Hi, have not been on the site for a couple weeks, just letting you guys know that my husband finaly doing better, he still dont talk much but he has been doing so good lately that get me scare just because sometimes its too good to be true, that his medicine finaly working for him, he is going for walks eats good take his medicine and like to go out, I was able to go back to work last week so fby wallettce - Huntington's Disease Support Center
Thata exacly how I feel, sometimes but then I go back to the life before HD and he was my best friend, great husband, great father and give me patience to keep going because I know this is the HD not him and I will try my best to take care of him at home with family around it is not easy and when I need a break I just go to the mountains and screem that is what it is helping me at the moment, thby wallettce - Huntington's Disease Support Center
Welcome April, you will get very good information and people that understand what you and your family are going thru, I'm like you have three kids around the same age, my husband tested almost three years ago and let me tell you, that this forum has helping me so much.by wallettce - Huntington's Disease Support Center
Hi Ann my husband has been taking xenadine and has been working pretty good, when he had movements he lost a lot weight , because the movements were on his stomage after he started taking after four weeks he start doing good and no movements at all, everybody is different but you should talk to his doctor about this medicine because it has a lot side effects and need medication for it too. Gooby wallettce - Huntington's Disease Support Center
Hi Wendy for my husband started while sitting down his feed and toes will move and he start telling me he cant help it, and when we have a conversation he will move his arms a lot which he did not do before even while he was sleeping his leg will move, then he start getting diarria( not for sure if this is the correct way to write it) his belly will move a lot thats make me keep asking him to gby wallettce - Huntington's Disease Support Center
thanks guys really apreciate it.by wallettce - Huntington's Disease Support Center
welcome, I think that since you have a son you should test and see you just have a fifty fifty chance, you may be lucky and not having at all, this is just me, my husband find out two years ago we saw sign since maybe on his late thirties and he got tested it has been very hard because even tho we saw sign he did not want to get tested for years and after we find out about HD it is going very harby wallettce - Huntington's Disease Support Center
my husband had a melldown last month brought him home he is on 4 mg of respidone and he do not talk and like to stay in our room all day by himself he comes out make himself something to eat then take it back and eat in the room I have to force him to go to the store with me just to get him out of the house, he is not agresive or mad just no expresion at all, the doctor told me to wait and see iby wallettce - Huntington's Disease Support Center
Hi its me again, so glad I found this support center, my husband just came back from his last melldown and new medication, he does not talk no expresion on him at all he is taking his medication and eating good but he wants to expend all the time on our bedroom and if I go and sit by him he will get up and get out of the room I have been asking him if he is mad with me, he will not answer I hadby wallettce - Huntington's Disease Support Center
Hi everyoone, my husband got release yesterday from the clinic he seems ok, different medicine and hopefully this is going to lass for a while my main reason to write you guys today to find out if you guys know any good psychiatric in the san diego california area, I ask for a month off from work so I can get my husband settle and find him a better doctor than the one he has right now to many paby wallettce - Huntington's Disease Support Center
thank you I really need to hear that for someone that when thru, because noone knows the feeling that we have in our house, and we are trying to stick together and support each other to get thru this dificul time, thanks for your coment.by wallettce - Huntington's Disease Support Center
thank you I really need to hear that for someone that when thru, because noone knows the feeling that we have in our house, and we are trying to stick together and support each other to get thru this dificul time, thanks for your coment.by wallettce - Huntington's Disease Support Center
it has been three weeks on trying not to end up we I am right now, taking him to the doctor and doing what I have to do and still my husband end up in the clinic again, starting getting bad last thursday after two week telling me that he knew I have many boyfriends and that he was not stupid that he want it a divorce y try any suggestion they gave with no success I called the doctor and explain wby wallettce - Huntington's Disease Support Center
maybe someone can light me on this my husband is somehow normal on everything except mental, I just wonder if someone knows about a medicacion that works for that he is taking abilify and is not working very good, I have an appoitment in San Diego Tuesday and would like to know some names of drugs specificate for this so I could tell the doctor, please I will appreciate any suggestions.by wallettce - Huntington's Disease Support Center
sorry for my ignorance what is the SSRIby wallettce - Huntington's Disease Support Center
Noreaster, thank you for your concern about my sefety, I do feel safe I live with my son and my daughter just move in last year to help me out with her father I keep safety in the house he has never try to hurt me or anyone in the house and I always make sure that when he gets like this me and my kids comunicate if we have any fear staying in the house and so far we are ok, we do have options toby wallettce - Huntington's Disease Support Center
thanks I hope the medicine works fast.by wallettce - Huntington's Disease Support Center
I am so afraid that my husband is going to have a mell down he start saying i have a boyfriend and that he is not stupid that he wants a divorce, I called his doctor and said to give him an extra pill abilify and I did last night, this morning he seems the same, we have an app in san diego with Doctor Blum I hope we can make it and dont get worse that what it is right now he said he hear me talkiby wallettce - Huntington's Disease Support Center
My husband has been taking xenazine 12.5 for a year and half and let me tell you it has been great he was so tired all the time because even while sleeping the movement were bad, a lot of our friends tell me how mellow he looks and the movements are gone, he had them on his stomage too and he could not hold food for a long time because after he ate he would go to the bathroom and had diarria heby wallettce - Huntington's Disease Support Center
clonazepam .5 mg, xenazine l2.5, Zonisamide 100mg, Risperidone 4mg, abilify 20 mg.by wallettce - Huntington's Disease Support Center
my husband and I went to visit my son that is station in Seattle Washington, everything was ok not great I was just nevious about his reaction we have not ben out of town since he got sick two years ago, we were walking in downtown and he was so anxious looking everybody and acting like someone was going to attack us, everywhere we went he seems very uncomtroble and more distance from all of us iby wallettce - Huntington's Disease Support Center
My husband got run over by a five ton on a very rainy dark night while he was station in Korea, he said he was unconscious for a few second then they took him to the enfermery and give him five stiches on his fordhead, he wa around twenty years old he got HD at 47 years old it has been two and half years, I just wonder if that hit make him get it sooner his CAG 44.by wallettce - Huntington's Disease Support Center
Well said I am a Marine wife married for 24 years, and on our second year of HD, like you we did not know about HD until his mother pass away in 2000, its has been very hard but we had adjust it so far just playing day by day I am stil able to work and someone keep on eye on him while I am away, my family has help me and I do feel very bless about that, medicine its working good so far, I am sureby wallettce - Huntington's Disease Support Center
thats a beautiful word Courage its what we have all of us to go thru having a love one with HD.by wallettce - Huntington's Disease Support Center
how can i take my husband to the trail for HD that anyone knows please guide me thanks.by wallettce - Huntington's Disease Support Center
some of the medicine that they take could be a sideefect for that , because thats why my husband has seems that they have alergies , I ask the doctor he said if it gets worse we need to think in changing madication.by wallettce - Huntington's Disease Support Center