I'm so proud of you Matt!!by LizzieAnn - Huntington's Disease Support Center
I order most all my vitamins from Puritan's Pride. They have 2 for 1 sales and I've compared the extreme creatine pills ( I think that's what it's called) and it compares well for cost per serving. For somethings I also use Swanson's Vitamins as I can get chelated products on a lot of things which seem to absorb better.by LizzieAnn - Huntington's Disease Support Center
Maggie, That was a nice story to share. Reminds me of the recent times my 24 yoa son is spending with his father. My hubby really likes going to the movie theater and my son has now started taking him on Friday afternoons when my son does not have an afternoon class. My hubby sits in the back corner as to not disturb others with his movements but it gives him such a joy to go and "by LizzieAnn - Huntington's Disease Support Center
My phd hubby had the same thing with driving...vroom..vroom..vroom on the accelerator. I would ask him why is your foot doing that? He would say he was just tapping his foot to the beat of the music. Actually, he was just covering up the symptom by saying that as he often still does with his chorea movements. His hand writing declined and he was written up about it before at work with themby LizzieAnn - Huntington's Disease Support Center
Sorry, I'm not familiar with that area of the country, but I'm sure if anyone is they will respond to your inquiry.by LizzieAnn - Huntington's Disease Support Center
After Maggie posted a few days ago about observing what they thought might be improvements with Tony in the ACR16 Trial,...... My phd hubby and I were talking about what we both felt and observed the Mementine might or might not be doing for him. We both have observed a lessening in the frequency of his choking on liquids episodes. He is no longer working now, so is that due to the Mementiby LizzieAnn - Huntington's Disease Support Center
Good posting! Carla, I was glad you posted the Potosi Missouri facility as I was not aware there was one so close. My sis just lives 1 hour from there. Thanks!by LizzieAnn - Huntington's Disease Support Center
I'm glad you're keeping us up to date on his journey in the trial. The symptom's can be so elusive at times. I know even hour to hour my phd's symptoms can change. I know how hard it can be to try and see if something is an actual improvement in symptoms. Keep observing & for myself, keeping a weekly journal is a good way to keep record and remind yourself of certain observations at theby LizzieAnn - Huntington's Disease Support Center
I'm proud of you too, Barb!by LizzieAnn - Huntington's Disease Support Center
Matt, The site is Great! Wow - 6 in one year! I'm tired even thinking about it. Best of luck to you on your runs!by LizzieAnn - Huntington's Disease Support Center
jl, Did/Do you know what your uncle's cag was? Or was his time before the testing? How old was he if/when he deceased? Just wondering if you were able to get a family cag history? Wondering since your uncle had chorea so early and it didn't seem to be a symptom for your father or his children. I wondered if the "type" of HD symptoms seem to run in families.by LizzieAnn - Huntington's Disease Support Center
I agree with the others, sounds like it's not just a house problem. If you do plan on trying to get some things done around the house for the appearance of "fixing" the dust mite problem he views, I do know there are companys that will vacuum and clean out all your ac/heating duct work. That might be something your phd would view as beneficial to the dust mite situation. It can beby LizzieAnn - Huntington's Disease Support Center
jl, not quite sure why you only pickout the quotes you FEEL serve YOUR purpose against my opinion. The quote actually about "deserving" is as follows: I hope in the future the current adminstration takes constructive action on the subject that does not take away from the deserving in an attempt to give to those who do nothing, at their own choice, and are not disabled/indigent. Tby LizzieAnn - Huntington's Disease Support Center
jl, I posted specifically how the current President attempted to bring up a new plan in taking away disabled veteran's healthcare benefits. There is no bill number regarding that as he wasn't able to move on with it after the public outcry. As it should have been, stopped dead in it's tracks. I'm satisfied with that outcome on the subject ......so far. I posted MY dissatisfaction with theby LizzieAnn - Huntington's Disease Support Center
jl, The condition of Walter Reed hospital is indeed due to decades of cutbacks and down-sizing of the military budget and funding. All the more reason to not totally take away the VA coverage and make veteran's start paying out of pocket for their service related injuries. And yes, they could suffer more. Much more indeed by turning a blind eye to thier needs. The American people did not anby LizzieAnn - Huntington's Disease Support Center
jl, I would agree, Mr. President did accept responsbility for a failed attempt at trying to abandon the care of our disabled veteran's of service to this country. But admitting you didn't have the policital or US citizen's support to do a dirty service to our veteran's doesn't make the attempt smell any better.by LizzieAnn - Huntington's Disease Support Center
I think we have a desire for a similar outcome of our health care system, we just differ on what we're willing to give up to obtain it. I DO want the best health care I can get in the US and I've been willing to work for it all my life. I don't want to just settle for "adequate" health care so that other's who haven't contributed to our nation in a productive way and who are able toby LizzieAnn - Huntington's Disease Support Center
It's too bad about the requirements of not being able to be on certain medications to be eligible for the trial. I think the low turn out maybe due to that. If they want a phd to participate that is symtomatic but not on the risperdal or tetra for the movements it's hard to find people who are not treating their symptoms. I know my phd would be more than willing to do it and the travel but he'by LizzieAnn - Huntington's Disease Support Center
I would like to hear more about this. I remember reading an article previously out of a magazine...I think it might have been "Science Daily" about brain insulin and HD and how diabetes blood insulin did not always accurately reflect what the brain insulin was doing. A lot of it can be technically over my understanding, but I do recall a light bulb going off in my brainby LizzieAnn - Huntington's Disease Support Center
Eric, Yes, perception may be part of the equation. Thanks, Ernst. I find your chinese balance info very helpful as we all know different foods effect the body differently.by LizzieAnn - Huntington's Disease Support Center
Thanks everyone for your responses. Seems my phd is not the only one. Nila, only common medication I see is Namenda. All those extra calories must be being burned up with the internal furnace.by LizzieAnn - Huntington's Disease Support Center
Interesting suggestion about the medications. My phd is on Risperdal and Mematine. What is your phd taking?by LizzieAnn - Huntington's Disease Support Center
I've heard others mention that as a phd they felt cold and had difficulty maintaing their body heat. I've also read the article on a mice study in which average body temp was possibly 3.5-10 degrees lower in the mice studies. My phd says he's hot all the time. He now has almost zero body fat and has lost about 35 lbs over last couple of years but he says he's hot all the time. No body fat anby LizzieAnn - Huntington's Disease Support Center
Marsha said "Okay, I thought I'd read a study about Aricept and I found my notes on it. A small clinical trial with HD patients in 2006 found no benefit." Does Memetine act the same as Aricept? acetylcholinesterase inhibitor? If so, why are they prescribing it for HD?by LizzieAnn - Huntington's Disease Support Center
Mango, I am so glad to hear your post. Sounds like the "break" and "Jack" are a well deserved time-out for you! Keep posting and I hope this brings a solution for you and your phd. LizzieAnnby LizzieAnn - Huntington's Disease Support Center
I noticed your said you told your "old doctor" your father had committed suicide. I know when my hubby applied for his short term disability the insurance company only requested his current dr. complete the form and requested his records, not any previous dr.'s we never listed.by LizzieAnn - Huntington's Disease Support Center
Barb, Thank you for sharing that info on your anti-depressants, that was very helpful! I will keep that info for future conderations when phd hubby and I go to the Neuro in March. Hubby is not currently on any anti-depressants as wasn't ever depressed but since stopping working and driving...sitting inside all winter as left him down. We didn't want meds that weren't necessary just because...by LizzieAnn - Huntington's Disease Support Center
AAAAHHHHH, Eric, spoken like a very wise person...... I don't have HD but my phd does and he's having a hard time since stopping working. I ask him each day what he has done (just out of acting interested- not checking up on him) And he's not doing much but watching tv. I hope getting thru winter and getting into spring & I will be able to get him interested in doing more, like puttingby LizzieAnn - Huntington's Disease Support Center
Interesting article. I mentioned to my hubby's neuro at his last appt. that his sleep difficulites with hollering and kicking were a big problem for us before he started taking the risperadol. Since taking the medication all those sleep problems have stopped completely. The neuro seemed surprised that the medication had done that and seemed to doubt our statement about it at the time. I waby LizzieAnn - Huntington's Disease Support Center
I can't say whether your mother's actions are HD related or not. Stress during the holidays maybe lending to the problem for her. Some people are just MEAN! I have a family member who does not have HD who just doesn't know when to keep their mouth shut! If they can get away with criticizing someone either platently or on the sligh they will. If you confront this person about it and don't letby LizzieAnn - Huntington's Disease Support Center