Has anyone heard of the medication Latuda? If so, have you taken it and what results/side effects have you experienced? How does it compare to zyprexa? Thank you. Sharby Shar - Huntington's Disease Support Center
Marlyssa- I am so sorry you are going through what you are going through. If your husband is not on any medications for his behavior he should be and if he is you should talk to his doctor as they can change medications to help. I have been married for over 40 years to a person who has HD. When we were younger I endured some behavior I shouldn't have had to but nothing like you are goingby Shar - Huntington's Disease Support Center
Nila- We are all in this together. "Normal" changes all the time in life with an illness or without (such as aging, etc.) The way I choose to look at it is that it could be better but it could also be worse. There are many people suffering in ways even worse than HD. I really do not let myself think much about other people and their lives but concentrate more on ours. I tby Shar - Huntington's Disease Support Center
Try to take one day at a time. The actions of your husband are the disease and not him. Try not to take it personally. You also need to get out once in awhile. If he is able to stay home by himself (it looks like that is what he is doing) I would continue to get out. Maybe join an activity you enjoy once a week. There you would be getting out and interacting with other people which is goodby Shar - Huntington's Disease Support Center
jendoc 6262 I'm sorry for what your marriage has been. They are not all that way with HD. I just want to put another side to this post - I am not belittling anyones decisions or feelings as anyone knows a person has to be in someone elses shoes in order to totally understand them. I have been married for 43 years. My husbands family has HD. He has had physical symptoms since 45. I am leby Shar - Huntington's Disease Support Center
Carla- Could he be stabilized with a medication?by Shar - Huntington's Disease Support Center
Just wondered if there are medications you can use to help the situation. I am of the belief it is better to have the children with both parents - at least both parents in the children's lives - but only if safe. Many times the situation can be made safer with the HD patient taking certain medications. And, of course, each situation is different. Some parents with HD may be fine with theirby Shar - Huntington's Disease Support Center
The last couple posts says alot and says it well. I, among others, do not visit this site as often as I used to because of much negativity. There are so many good, kind hearted people here who truly use this site and it is a good site and a wealth of information for those at risk for HD, those with HD or those who are loved ones of those with HD. Some of the actions of the HD person are beby Shar - Huntington's Disease Support Center
Marsha- I appreciate you clarifying the situation with HDSA. Thank you very much. Sharonby Shar - Huntington's Disease Support Center
Marsha- I donate a considerable amount to HDSA through payroll deduction at my workplace and just signed another pledge for 2013 today. I put the code for HDSA in but there appears to be no place to differenciate where the money goes to in this organization. Do you know if a person can write to the organization and state where they want their monies to go? Also, then I wonder do they truby Shar - Huntington's Disease Support Center
I also read your story, Steve. It is nice getting to know those on here - those who have helped us so much as you and Marsha have. Your struggles are the same as many others and we appreciate what you and Marsha have done for us. Thank all of you for your help even you have struggles of your own to copy with.by Shar - Huntington's Disease Support Center
If you mentioned to your doctor the situation at hand would they be able to move your appointment up? If so, there are medications that could greatly help the situation and be a positive change for your situation. If they are not able to move the appointment up it sounds like you have already talked to the doctor - would he prescribe something that might help until the appointment?by Shar - Huntington's Disease Support Center
Are you able to take her to a psychiatrist who may convince her to take meds as a way to replace cells that HD has taken? You could have to talk to the psy prior to going in and let him know all the specifics.by Shar - Huntington's Disease Support Center
You don't mention if your husband is on any medications. There are medications that would greatly control some of these issues.by Shar - Huntington's Disease Support Center
Matt- I agree with what you say and "djcloc" I agree with your take on life. I also realize we all have different opinions but should not belittle those who have different ones from us. I many times wish we could ask God our questions - we may be surprised on the answers we get. We all have alot of questions to ask one of these days.by Shar - Huntington's Disease Support Center
Barb- Your last sentence says it all about life in general. Well said and I am going to use it often. Thanks.by Shar - Huntington's Disease Support Center
Does she have a doctor or neurologist she is seeing? There are many medications that can help some of her symptoms. Everyone is different and progression varies but some medications can help tremendously. I am sure it is not what you want to hear but instead of being so obsessed with time left (which none of us know for any of us) I would take one day at a time.by Shar - Huntington's Disease Support Center
Getting him to a doctor would be a good choice. Medications can make a world of difference.by Shar - Huntington's Disease Support Center
Congratulations Marsha and Steve - I wish you many years of happiness together. You two definitely deserve it. Sharonby Shar - Huntington's Disease Support Center
My husband tried risperdone and it made him a zombie. We switched to zyprexa and what an awesome difference - no more zombie but it helped the symptoms it needed to help.by Shar - Huntington's Disease Support Center
If someone could get your SIL to a dr and get her on a medication or two it might make a huge positive difference at this time. Someone could go with her advising her that the appt is for both people going - just take her or whatever works. It would be best to let the dr know what is going on and what you would like prior to her appt - a good psychiatrist would be the most beneficial (could tby Shar - Huntington's Disease Support Center
Jeanne- Are you on any medications or would you be open to try a medication to see if it helps - an antidepressant, zypexa if needed, etc? Just an idea.by Shar - Huntington's Disease Support Center
I had put a prior post on regarding "haldol". I am looking for something that could help my husbands movements, dropping things, etc. Through the first post I realized people were using drugs other than xenadine for this same purpose which I wasn't aware of. My questions regarding all three of these drugs (xenadine, abilify, amantadine) are: (1) how beneficial haby Shar - Huntington's Disease Support Center
Thank you all very much for your input. I am going to put another post up regarding abilify, xenadine and amantadine to see who all is has luck or side effects with these as far as using them for movement. I never realized abilifyand amantadine could be used for movement. Again, thank you all so very much. I don't know what I would do without all of you.by Shar - Huntington's Disease Support Center
I forgot to mention that we told the dr our negative thoughts on haldol and he said it was a good drug for this particular use - we told him we would think about it but most likely wouldn't try it.by Shar - Huntington's Disease Support Center
I thought I would never ask this question as I have been 100% against haldol. My husband is having much more movement and it bothers him alot. He takes zyprexa and clonazepam, has for a number of years and has done relatively well. At his dr appt this week it was suggested that he be put on a minimum dose of haldol twice a day to control the movement. The dr said it would most likely coby Shar - Huntington's Disease Support Center
I feel for all of you. Keep yourself and your child safe. If you can get your husband to go to a dr or psychiatrist there are medications that can help him - he would be more calm and not as agressive as now. I would talk to the dr prior to his visit so that the dr would know what is going on and that way you wouldn't have to talk with your husband in the room at the time of the visit. Alsoby Shar - Huntington's Disease Support Center
Blondie- What a beautiful blessing Rachel is. She has such a contagious smile. Give her a hug from all of us and take care of yourself. sharonby Shar - Huntington's Disease Support Center
If you could be recommended to a good neurologist or a good psyciatrist in your area - then talk to them to let them know what is going on so you wouldn't have to do it with your husband present - if they are familiar with medications that can help that gives them a head start - if there are medications that may work for this such as antidepressant, zyprexa, etc. you might suggest some used toby Shar - Huntington's Disease Support Center
Sadly, he probably does not realize how he is. That is normal. There are medications that can help him. It is a matter of getting him to a doctor to do this.by Shar - Huntington's Disease Support Center