I don't think you are friendless, JL. Unfortunately, sometimes things are misunderstood when they are typed and not spoken. Also unfortunately, sometimes when someone tries to explain what they actually meant, it gets even more out of control (forgive me if this seems extreme). I respect both you and Marsha and hope that everyone can move past the conversations from last night.by Sally - Huntington's Disease Support Center
Finally...one of you posted! I was starting to think you were too busy celebrating!by Sally - Huntington's Disease Support Center
My husband's results took about 3 months to get. Recently, I was told 6 weeks.by Sally - Huntington's Disease Support Center
I agree 100% with you Eric. If we ever decide to have children that is the route we will go.by Sally - Huntington's Disease Support Center
My husband decided to get tested because he did not want his children to hate him for giving them HD. His mother did not know she had it when she had him and therefore he does not hold it against her, but felt he would if she had known. I'm not saying I agree with xgold, but after talking to my husband I understand. The other side of the story is, when using CVS (at least in Canada), you musby Sally - Huntington's Disease Support Center
That is what they told us. However, one of his specialists told us later so we knew the 43 count.by Sally - Huntington's Disease Support Center
My husband only takes it once per day...after supper. No one mentioned spreading it out. I'm curious to know what the results will be.by Sally - Huntington's Disease Support Center
dcb - I got this information from the post title "50-50" that someone added to again. Marsha - Thanks. You answered my question. I called today and found out that my husband's count is 43 & 17. In Canada, they don't normally give you the results. We just find out if the gene is present or not. They don't want anyone to know in fear of what they may do. We had found out prby Sally - Huntington's Disease Support Center
I pulled this from another thread.... "the 50-50 thing is based on the assumption that only one parent carries the gene on only one chromosome. There will however be cases where both parents carry the gene or one parent carries two copies of the gene. If both parents are hd positive then 75% of their children will on average be positive and 25% of their children will carry two copies of theby Sally - Huntington's Disease Support Center
Those stats of 4 out of 4 having HD are exactly what happened to my husband grandparents. They had 4 children...all 4 had HD. Two jHD and the others were adult onset.by Sally - Huntington's Disease Support Center
Forgive me if this sounds stupid because I am a Canadian and don't know the US health care system. I know it may be expensive, but I guess that is a good reason for every person to carry individual insurance (if they can afford to) rather than purchase it thru their employer or their spouse's employer. Sorry to hear about your trouble, Marsha. Bad things happen to good people.by Sally - Huntington's Disease Support Center
Of course you want to tell them! Think positive...it will be a good result and they will both want to be happy for you! On the side of reason, best of luck!by Sally - Huntington's Disease Support Center
Obviously it didn't kill him! Too bad! Stupid fool!by Sally - Huntington's Disease Support Center
Everyone is entitled to their opinionby Sally - Huntington's Disease Support Center
I friend send me this saying the other day and I thought I'd share it: There is no point in stressing about life...no one is getting out alive anyway! With or without HD, this is certainly the truth.by Sally - Huntington's Disease Support Center
Will, thanks for throwing that message in there even if it belonged in another thread! I was going to ask an Eric question "what does that have to do with this thread?" Thanks for telling meby Sally - Huntington's Disease Support Center
I personally think the tasor situation in Canada is getting a bit carried away. There have been about 20 deaths since 2003 related to tasor usage by police offiers. That is about 4 per year. Yes, it would be nice if these deaths could be prevented, but if the tasor wasn't around and police officers had to use their gun, there would be alot more than 20 people dead. I think I'll stop agruingby Sally - Huntington's Disease Support Center
Fred, my husband gave the information to the RCMP willingly. The doctors are not allowed to provide that information to his employer without his written consent...privacy laws here are REALLY strick on that sort of thing. What I meant by him having to qualify for his gun/tasor like a "regular member" was that he does not have to qualify more often than anyone without HD and they haveby Sally - Huntington's Disease Support Center
Does it have to have something to do with what we are talking about?by Sally - Huntington's Disease Support Center
His neuro tests his foot movements once every six months. He is not showing any. He is still more than capable in the doctors opinion. On most of his tests, he scored higher than the average person would.by Sally - Huntington's Disease Support Center
JL!!! I can't believe you actually own a blender! :-)by Sally - Huntington's Disease Support Center
Thanks for the support Fred and Pat. To answer some questions about my husband and his position at work. The RCMP have taken his medical condition seriously and so has my husband. When he tested positive, he voluntarily went off work for 1.5 years so they could put him thru some major testing to make sure he was still VERY capable of doing his job. He sees two specialist on a regular basiby Sally - Huntington's Disease Support Center
I don't like starting anything on here, but I have a problem with an item mentioned on another thread. Dusty said, "So I look faintly drunk. My dog is on a flex line, sooner or later the cops are gonna get me, and because I look drunk I'll get tazored, and with HD I will probably die.? However, right before that ?They bring up delirium extremis to account for the death. Which does not exby Sally - Huntington's Disease Support Center
First, don't let anyone convince you to test before you are ready. If you want to wait for your sole mate. Do so...the support is greatly needed. Second, you said "Right now, we are at the point where we are beginning to really open up to each other. Talking about our past secrets." Now is the time to tell her. If you don't and she thinks you have told her everything, she may leaby Sally - Huntington's Disease Support Center
I don't know about anyone else, but when when pHD started to show signs of depression, he did not know he was. The doctor prescribed the meds and he took them...fighting him all the way. It was not until months later that he realized the doctor was correct. Once he realized, it was amazing because he didn't need the meds anymore. It was like he just needed to admit it to himself. He has not taby Sally - Huntington's Disease Support Center
Ok, Marsha...as usual, can you translate? Should we get our hopes up?by Sally - Huntington's Disease Support Center
I did see the show where House tested her blood without her knowing. Someone on here mentioned that there was a previous show with HD mentioned as well. Makes me wonder why there have been two shows on it.by Sally - Huntington's Disease Support Center
Thanks....it makes sense to me now!by Sally - Huntington's Disease Support Center
A family member just attended an HD family day in Halifax, Nova Scotia. She said a lab in Ottawa has allegedly made an important discovery and will be announcing it in Boston this summer. She said she thinks it has something to do with detecting the onset of HD by a change in a person's blood - so even before you would see the physical or mental signs. Does this make any sense to you? What wby Sally - Huntington's Disease Support Center
I have to agree and disagree in some way with what everyone has said: 1 - Agree - HD is a horrible disease. I don't just explain it as being similar to Parkinson...I add Alzheimer?s too. To me, the two are worse together than either one separately. 2 - Disagree - At least with HD we have the option to stop the progression. With Parkinson?s and Alzheimer?s you don't know if you are goingby Sally - Huntington's Disease Support Center