Congrats, Luz! I understand completely how you must be feeling right now. We had twin boys born thru IVF PGD in December 2009. Two embryos transferred....two a success. I also understand how you feel about the number that were HD free. Our numbers were about the same...out of 14 embryos, only 4 were HD free. I think it is because they are being extra careful and if they aren't 100% sure theby Sally - Huntington's Disease Support Center
Our thoughts are with you and your family. A loss like this is never easy.by Sally - Huntington's Disease Support Center
My husband didn't have any counselling and he isn't symptomatic.by Sally - Huntington's Disease Support Center
My heart goes out to you. I can't imagine what you are going thru. I'm sure that since her grandparents love her, they will step up! Best of luck!by Sally - Huntington's Disease Support Center
They joined for many reasons, to march, to sail, to fly, they went where they were posted but nobody joins to die. Their leaders talk on TV what else could we have done? But those leaders lost no daughters and none has lost a son. So heres to all our soldiers wherever they may be.....and here's to all their families,...... I raise a glass to thee......Wear your Poppy with Pride. Happy Remembrancby Sally - Huntington's Disease Support Center
I appreciate all the information that you have all been giving in regards to this information. Marsha & Jeff (if you are still here), please tell me what time frame we are looking at since we would need to go thru all the phases of trials for this. My husband is just starting to show signs now. Any hopes of it helping him?by Sally - Huntington's Disease Support Center
My husband went thru the same thing she is going thru when he tested positive. It must have been a shock to her especially because the baby had tested negative. She was probably hoping that meant she was. Best of luck! I have twin 11 month olds so I know how hard it must be on you right now.by Sally - Huntington's Disease Support Center
Can anyone tell me the best drug(s) to improve the memory of someone with HD? Thanks.by Sally - Huntington's Disease Support Center
My thoughts are with you now. Wish there was something I could do.by Sally - Huntington's Disease Support Center
Thanks for explaining all that Jeff. It makes sense, but too bad it wasn't easier!by Sally - Huntington's Disease Support Center
I know when we did PGF IVF that testing for AD was an option.by Sally - Huntington's Disease Support Center
Oopps...just noticed the other post on thisby Sally - Huntington's Disease Support Center
Did anyone see Grey's last night? There was a woman on the show that had Huntington's!by Sally - Huntington's Disease Support Center
Sorry to hear about the test results. Yes, the CAG count does have a relationship with how soon the symptons appear, but honestly, there are better people on here than myself to answer those questions. This link might help answer some of your questions in the meantime.by Sally - Huntington's Disease Support Center
My Mum always said that things come in threes....either good or bad!by Sally - Huntington's Disease Support Center
Luz, we met Dr. Ao and another team member, but that was all. If you want any information or just to chat about everything, PM me. I love talking about it!by Sally - Huntington's Disease Support Center
In our house, I say all my husband hears is Charlie Brown's teacher. You know that "wa-wa-wa-wa-wa" noise. It doesn't seem to matter what I say.by Sally - Huntington's Disease Support Center
Luz, my husband and I went thru PGD in Montreal in April/May of 2009 and now have twins boys that are 9 months old. It was well worth it. I'm happy to hear they are now offering it for free, but I never thought of the back load of clients it must be causing! We still have two eggs waiting for us (not sure if we'll go back for them or not), but I never thought of how long the wait may be. It wby Sally - Huntington's Disease Support Center
Thanks so much. Just having memory issues and in his job that isn't a good thing. Nothing else really at this point. It is just starting to frustrate him.by Sally - Huntington's Disease Support Center
I think the best thing about this site is that people can speak their minds. We are all in one way or another affected by HD. We get stressed about it and other things tend to pile on top of it. It would be great if we could all appreciate that, however, sometimes the stress is so great that we don't think about it until it is too late and things get blown out of proportion. Personally, I hby Sally - Huntington's Disease Support Center
The best person to ask about this is Will.by Sally - Huntington's Disease Support Center
Yeah! 4th place under the causes section....not too bad!by Sally - Huntington's Disease Support Center
I'm sorry, but I didn't take the time to read everyone else's posts, so I hope I am not repeating what they have said. Try video taping his actions without him knowing. That way, you could show the doctor what is going on. That is what we had to do for our son for another matter and it worked. Good luck@by Sally - Huntington's Disease Support Center
1390 votes so far....keep it going! I've voted 3 times already!by Sally - Huntington's Disease Support Center
We have 3 boys....known of them at risk. The oldest is our foster son. He will be the hardest to tell as he has already lost two foster father's to death. He is now 15 and we don't know where to start. I'm sure he knows because as mentioned kids hear more than we know. Our youngest our twin boys, 7.5 months. The are the result of PGD IVF. Technically, they are still are risk, however, theby Sally - Huntington's Disease Support Center
So Marsha, what do you think? Eric is right. How long will this take?by Sally - Huntington's Disease Support Center
Stella...you are so right. Until you have lived the HD life or a family member has, you just don't get it!by Sally - Huntington's Disease Support Center
In my husband's family, the 3rd child got it worse. She had jHD.by Sally - Huntington's Disease Support Center
I don't want to discourage you, however, my husband's mother was showing signs of HD in her mid 30's. We know my husband has HD and he is now 37...still no signs. It sounds like he might be one of the cases where you can get it later than your carrier. Sorry. There is always hope until you find out for sure and then there is still hope, but for a cureby Sally - Huntington's Disease Support Center