Marsha - do you have those stats in regard to paternal transmission? Thanks!by Hope2 - Huntington's Disease Support Center
Kudos to you for having the confidence to KNOW you are more informed than this doc. Grrrrr makes me so mad! We were sent out of the HD clinic (after HD+ diagnosis from the clinic neuro and no "support" at all) told to take a multivitamin and eat a variety of fruits and vegetables... and the care went downhill from there... and that is NYC -I know that shouldn't make a difference I juby Hope2 - Huntington's Disease Support Center
So frustrating Lorraine! I don't understand that logic but you find it all over - here too... and even at an HD clinic in NYC! Good luck with your new stall and good luck getting the memantine... (if you do start memantine please post how you like it)by Hope2 - Huntington's Disease Support Center
Hi - My father-in-law lived with HD until he was 72 - he lived at home and enjoyed his grand children and a swim in the pool until just a month or so before he passed. My dad, who did not have HD, lived till 72 also. There is a lot to be hopeful for and treatments and cures are in the realm of possibility! Good luck!!by Hope2 - Huntington's Disease Support Center
That is awesome news Carla - thanks for posting! What an incredible relief it must be for you to see that he is doing well - that the difficult decisions you have made are working out for the best. So happy for you, Tim and the whole family.by Hope2 - Huntington's Disease Support Center
That's great news Judy! And you sure were due for something good to happen. I hope you are happy with the NH. Good Luck!by Hope2 - Huntington's Disease Support Center
So happy she is negative. this is a good one to take off the list of possibilities. I hope you have some answers soon. best of luck!by Hope2 - Huntington's Disease Support Center
So happy she is negative. this is a good one to take off the list of possibilities. I hope you have some answers soon. best of luck!by Hope2 - Huntington's Disease Support Center
Hi - Huntington's is such a crazy disease because you can often not know if behaviour is from the disease but what you are describing sounds like it comes from the HD. I think my husband does a similar thing with my side of the family - nieces and nephews on his side walk on water as do our kids but not a nice word for the same on my side. I know what it feels like to be caught in the middle aby Hope2 - Huntington's Disease Support Center
I don't know your situation (symptomatic or not) but for us knowing one way or the other was a very good thing. Finding out the result doesn't change the reality it just allows you to deal with it in a proactive way. I hope she is negative but if not this board is a wonderful place for support and information. Good Luck!by Hope2 - Huntington's Disease Support Center
Is that only federal? My husbad works for the state and we'd be very interested... Thanksby Hope2 - Huntington's Disease Support Center
Thanks very much!by Hope2 - Huntington's Disease Support Center
Thanks very much!by Hope2 - Huntington's Disease Support Center
Just an idea for this website. I find some of these strings so valuable that I'd like to print them out and have them to refer to. Wondering if it is possible to add a "print" option that would remove all the other website graphics and just leave the string. Not sure how complicated that would be... Thanksby Hope2 - Huntington's Disease Support Center
I want to tell my kids early because I like the idea of avoiding a big shock when they are older - it makes sense to me for it just to be part of their lives (they are 8 & 6 now) but I have 2 issues - one is my husband doesn't want to tell anyone (not just the kids) about being HD+ (he has told some close family members and a couple of people at work - we have older nieces & nephews but tby Hope2 - Huntington's Disease Support Center
Hi - You are just where I was many years ago - but you are asking the right questions and in the right place for informed and inciteful input. We now have 2 children who are at risk and my husband is HD+ and starting to be symptomatic. If HD was not a part of your life would your husband want children? I imagine that having conflicting feelings regarding having or not having a family is difby Hope2 - Huntington's Disease Support Center
Happy Birthday to you Marsha!!by Hope2 - Huntington's Disease Support Center
some snacks, a flair, a water purification kit... ya never knowby Hope2 - Huntington's Disease Support Center
Awesome Barb! Nothing ventured nothing gained... Good luck! I hope you love it!by Hope2 - Huntington's Disease Support Center
I give huge kudos to those of you out there who are exercising so much. Before kids I exercised almost daily - would take a day off now and then when I felt my body needed it. Now I have the will but not always the energy and usually not the time. It was always done 50% or more for my mental health. I miss it very much and try to squeeze it in whenever I can. I think its benefits should be aby Hope2 - Huntington's Disease Support Center
Hi - I know just how you feel. My husband is the one who is HD+ (and I have 2 kids at risk). My father-in-law had it and developed symptoms late - he lived (at home) until he was 72 - never mean... if a kid looked at him sideways because of the motions he'd explain about Huntington's Disease. I am drawn to this forum even though it breaks my heart so often. I feel that no one can really underby Hope2 - Huntington's Disease Support Center
Awesome Matt!!!by Hope2 - Huntington's Disease Support Center
I read an article recently about how it was believed that cardio specifically increases the BDNF but now they are learning that weight lifting does as well. My husband is 46 and slightly symptomatic. He lifts, bikes, snowboards (and has been involved with sports since childhood)... he lives to excersize and be outside. I KNOW it is good for him physically, mentally - every possible way - as welby Hope2 - Huntington's Disease Support Center
Fantastic!!by Hope2 - Huntington's Disease Support Center
Hey Liz - There is no way to know if you have it or don't have it without testing. People go nuts trying to figure out if something is from HD or not. You are under an incredible amount of stress and you have completely rational anger because of this difficult hand that life has dealt you. I know that "Mommy, mommy, mommy, mommy" chant and it makes me nuts! it makes any human mommyby Hope2 - Huntington's Disease Support Center
SO sorry Carla - what a difficult time and a difficult decision. I don't have first hand knowledge but after reading about so many people's experiences with NHs (as I am sure you have too) it seems to improve the lives of the people with HD as well as the caregivers. It may not feel that way at first but with time it will. I hope the transition goes as smoothly as possible.by Hope2 - Huntington's Disease Support Center
So sorry for your loss Eric. May she rest in peace.by Hope2 - Huntington's Disease Support Center
Wow Rylee - that was wonderful. Made me cry too. You can express yourself so beautifully - it is a gift. thank you very much for sharing.by Hope2 - Huntington's Disease Support Center
Hi Katie - welcome to this forum. what is going on in your family? this forum is a wonderful source of info, support and empathy. I am glad you found us...by Hope2 - Huntington's Disease Support Center