Does anyone know of a phone number or hot line I can speak to someone in person about the disease. As you know my husband won't get tested but he is become harder to live with. He thinks everyone is out to get him for more money. He is a farmer, and he won't sell his grain, thinking it will go higher Hello it went down. He took the check book away from me so I have to use the credit card to pay for groceries, and he is now bitching about the 600 dollars a month I pay for a family of 5 to live.
He makes the kids feel like they shouldn't be alive and it is to much of a burden for him. Is this symptoms of hd or a recovering alcoholic?
These problem really all started in 2001 and only have gotten worst, so had his drinking. now he has been sober for a year and half and he is getting more me, myself and I syndrome. Is this normal?

Lori, I'm sure it's the HD. You've got to get control somehow. Go see an elder care lawyer to see what your options are.. Also can you go to the bank and get a debit card so you can get your groceries? You can go online and follow your balance that way. Also I'm pretty big on keeping the kids safe, physically and mentally, So if you have to leave for a while, maybe you should.

I WISH there was a hotline number for HD! Pat

Contact Seth Meyer at HDSA. He is the new Community Services & Resource Development Manager.

Phone: 800-345-4372
Ext: 240



Edited 1 time(s). Last edit at 12/05/2011 10:32PM by SteveI.

thanks I can't believe how angry he is getting, It seems like each week he is hating me more and more. He feels like every one is out to cheat him on something especially money.
Five years ago, we had a normal marriage,and life. It is like someone turned on a light switch and I am no married to a different person. I am trying but it is so hard when he won't go to any of the kids functions. The kids say it don't bother them any that he doesn't go to watch them but I don't believe this.
He took over the shopping, (which I was happy to let him do) but 8 hours to get groceries. Can't he see there is something not right with that!!!!!

Sadly, he probably does not realize how he is. That is normal. There are medications that can help him. It is a matter of getting him to
a doctor to do this.

How do I do that? He sees how his mom is and he says "she is just old" she is just 72. He refuses to go. He says I am the one that needs help because I am always "bitching at him" I am hardly home, between work and running with the kids. I sometimes feel he is feeling guilty because all he does during the day is sits at the kitchen table and looks at target ads, walmart ads and ect. Today he trying to figure out his crop insurance. He is going to go there sometime today and get them to give him his money that he feels is due to him. They probably will drop him, because he has yelled and screamed at the them for 4 months.
So any advice as to how to get him to a doctor would really be appreciated

You are at such a difficult time with the disease now. Some doctors might not pick up on these symptoms so if you can somehow get him to an HD specialist, you will be able to get some help sooner. Sounds like he could benefit from medication.
If he does have a primary care doctor start there but first alert the doctor about symptoms and try to use any excuse to get him there first but don't bring up these things all at once in front of him, it will just aggrevate him.
He cannot self evaluate these anger issues so thinks you are the cause of all.
Does he still drive? Ask the doctor to do an evaluation of his motor skills.
It could take 'a while longer' to get help for him since he seems resistance and so many don't understand the disease so it might be better to first start planning how and what to do to make sure you and the kids will be taken care of.
Until he can accept what is happening it is really important to protect yourself financially and emotionally. Try to figure out a way to begin to take some control very slowly so he isn't threatended. Keep reaffirming how you all love him.
We have been through it so understand how difficult it is but things can get better.

Don't use HD as an excuse to get to the doctors, try using some other medical problem. Remember he is his own person and if he refuses help it is very hard to get it for him unless the doctor understands what is happening to him, the neurological implications.
Maybe you can get him to go with you first.

If you could be recommended to a good neurologist or a good psyciatrist in your area - then talk to them to let them know what is going on
so you wouldn't have to do it with your husband present - if they are familiar with medications that can help that gives them a head start - if
there are medications that may work for this such as antidepressant, zyprexa, etc. you might suggest some used to treat symptoms of HD
related behaviors - medications treat behaviors regardless of whether it is due to HD or something else - then IF you could get your husband to go
by possibly telling him you need to go and would like him to go with you for support, etc. - if you get a good dr they can figure out a way to
express to your husband why he might try a certain medication for a period of time.

My husband also won't go to the drs. I take him anyway and I tell him that we are going for lunch. Once there, he won't go in. The dr. will come out to the car, but he doesn't actually physically can do anything. I keep trying. This is the 3rd dr. and the only one that will come out to the car. I just make sure that I don't get upset over this and act like everything is normal. I still take him to lunch. I don't know what to do either? The dr. prescribed a Physical Therapist that comes to the house. It started off good. The PT took his vitals and did some exercising with him. After the first few times, then my husband refused to let the PT do anything. The dr. keeps sending him. Good Luck. If you find a good way, let me know.