So sorry for your loss Michelle. He sounds like a very special person. You can hear the love that you shared come through in your words. My thoughts are with you.by Hope2 - Huntington's Disease Support Center
Crazy - life is short and she is destroying a relationship with her daughter in law and granddaughter - relationships that could probably keep her closer to Dan's memory than anything else would... When my mom's dad died (of Leukemia) his side of the family somehow blamed my grandmother and that was it - end of relationship with my mom and her family. Everyone is already hurting from loss anby Hope2 - Huntington's Disease Support Center
I am not having that problem...by Hope2 - Huntington's Disease Support Center
I am not having that problem...by Hope2 - Huntington's Disease Support Center
Great job Judy - I am so glad the meeting went well. Such a ridiculous situation - everything is going well on all sides and they decide lets shake up this delicate balance for the well-being of the content patient... uneccesary stress for everyone involved. I am so glad it worked out in the end!by Hope2 - Huntington's Disease Support Center
Hope you have a wonderful Birthday!!by Hope2 - Huntington's Disease Support Center
Wow - that is fantastic... so happy for Tim, you and your entire family...by Hope2 - Huntington's Disease Support Center
Hi Leah - I am so sorry about the loss of your mom and the difficult situation with your brothers and dad. You do have a lot of responsibility on your shoulders - and you are a mom too... I am glad you found this site - it is a great place to get questions answered and find support.by Hope2 - Huntington's Disease Support Center
All sound like great steps to get some answers and a plan in place. You have gotten ball rolling and I am sure something good will come from it. Please post how it goes. Good luck!by Hope2 - Huntington's Disease Support Center
When I met my father-in-law I noticed the movements but nobody said anything. The first time my parents met my husband's parents my folks said to me afterwards "what is wrong with his dad?" I said I don't know and no one says anything about it... One of my in-laws friends suggested that he get some medical attention. When he was diagnosed with HD my mother-in-law was furious at her fby Hope2 - Huntington's Disease Support Center
Hi Violet - For us testing was a very good thing. My husband has always been into exercise but he is now also taking fish oil and blueberry (as well as an anti-depressant) and he is doing very well. We make sure he gets good sleep. I do think the lifestyle changes have made a difference. He is a prosecutor and is functioning at a very high level (doing serious trials), he is snowboarding, biby Hope2 - Huntington's Disease Support Center
I don't have a link - I am sure someone else will post one. There are statistics regarding CAG expansion, contraction and staying the same. The percentage of CAG expansion is much higher when it is passed paternally. Higher CAG # is related to earlier onset...by Hope2 - Huntington's Disease Support Center
For us the decision to test (my husband was the one at-risk) came when thinking about whether or not he had HD became a full time thing - or wondering whether this or that was a symptom of HD or not... my husband was 46 years old. His result was positive but we are both very glad we did it because now we can put our energies into keeping him as healthy as possible and keeping up to date on theby Hope2 - Huntington's Disease Support Center
CBreeze - it is so heartbreaking to read what you are going through. I don't know much about JHD but I know that there is so much hope right now regarding treatment for HD - things that will come in the future but also, as others have posted, things that can help right now. Fish oil, anti-depressants... it sounds like your son is resistant and I don't know how you can change that... but I am suby Hope2 - Huntington's Disease Support Center
I 2nd that sentiment. some of these things - issues.feelings etc are impossible to communicate. you come here and not only do people understand but they are living it too - or have gone through it already.... it is a support that you just can't get anywhere else and it is remarkable how much it helps.by Hope2 - Huntington's Disease Support Center
So very sorry for your loss Dave.by Hope2 - Huntington's Disease Support Center
No need to apologize at all - this forum is for issues related to HD... and that is what you have so you are in the right place... It does seem unlikely given your husbands parents and grandparents longevity... but it is possible. The waiting is so hard - so difficult not to have answers. When my father-in-law was diagnosed @ 58 years old it came as a total shock to everyone but his parents haby Hope2 - Huntington's Disease Support Center
GREAT NEWS!!! So happy for you both!by Hope2 - Huntington's Disease Support Center
Hi - I have seen some posts regarding typing in the past. My husband has such a hard time typing and he is trying to write a book - so he is writing longhand... wondering if anyone knows any way to help this or any voice recognition software that they like. Thanks!by Hope2 - Huntington's Disease Support Center
Thanks all - he seems to be doing very nicely on the Thyroid med. he is more engaged... hard to describe but he is becoming a bit of his old self again - I am not saying that it is all due to the thyroid med - he's also gaining confidence at work for various reasons and having some good therapy... we are just starting to taper down the zoloft very slowly - we'll see how that goes... thanks fby Hope2 - Huntington's Disease Support Center
I suppose it is possible - but many things are possible - if it is possible that the zoloft is flattening him so much that he feels wooden I think it is the right thing to do to at least try to reduce the dosage and see if that works. He is barely symptomatic in terms of the HD... it is possible that his phsych symptoms are much more advanced than his physical and cognitive symptoms. You know hby Hope2 - Huntington's Disease Support Center
Wow! Congrats! Running 15 miles is amazing...and then walking 11 on top of it to finish is outstanding. Good luck next week!by Hope2 - Huntington's Disease Support Center
The problem is that we think the zoloft dosage is too high. He is doing well in all areas except "he" is gone - no emotions, no personality... I am talking none.... he says he feels wooden. He was better when he was on a lower dose of the zoloft but he was much more depressed. A lot of things are better in his life now than when he was on the lower dosage but I think the doc is afraiby Hope2 - Huntington's Disease Support Center
HE's on zoloft and seroquel. I will seek a 2nd opinion. thanks for the input...by Hope2 - Huntington's Disease Support Center
Yes, doc did blood work that showed normal thyroid. his experience is that if there is depression with normal thyroid, low dose can thyroid med can help...by Hope2 - Huntington's Disease Support Center
Hi - My husband's doc (psychiatrist/neurologist) has prescribed armour thyroid 15mg day. We like the doc but he is not an HD expert. He has prescribed it because we feel my husband is overmedicated with antidepressants - too high dosage - and he thinks this will help the depression and we can then lower the dosage of the anti-depressant. All makes good sense but I was wondering if anyone knowsby Hope2 - Huntington's Disease Support Center
Thanks Robi - very interesting.by Hope2 - Huntington's Disease Support Center
Congrats on your home AND your mom! Glad to hear things are going so well!!by Hope2 - Huntington's Disease Support Center