thanks everyone for all the info I really apreciate it.by wallettce - Huntington's Disease Support Center
I am glad you have a good doctor because that would make easier for the paperwork, my heart goes to you, I went thru 2 years ago, I went and talk to his work HR and thank god they were very helpful they help me with the paperwor for his STD and LTD which included me going and getting his doctos fill out paperwork then turn in while in STD we knew he was not going back to work so I called SSDI, tby wallettce - Huntington's Disease Support Center
thank you so much it make me feel better.by wallettce - Huntington's Disease Support Center
he is getting social security right now, and I am trying to keep our house just because my son just starg highschool this year and dont want to move him to another school he has been to so much this two years. Thanks God I able to work and like I said someone help me for a few hours and my mother is home with me he is not really bad right now he is able to shower, eat, get dress and the main thinby wallettce - Huntington's Disease Support Center
I just need to tell someone about what I have been waiting for the last six month , for the VA to let me know if they could help me on paying someone to watch my husband while I work, well today I got the news that my petition was denied, becausa HD is not related to anything that he went thru while in the service, my husband was in the service for twently years he does get retired check but I amby wallettce - Huntington's Disease Support Center
if you able to affort it move closer to family, you are going to need them to help you out, I do know how you feel, my husband was like that for a while then I try to ignore him when he was mad, as soon as he get off in the morning he will tell me I am not hungry dont cook anything for me he know I have to go to work and he was mad because I was going to leave him with my mother but I started toby wallettce - Huntington's Disease Support Center
before my husband was tested he had the leg movement while sleeping, the involuntary movement in your arms and legs is part of HD, my husband has been taking Xenazine, that is a great pill, my husband started losing weight so much because he even had them on his stomague and had diarrea all the time and with xenazine he is doing great there is no jerks or involuntary movements you should ask yourby wallettce - Huntington's Disease Support Center
thank you so much.by wallettce - Huntington's Disease Support Center
I would like to know it anybody knows a doctor in San Diego California area that has treated persons with HD, I need a second opinion on the medicine that my husband is taking, and maybe a new evaluation on HD i was approved from my insurance to do it. I want to give my husband the best that I can, we live in a small town three hours from san diego and the I dont think the doctor he has had to muby wallettce - Huntington's Disease Support Center
thank you so much for you input, I really appreciate it, it seems getting better for me to deal with HD lately bacause I am more patient with him I do not argue with him, I often tell him that I love him and always will God has been helping me to somehow have hope to let me take care of him, I do everything posible for him to feel comfortable, since he came out of the clinic he has been taking hby wallettce - Huntington's Disease Support Center
My husband use to smoke to I guess the medication that he is taking make him mellow, but he was look said very mean and anything that you would do he gets mad I am still working and when someone from work call me for any reason he gets mad and start walking and start talking to himself, I use to ask him all the time to stop smoking he use to smoked a pack and half everyday he was having problemsby wallettce - Huntington's Disease Support Center
I do understand what you are going thru, since two years ago, we find out that my mother in law die from HD in 2000, and since then we were scared that my husband will get it, it happended so fast he start loosing weight and I ask him to go and see the doctor and of course he would not doing his shaking got so bad that his boss told him if he would not go to the doctor dont come back to work so hby wallettce - Huntington's Disease Support Center
We find out two years ago than my husband has HD, I have gone to everyone I can to try to find out the best way to take care of my husband. he just turned 47 years old. we has been under a doctor care for the last two years, he had severe headaches for almost a year and after the headaches stop, he star hearing voices and start thinking that everyone was against him I took him back to the doctorby wallettce - Huntington's Disease Support Center