Thank you, Eric, for your post. I am hoping someday I have the courage to do what you have done. My husband does not want anyone to know he is HD positive. We have gone thru IVF PGD so our children won't have it, but I still feel they need to know. When they are old enough, I will have to be the one to tell them. We have a 15 year old Foster Son as well who needs to know sooner than later, bby Sally - Huntington's Disease Support Center
I agree with what everyone is telling you Eve. You have a VERY good reason for wanting to test your child. It makes a difference.by Sally - Huntington's Disease Support Center
I heard the mercury levels are about the same as those in a can of tuna. Nothing to worry about.by Sally - Huntington's Disease Support Center
Luz, your husband my not mind the side affects of the swine flu for himself, but what about you? Does he want something to happen to you? Ask him that! If he gets it, your chances are increased.by Sally - Huntington's Disease Support Center
Fred, is it something you regret doing now or are you still happy you made the decision to have them tested?by Sally - Huntington's Disease Support Center
My husband has tested positive for HD. I agree with Eric. No matter what you think, it is not something you can ignore forever if your husband has it. He decided to test soley because we wanted children. When we found out he had it, children were off the table...until we discovered IVF with PGD. I, like Luz, live in Canada where they will not allow you to do PGD unless you know the results oby Sally - Huntington's Disease Support Center
Zandra, Unfortuntately, when you decided to not test your child before she was born, you gave up your right to know. No one could have made you abort, you are right. I do understand how you feel about wanting to know. However, can you reverse the roles for a bit? What if it was you in her situation? When you turn of age and decided to test, would you want your parents (or someone else who aby Sally - Huntington's Disease Support Center
Barb, Human error. The clinic wanted to make sure there were no mistakes when they tested them before transferring them back. Apparantly, the world's error rate is about 2-2.5%, however, not everyone (ourselves included) have the babies tested so the error rate is not accurate. The clinic we used said their rate was about 1%. I am very confident in their testing...I have to be.by Sally - Huntington's Disease Support Center
Don't forget if you get your child tested, you are taking away their right to purchase life insurance in they are positive. If they say they have never been tested and an insurance company finds out they have been tested, all insurance would be declined. It is hard for you not to know. I completely understand. My husband and I recently went thru PGD IVF and are now pregnant with twins boysby Sally - Huntington's Disease Support Center
My husband had an MRI over 5 years ago so his HD neuro would have a base reference point once he started to show symptons. THe neuro was suprised at the results. My husband, who still shows no physical signs, had an MRI that indicated he should be showing many symptons of HD. Guess that is why an MRI should not be used without other indicators.by Sally - Huntington's Disease Support Center
Our counsellor told us she would not open the results envelope until we showed up for the appointment and told her we wanted the results. She said she had one lady call and cancel the appointment who had a low CAG and because the lady did not want her results, she could not even tell her the good news. She decided from that point forward never to open the envelope until afterwards. She actuallby Sally - Huntington's Disease Support Center
Marsha...you haven't been married long enough to be in separate rooms already!by Sally - Huntington's Disease Support Center
Dusty, this is what my mother-in-law had arranged for herself and we took advantage of this week. If you contact the Huntington's Society of Canada, they will recommend you call University of BC. They can give you all the contact information. They will be MORE than pleased to accept any donations. UBC took her brain and Dalhousie University wanted everything else. Hope this helps. Let me knby Sally - Huntington's Disease Support Center
Do you know about the program the Canadian government came out with some time ago called "Registered Disability Savings Plan"? If not and you or a family member has HD, you should look into it. Check out the website. It looks like you need to be disabled in order to receive benefits, but the government will contribute a minimum of $1 per $1 you contribute. It looks awesome!by Sally - Huntington's Disease Support Center
Yesterday, after suffering in a NH for 13 years, my MIL passed away in her sleep. Even though we knew it was coming, it was still a surprise. Her only request was that she be donated for research. Hopefully, they will find a cure and she will have helped. I often hear people talk about how they don't get along with their MILs. I just wish I would have had the chance!by Sally - Huntington's Disease Support Center
Look on the bright side of things...all this worry might be for nothing and HD might have ended with your parent. Enjoy life!by Sally - Huntington's Disease Support Center
JL, my idea of "good" snow is watching that snow globe you put on your message!by Sally - Huntington's Disease Support Center
Mackell, I saw the snow you got last year. My aunt emailed me pictures. It was as high as the roof on her house...a two storey house! I hope we don't get that hear this year.by Sally - Huntington's Disease Support Center
Come a bit north Jemi. It has finally stopped snowing here...at least for the time being. It is now well over 2 feet!by Sally - Huntington's Disease Support Center
Ok Shy...stop rubbing in how warm it is there. I would sooner pay for my airfare to come to the warm weather. The grass is greener on the other side....what grass? I can't see it now! BJ, I'm from Nova Scotia. Where are you from? JL, my husband taught me how to use the snow blower yesterday (used it twice) because he had to go to work and didn't have time to blow it. I can't imagine haby Sally - Huntington's Disease Support Center
I can't believe last week it was 70 degrees and now we have almost 2 feet of snow! Does anyone want to come help shovel?by Sally - Huntington's Disease Support Center
Your link is not working if me, can you please try to repost it? Thanks.by Sally - Huntington's Disease Support Center
Thanks Steve...I took that route and it worked. Eric, I think I'll save that website for another time, but I will certainly be running it soon!by Sally - Huntington's Disease Support Center
Tried that Steve. Thanks. Eric, I don't mind deleting my saved passwords. I don't like having them saved anyways...Bring it on!!!by Sally - Huntington's Disease Support Center
My computer crashed....now, somehow, my password for the site has gotten saved. I tried to delete my cookies, but that didn't work. Can you tell me how I can make it so I have to type my password everytime? Thanksby Sally - Huntington's Disease Support Center
JL...we have two seasons here in Nova Scotia. Winter and road repair!by Sally - Huntington's Disease Support Center
Ok...I think enough is enough. Can we PLEASE just get past this?by Sally - Huntington's Disease Support Center
JL, I certainly don't want to start another disagreement, but is it possible that you didn't send the PM? I have done that before. Otherwise, it sounded like you might think someone had deleted it from your sent file.by Sally - Huntington's Disease Support Center
Mackell, I'm from Nova Scotia.by Sally - Huntington's Disease Support Center