My guess is that is who they are closest to, spend the most time with, are comfortable with. My father had cancer and toward the end any anger he had was directed at my mom.by Shar - Huntington's Disease Support Center
My husband has taken creatine for many many years. He has been taking 5 grams at noon and 5 grams at night. He tried to take a larger dose some years ago but could not tolerate it. He has done leaps and bounds better than anyone in his immediately family who has gotten HD. I honestly attribute that to him taking the creatine. Like so many others meds and trials you will have to see what woby Shar - Huntington's Disease Support Center
DeeAnn, It is a tough decision and one only you can make. As advised here I would definitely have him go to a dr and let him know what has been going on. There are medications that can help and hopefully he would get help with the drinking. You do not deserved to be treated that way and if nothing is done nothing will change. I feel bad for the post prior to mine because I would disagby Shar - Huntington's Disease Support Center
Barb, I am so sorry for your loss. Your dad and mom are a beautiful couple I see in their picture. We could all learn a lot from them. You are so blessed to have such wonderful parents and they obviously raised their children well as can be seen in you. Take care and my thoughts and prayers are with you at this difficult time. Sharonby Shar - Huntington's Disease Support Center
First of all you are carrying way too heavy a load for your age when you should be enjoying life. You need to get some help. Is there anyone that can help you - friends, relatives, etc. Also, if you can get him to a doctor or psychiatrist they could prescribe him a couple medications that may change him totally for the better. An antidepressant is normal and something like zyprexa or risperdoby Shar - Huntington's Disease Support Center
djcloc- What profound thinking and way to look at things. It could be any of us with any illness/accident, etc. I learned from your post. Very enlightening. thank you.by Shar - Huntington's Disease Support Center
It sounds like this is a medication, like many, which will work very well for some and not for others. If your mother was on a lesser dosage of xenazine and also the amantadine and doing well I would opt to try those again as they were. With this illness those around the one with the illness play a big part in what works and what will not - it is up to us to let the dr know and let him/her knoby Shar - Huntington's Disease Support Center
We tried the xenazine three times. Each time after a couple weeks my husband would have sleepless nights which can be a side effect of this drug. One of the neurologists locally wanted him to stay on it and take additional klonopin to counteract. I am not keen on taking more drugs especially one this strong (klonopin) to counteract as I could not see a lot of difference in him so we stopped.by Shar - Huntington's Disease Support Center
Merry Christmas to all of you and wishes for the best New Year yet for all of you. Sharonby Shar - Huntington's Disease Support Center
I would only use a lawyer as a last resort. A lawyer will take some of your benefits and SSDI can be attained without one. My BIL went through an attorney with little luck and two years later I helped him and he did get the SSDI, however, since the attorney had started his case the attorney received his large fee. I didn't realize he was using an attorney or applying until it was too late toby Shar - Huntington's Disease Support Center
I have donated a pretty good sum the last few years through payroll deduction. We have booklets that let us know what each agency takes out of the donation for administrative duties, etc. When I have looked each year HDSA takes the higher end (which most do not) at around 21.9%. What is the name and address of the organization that may use my money for a better purpose as I want my funds toby Shar - Huntington's Disease Support Center
Click on this link - very exciting and hopefully the answer to our prayers:by Shar - Huntington's Disease Support Center
Congratulations - you love your children with all you have but there is nothing that will compare to a grandchild. It is the most awesome blessing there is. You and your future grandchild are truly blessed! Sharby Shar - Huntington's Disease Support Center
Yes, klonopin is commonly prescribed for HD. My husband has been on it for sometime now.by Shar - Huntington's Disease Support Center
I do not agree with Cosmo to terminate your pregnancy if the fetus is positive. You have a live human being that you are carrying and there are very promising treatments on the horizon. I pray one will cure very soon. Enjoy your child and be the best parents you can be. God does not make junk.by Shar - Huntington's Disease Support Center
Wonder if a medication such as zyprexa couldn't make a world of difference.by Shar - Huntington's Disease Support Center
Thanks for all you do Steve and Will - that was good!!by Shar - Huntington's Disease Support Center
indigo9585 - what was the Parkinson medicine your husband was given? Thanks. Sharby Shar - Huntington's Disease Support Center
One suggestion would be to try different meds. Different meds work for different people. Also a tolerance level can be built up for some and then they need to be changed. Not knowing what he is on I would suggest an antidepressant and something such as zyprexa, risperdol. You may have to ask the drs to change medications and suggest names of some to try. My last resort would be Haldol but Iby Shar - Huntington's Disease Support Center
With the possible ramifications testing anonomously would be wise and it has been done many times.by Shar - Huntington's Disease Support Center
MrsPatWolf-I do not know any people with HD or of people with HD who have stolen, raped, killed or molested children. I am not saying they are not out there but all the persons I know with HD would not do those things. Also, unfortunately, the majority of people who have stolen, raped, killed or molested children do not have HD. I do not like to hang those items on people with HD only - I feby Shar - Huntington's Disease Support Center
People with HD have varied symptoms and everyone experiences HD differently. Some are worse than others and some are better than others. Many factors come into play as well such as cag count, age of onset, how a person takes care of themselves, vices they have or do not have, supplements taken, a person's economic factors and family situations/support, etc. There are other illness that expby Shar - Huntington's Disease Support Center
My opinion would be to try to get SSDI on your own before using an attorney. When I applied for my husband we had no trouble and he was granted SSDI on the first try. My BIL in another state used an attorney. After 2-3 years and no luck I told him I would help him. I did and we did get him SSDI with no problem, however, his attorney took a portion of his money as he had retained an attorneyby Shar - Huntington's Disease Support Center
I agree with Howard - an attorney is not necessarily needed. When I submitted my husband's paperwork it was approved the first time. My BIL had gone through an attorney and had gotten nowhere - after 3-4 years I asked if I could help him and I did. It was approved right away. Sadly, however, the attorney took his cut even he didn't help in getting it accomplished. Backpay is awarded so ifby Shar - Huntington's Disease Support Center
Wow is right! Kristen is extremely talented and wise beyond her years. She is an amazing person with a tremendous message about life and the way to live it.by Shar - Huntington's Disease Support Center
Thanks to all of you who voiced your experiences and opinions. I appreciated all your replies very much.by Shar - Huntington's Disease Support Center
I know we have had posts on tetrabenazine in the past. I was just wondering to date who has tried it and what were the results for you- also were there any side effects that caused you to stop taking this medication. I very much appreciate your opinions and they will help me with our decision. Thank you.by Shar - Huntington's Disease Support Center
Patty- I agree with your article. There is alot to be said being with someone for years and just holding hands on the sofa and watching TV. I also feel he would be here for me if I had needed it. I watched the Youtube video. It is very good. Thank you. Sharonby Shar - Huntington's Disease Support Center
Sky- You have to decide who you are and what you really want. In my case, my husband has had HD for probably 18 years. There were ups and downs like most marriages - I now wonder if some were not attributed to HD but will never know. If you decide to stay there are medications that can help him that were not there years ago. To test is a very personal choice for him. Some may handle it welby Shar - Huntington's Disease Support Center
Sky- You have to decide who you are and what you really want. In my case, my husband has had HD for probably 18 years. There were ups and downs like most marriages - I now wonder if some were not attributed to HD but will never know. If you decide to stay there are medications that can help him that were not there years ago. To test is a very personal choice for him. Some may handle it welby Shar - Huntington's Disease Support Center