Does the ACR16 study still have the same list of exclusions even though it was found not to change the effects? My husband was about to start the trial and the doc recommended a drug on the exclusion list and we took his advice - now I want him on ACR16...by Hope2 - Huntington's Disease Support Center
Hi Sara - Very sorry about your news. As someone else wrote - it was there now you just know it and can DO something to give yourself the best possible chances - sounds like that is exactly what you are doing. My husband was recently diagnosed and is very early on - we are trying to be as proactive as possible - keep posting what you are doing and we'll do the same - we can all learn/help eachby Hope2 - Huntington's Disease Support Center
Does anyone know if the people that participated in phase 1 and 2 of this trial are being followed. I know they didn't want to take on too much in order to get the drug approved but I am curious if information is being gathered on long-term usage. Will Huntexil affect the disease itself - is there a reason to start using this med even if the patient has minimal movement issues.... Thanks!by Hope2 - Huntington's Disease Support Center
Thanks Marsha! That is awesome news!by Hope2 - Huntington's Disease Support Center
Hi All - I am new to this forum although I have followed for a while. my husband was just about to start the HART study in Long Island New York but he is pretty early on (very recently diagnosed) and we were encouraged to deal with his psychiatric symptoms first with meds that were not allowed in the HART study... with these wonderful results I am wondering if we made the right decision... I hoby Hope2 - Huntington's Disease Support Center