I wish it was at least I knew where that came from I have diabetes, he got a physical last month and everything was good, he get really mad if I don't give him a drink He has an appointment this week coming up I hope I can get some help its a 24/7 job right now its been really hard on me since I am not working and taking care of him without breaks.by wallettce - Huntington's Disease Support Center
does someone have a HD relative that drink, water, juice, ice tea, until he puik and after he keep want to keep drinking I really dont know what to do any ideas I will appreciate it.by wallettce - Huntington's Disease Support Center
thank you very much Normzach .by wallettce - Huntington's Disease Support Center
Thank you for your information, I appreciate it, I will go to Va they told me before that because my husband income disability and retirement he makes too much to qualify for assistant, I do not worry too much for now, I stop working to take care of him, and with his money we are living but I am thinking in the future If I had the need to put him in a home if I am not able to take care of him Iby wallettce - Huntington's Disease Support Center
I was wondering if anybody has been approved disability catastrophic by the VA if anyone could give me any information I will appreciate .by wallettce - Huntington's Disease Support Center
Hi Abilify did not help my husband, he has been taking 2ml of respedol in the morning and 2 ml in the evening, its hard to find out which medicine is good, good luck to you.by wallettce - Huntington's Disease Support Center
He use to drink Mt Dew but since he got the ulcera he can not drink anything with gas or cafeine .by wallettce - Huntington's Disease Support Center
Hi I have not been here for a while, my husband was tested in 2010 we find out at the time about Hd it has been not an easy road, learning day by day what I need to do to take care of him I am still working full time which is very hard at times but so far I has been able to manage, my question is that he is drinking all the time tea or lemonade I cant give him anything else because he has an ulceby wallettce - Huntington's Disease Support Center
thanks for your information I went to that webside and is kind of confusing to me my husband does everything for himself the only thing I do for him is cook and his medication so I can me sure he is taking it, but lately i notice that his tongue moves a lot and seem that he wants to say something but he doesn't , I just want to make sure I am doing everything that I can to keep him comfortable anby wallettce - Huntington's Disease Support Center
Hi I had not been here in a while,my husband is doing ok, I just wonder what is the stage that he is I keep forgetting to ask the doctor because normally I am with my husband and don't want him to hear the answer of the doctor, he is taking 2mg of risperidone and .5 mg clonazepam in the morning and at night l mg clonazepam 2 mg risperidone and 30 mg paroxetine, he is eating ok dont talk to much mby wallettce - Huntington's Disease Support Center
Sorry for your loss Steve.by wallettce - Huntington's Disease Support Center
Hi you said that the medicine is not working my husband is taking rispidone 4mg a day and clonzopan l.5 daily it was hard to find the right medicine but so far this is what is working before he use to stay up all night it was so hard because I still have to work and sometimes he will go to bed at the time I need to get up to go to work, ask the doctor it doesnt hurt to find out , my husband justby wallettce - Huntington's Disease Support Center
OMG its so hard to explain how I feel and you explained so good I do feel your pain I am going thru the same with my husband.by wallettce - Huntington's Disease Support Center
Thanks Carla I was thinking about that since the weather is getting better in our area to do our walks again.by wallettce - Huntington's Disease Support Center
Hi everyone I was wondering If there is anything I can do my husband do not talk to noone unless he wants something,lately he just wait for me to bring him lunch then at the end of the day when I get home he wants to go to starbucks to get his cold coffe and thats it he spend his day sitting down watching cartoons he gets up every other day to do his push up but do not want to go out for walks, tby wallettce - Huntington's Disease Support Center
djcloc I am reading your comment its like reading my life so far Aniversary just went by I did asking do you want to go out and eat and remain him about our 25th aniversary and he said no thank you, he got his dignostic three years ago two melldows but it seems he is doing better with new medication the only thing is that he does not want to talk , doctor tolds us that if he does not want to talby wallettce - Huntington's Disease Support Center
I had an argument with my daugther today, because she would like to move to texas and she wants us to go with her, I told her is not easy is true we live in a small town but I just got done stablishing my husband in San Diego and I am thinking to move there when my youngest son graduate from high school, she has always being dadddy little girl, and she does not want to be away from him I was tryiby wallettce - Huntington's Disease Support Center
Has anybody have a problem with his HD husband brushing his teeth, he shower everyday after working out but he would just rise his teeth with water not use his toothbrush or toothpaste he get so mad when I asking to brush his teeth, I dont know what to do he use to brush his teeth at least three times a day before always very clean on his person he still is the only problem is that he get upset Iby wallettce - Huntington's Disease Support Center
hi ljgreen, my husband got his disability check six months after he stop working, I am not sure how much more he could get but if you guys have a son under 18 years old he will get a check too they normaly ask you while filling the paperwork at the Social Security office, I gave all my son information. When my husband stop working he his job had a short term disability which we got for the firstby wallettce - Huntington's Disease Support Center
well my husband takes Rispedone and has work for him so far last 6 months, ask them about there is a lot side effects but so far my husband is doing very good with it like all medicine not everyone is the same but it wont hurt to ask the doctor about it.by wallettce - Huntington's Disease Support Center
Yanta you could PM me anythime, we did not know about HD until my mother in Law died, and it is a very lonely place to be because noone around you understand how difficult this is but let me tell you that I was bless with my cousins that since my husband got HD and I need someone around one of the do the three hour drive to see me for the weekend and if I cant get noone to stay with my husband whby wallettce - Huntington's Disease Support Center
well right now I am and this situation my husband is retired Military having to many problems with medication in our small town I decided to take him to the VA in San Diego best service so far and last week I got a bill from them I called them and ask them about his beneficts with them and told them that my husband has Medicare and Tricare for Life and they told me they can not bill Medicare thatby wallettce - Huntington's Disease Support Center
So sorry I do know what you are going thru, he is not himself and the only thing I can think of its his doctor can change medication there is a light at the end of the tunel there is so many medication that they can control him it just try to find out wich one it is, good luck to you and will keep you on my prayers.by wallettce - Huntington's Disease Support Center
Edwina my husband was acting some what like that he wanted me out of the house and get a divorce and talked to the doctor about it and increase the doses on abilify and he got worse then he got a melldown and took him back to the clinic he start acting agresive with me and me two kids that live with us then they change the medication they give him 4mg Rispidone and its so much better ask his docby wallettce - Huntington's Disease Support Center
he is just taking Risperdal 4 mg at night and two .5mg of clonazepam and one in the morning this is all his taking at the moment until he sees his new neorology doctor this friday .by wallettce - Huntington's Disease Support Center
Thanks, guys I just so worry about another melldown, we just change neorology doctor, the one he had before was giving him to much medicacion, we start going to the VA in San Diego three hours from home and his first app. is this friday coming up last melldown was in february which they took all medication he was taking and give him respidal 4mg and ansairy not sure if this is the write way to spby wallettce - Huntington's Disease Support Center
Hi everyone I have not been here for a few weeks my husband was doing pretty good, and like to go out but since last wednesday he has been drinking water a lot and goes to the bathroom like every five minutes, I asked him if hurts when he go pee he said no that he is fine amd I remember that last melldown he had he was drinking a lot of water thinking that the medicine I give him comes out I askiby wallettce - Huntington's Disease Support Center
So sorry for your lost, Laura, my thoughts are with you and your family.by wallettce - Huntington's Disease Support Center