everyone. Benefits are huge - many times benefits outweigh wages. The older we get, with or without HD, the bigger benefits become.by Shar - Huntington's Disease Support Center
Melissa- What Barb stated is well said and is very much true. I remember a saying which I think sums it up very well "The small things in life are the big things." Things will get better - just let them and do not be so hard on yourself. Sharonby Shar - Huntington's Disease Support Center
papple juice- We all have good days and bad, even I, however, I have more good than bad. Sometimes we need to adjust how we look at things. Someone on here wrote once something about worry and I loved it. It goes something like "worry is one of the most useless senses". I try to remember that. When we struggle with HD issues it is hard but alot can be resolved. This webbby Shar - Huntington's Disease Support Center
I read both of your posts and I know it can be scary. However, look at the good things you have now. Don't waste the years you have now worrying about what may or may not be. You need to give it time to determine if you want to test or not. Before you do you need insurances in places and, as important, you need your mindsets to be in a better place. Also, there is counseling prior to tesby Shar - Huntington's Disease Support Center
It sounds like there is alot of stress in your home right now. Some, hopefully can be alleviated by a cooling off period. I am sure your husband is stressed talking about HD as most would and you are stressed with the prospect as well. Maybe staying away from the subject for a short while will help or watching how we present it - maybe trying to be more compassionate if not already so. Inby Shar - Huntington's Disease Support Center
Barb- Life can be tough at times and I feel bad that you had a rough day yesterday but I am glad you did something good for you today. We don't know what we would do without you here so we all need you to take care of yourself. Hope you are having a bright sunny day today. Sharonby Shar - Huntington's Disease Support Center
Steve and Marsha- I am very sorry for your loss. My thoughts and prayers are with you. Sharby Shar - Huntington's Disease Support Center
We have used zyprexa for several years now and it has been a godsend.by Shar - Huntington's Disease Support Center
Will- Thank you for the information. I really appreciate it. I will try this creatine for my husband. Sharby Shar - Huntington's Disease Support Center
My inspiration comes from people like yourself and those who post on the board - also realizing things can always be worse. Life would definitely be better without HD, however, life can be worse.by Shar - Huntington's Disease Support Center
Congratulations and I wish another 50 for you! All we have in life many times is hope but there are so many things around the corner that will help those with HD. There are so many things now that were not available years ago. I have been married 42 years and without some of those meds that may not have been possible either so there is help and hope. Again, congratulations!! Sharby Shar - Huntington's Disease Support Center
Will, My husband has been taking creatine and other supplements for years. I feel the creatine has played a huge role in helping him against his battle with HD. He had been taking the creatine from Avicena (neotine) but now they say it is not availabe and they do not know when it will be. It is supposed to be a medical grade. Is the creatine you take a medical grade? Also, where do yoby Shar - Huntington's Disease Support Center
Jacquie- You sound like a very compassionate caring person. Fred has a good idea in going through previous posts to get a better grip on what HD actually entails. My situation is that I married a man who has HD in his family. We have been married 42 years. He has had symptoms/HD for approximately 17 years. He did not know of HD when we married but we found out sometime later. We do hby Shar - Huntington's Disease Support Center
Nila- I didn't know how far away you were from Boise. She would be worth the drive to go see I feel. Another idea would be to call her office and see if they know of anyone closer to you who does specialize in HD as Dr. Seeberger does.by Shar - Huntington's Disease Support Center
There is a wonderful neurologist that was at the Colorado COE approximately 3-4 years ago. She transferred to Idaho. I googled to see if I could get her name and location. Her specialty is HD. She does show on the HD site. Her name is Dr. Lauren Seeberger, Indian Elks Rehabilitation Hospital, Movement Disorders Center, 600 North Robbins Road, Boise, ID 83702. Telephone is listed as 208by Shar - Huntington's Disease Support Center
Thank you Fred for your very kind words. I try to be all of what you said but there are days that I do not do as well as I would like to. If not for people like all of you I would definitely be very lost at times. You all give me courage and strength - I think we do that for each other and that is the way it should be. Thank you for your ideas - I appreciate your input very much. Sharby Shar - Huntington's Disease Support Center
I keep an eye on my husband's weight and do all I can to see that he at least maintains his current weight. One item I think has been extremely helpful is the creatine he takes. I KNOW this has been a great help. I also make sure he gets many calories. He loves frozen yogurt and ice cream and I make sure he gets those regularly.by Shar - Huntington's Disease Support Center
Knowing what to look for as far as physical symptoms I noticed slight symptons on my husband when he was 45. He is now 62. He is the oldest child in his family and doing very well compared to a few of his younger siblings - one died a couple years ago and one is in a nursing home. He is able to get ready on his own although it takes him alot longer than it used to - usually takes 3 hours forby Shar - Huntington's Disease Support Center
Marsha- What words of wisdom for those with an illness or not. Thank you for simply putting down the way we should all live our lives. Sharonby Shar - Huntington's Disease Support Center
Hi Hana- I am so sorry things didn't work out. You sound like a wonderful gal. There may be lack of truth or sometimes the illness manifests itself in ways that the patient is not able to communicate correctly. As far as the abuse, etc. many times the patient is controlled by the illness and cannot help it to an extent, however, there are so many medications that can help control those isby Shar - Huntington's Disease Support Center
I think you all will be ok - it is ironic that the HD person may be the less anxious, more rational at this time - but it seems we do what we have to do and we have more strengths than we know when we need them. Enjoy each day and I, too, pray a cure will be coming soon.by Shar - Huntington's Disease Support Center
One important factor that was also mentioned is that your boyfriend needs to get life, health and long term insurance in place before testing. If testing proves positive he will never get those items and that could prove tremendously devastating in the future. Before the insurances are in place I would hold off on testing - it is that important.by Shar - Huntington's Disease Support Center
I would let her know if she needs or wants to go somewhere that you or whoever will be there to take her. I would sympathize with her that you understand how she feels about it taking her freedom away, HOWEVER, let her know that she would never want to take someone's life especially that of a child if she were to cause an accident. That might make her think. If all that does not work if she gby Shar - Huntington's Disease Support Center
Keving- I am sorry for the horrible past you had. No one deserves a past like that. It gives me some insight as to why you are angry. I never had near a past as you did so I do feel for you. The people on this forum are wonderful people who have their own crosses to bear as well. Everyone helps each other with whatever they can- you might even see a joke or two. I don't know what I wby Shar - Huntington's Disease Support Center
Thank all of you for your nice comments. I am only a person like all of you. I have the same emotions, ups and downs as all of you and I definitely am not perfect. I try to look at things as a glass half full rather than half empty. This forum has been a lifesaver for me as well and so many wonderful people on it including all of you. I don't know what I would do without you. I hope allby Shar - Huntington's Disease Support Center
Keving- I am so sorry for what you have been going through. As has been said there are medications that can help behaviors beyond your control and make your life so much better. Your girlfriend could get information on the internet about some of the possible symptoms but if your anger is uncontrollable she, understandably, wouldn't want to be around it. BUT, you can change those behaviorsby Shar - Huntington's Disease Support Center
One reason some family members do not visit or help is because it hurts to see their loved one change and not be the same person they were before. Also, some family members do not visit because it reminds them of what could happen to them in the future. I don't think it is entirely because they do not want to be there or not care but because of one of the above 2 reasons.by Shar - Huntington's Disease Support Center
My husband has had HD symptoms starting about 17 years ago. Had I had access to this site or even known about it - it would have helped tremendously on many levels - understanding of the illness and medications to help. We have done fine and I wouldn't trade our lives for any others. My husband has been afraid he could lose me but I have reassured him that I will not be so easy to get ridby Shar - Huntington's Disease Support Center
Please don't give up on your son. There could be many things going on here. He has to be scared and believe it or not he can sense how you feel and that makes him even more unsecure and apt to act out. You need to realize it is the illness and not him. On the other hand, I wonder if you may be acting out unknowingly as well. The anger I pick up from your post that you have directed at yby Shar - Huntington's Disease Support Center
If you are a 100 disabled veteran and it sounds like you are due to service connected activity you should go to a Veterans agency in the US. You would be eligible for a pension for life and a pension due to PTSD. You would also be eligible for all medical care and they have some facilities you could live in. It would definitely be very positive for you. The best thing to do would be to go toby Shar - Huntington's Disease Support Center