Growing up with JHD

Posted by Blondie

Blondie

Growing up with JHD
December 08, 2011 09:20AM

Registered: 14 years ago
Posts: 253

Rachel growing up with JHD

A hard one to make going through old photos but I felt I needed to do it.Although she has not passed away yet I miss her so much already.

Edited 1 time(s). Last edit at 12/08/2011 09:21AM by Blondie.

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Shar

Re: Growing up with JHD
December 08, 2011 10:39AM

Registered: 17 years ago
Posts: 435

Blondie-

What a beautiful blessing Rachel is. She has such a contagious smile.

Give her a hug from all of us and take care of yourself.

sharon

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paulabhouck

Re: Growing up with JHD
December 08, 2011 01:24PM

Registered: 18 years ago
Posts: 1,523

Thank you so much for sharing the beautiful video of your daughter.

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carla

Re: Growing up with JHD
December 08, 2011 01:56PM

Registered: 16 years ago
Posts: 586

Loved the video! Thank you for sharing her with us!

Carla

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mjdelcon

Re: Growing up with JHD
December 08, 2011 03:12PM

Registered: 13 years ago
Posts: 238

Beautiful video! Thank you so much for sharing!!

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stacyw

Re: Growing up with JHD
December 08, 2011 05:04PM

Registered: 17 years ago
Posts: 54

The love you have for your daughter shows... As a parent of a child who had JHD I completely understand the grief you have gone through as well as the anticipatory grief. Thank you for sharing your photos, smiles, & cherished memories with us.
Stacy

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edwild

Re: Growing up with JHD
December 09, 2011 03:58AM

Registered: 12 years ago
Posts: 1

HI Blondie

I don't post here often but I wanted to say how moving and motivating the video of Rachel is to me as an HD researcher. I'm going to show it to the whole HD research team at UCL and we promise to work extra hard today!

Very best to your whole family,
Ed Wild

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Blondie

Re: Growing up with JHD
December 09, 2011 10:48AM

Registered: 14 years ago
Posts: 253

Thankyou for all your replies,it means alot from across the pond Thanks!

Ed,a special thanks and I hope it makes you guys realize your work means so much to a lot of people xx

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Barb

Re: Growing up with JHD
December 10, 2011 01:52AM

Registered: 18 years ago
Posts: 6,370

Blondie, that is a beautiful and well-done video, and a real tribulte to your daughter Rachel, and all the special young people with jhd, thank you so much for sharing this with us

Huntington Disease Lighthouse Families

Growing up with JHD