I don't know a doc in your area but I would certainly be skeptical of a doc who keeps calling it Parkinsons! Good luck.by Hope2 - Huntington's Disease Support Center
Hi bluemoon - I am sure others may know more on this subject but as far as I understand assuming that you are HD-, your daughter has a 50% chance of not inheriting the gene at all. If she does inherit it from her mother she could have a lower CAG number or the same. I believe it is not likely for the CAG to be higher when passed maternally.by Hope2 - Huntington's Disease Support Center
So glad things have taken a turn for the better! You all deserve to have some peace! Great news!by Hope2 - Huntington's Disease Support Center
It is so scary. Sending you healthy energy... good luck to you!by Hope2 - Huntington's Disease Support Center
It is so scary. Sending you healthy energy... good luck to you!by Hope2 - Huntington's Disease Support Center
That is my understanding as well. I am not sure if it is impossible or just unlikely to have a contraction when inherited from your father.by Hope2 - Huntington's Disease Support Center
HD is such a bizaar disease in that it manifests in such a multitude of ways. My father-in-law passed @ 2 years ago and until he died he was good natured and never complained (well, maybe a bit to his wife but not the rest of us). I marveled at how he coped with the disease as it ravaged his body and aspects of his mental functioning. When my husband was diagnosed a year ago at 47 (as symptomsby Hope2 - Huntington's Disease Support Center
Happy New Year to everyone here! I hope the science continues to progress as quickly as possible!!! The bits and pieces of progress and good news are a source of great hope... I hope all those suffering from HD - parents, spouses, caregivers, and HD+ have a good 2011 and find peace and joy in their lives.by Hope2 - Huntington's Disease Support Center
Sounds like you made a huge effort to entertain and give everyone the best Christmas possible. You should pat yourself on the back. Unfortunately you have to pat yourself on the back because he is unable to do it. I hope you know deep down that he would if he could.by Hope2 - Huntington's Disease Support Center
fingers crossed, legs crossed, arms crossed.... GOOD LUCK!!by Hope2 - Huntington's Disease Support Center
I am so happy that you found her in good condition - I am sure the visit was very meaningful for her (and probably the others too). Wonderful to take a leap into the unknown and have such a positive result. You are a good friend.by Hope2 - Huntington's Disease Support Center
Thanks! I was confused about the PM notice that wasn't there!by Hope2 - Huntington's Disease Support Center
Hi Liz - it must feel like such a relief to be able to share the burden. It is so hard to have it all on your shoulders - I hope your sister continues to help out. Together you can handle everything. Good luck placing your mom. I am sure it won't be easy but from what I have read on this forum it is usually the best thing for everyone including the person being placed.by Hope2 - Huntington's Disease Support Center
So sorry you are going through this difficult time. I have nothing to contribute but just wanted you to know that I am sending healing thoughts your way. I also used to be a very positive and optimistic person - these situations are so draining that it is hard to keep that feeling. I hope things will improve soon...by Hope2 - Huntington's Disease Support Center
All good particularly "It also shows that the synapses in rodents are more similar to humans than previously thought, suggesting that mice and rats are good models for examining human brain diseases" nice to hear since I think there has been a lot of success in treating mice with HD. thanks for postingby Hope2 - Huntington's Disease Support Center
Yes Eve - I agree that if there are real symptoms that could be HD it is worthwhile to test so that there is not a misdiagnosis and so the issues can be addressed properly. Just like with any symptoms a correct diagnosis is a HUGE part of the battle. And, of course, if a treatment becomes available. The insurance raises an interesting question. I have heard of people getting insurance for at-by Hope2 - Huntington's Disease Support Center
Thanks for the input. I also feel that it is the right of each individual to decide if and when to be tested and parents should respect that and wait until the child is an adult. Hopefully one day there will be medical reason to test to take advantage of a treatment. I was reacting to how hard it was to explain the issue to people that aren't close to HD. I think it is such a foreign thing toby Hope2 - Huntington's Disease Support Center
My husband is seeing a new psychiatrist who I like very much in terms of his philosophy and how he is handling my husband's treatment. I do not think that his knowledge of HD is where I'd like it to be - certain things he has said led me to feel this way. We don't know my husband's CAG # and he doesn't want to know it because he feels horrible about possibly passing it to the children - the higby Hope2 - Huntington's Disease Support Center
I met and married the love of my life - he was at risk but we were in denial - a severe case of denial - and never thought he would be HD+. Unfortunately over the last 6 years he has changed so much. We had him tested 1 year ago and, as we were suspecting, he has HD. He is now 48. We have 2 children and life is not easy. Every situation is different and there is a lot of hope on the horizon inby Hope2 - Huntington's Disease Support Center
neurologist was totally off. My husband was the top of his class in HS, went to Cornell on scholarship, very successful legal career. his dad who also had HD rose to the very top level of the NYPD - he was one of three 3 or 4 star chiefs - just under the commissioner!by Hope2 - Huntington's Disease Support Center
Hey Jojo - as you can see this forum is a source of information and support that you can't find anywhere else. Post any question at all and someone will have info or personal experience or just empathy. Tell your husband too - it is my husband who has the HD but I am the one who uses this forum. Best of luck... and wow, summer xmas, wine and cheese on a NZ deck sounds like HEAVEN to me now!by Hope2 - Huntington's Disease Support Center
So sorry - nothing is harder than not being able to make things OK for your kid - or watching them suffer. Denial is incredibly powerful - but sometimes it can also be protective - would it help the situation if he had to face having hd right now? It is such a hard situation for all of you. You obviously love your son very much and see the good that is inside him. That is the most important tby Hope2 - Huntington's Disease Support Center
Hi Jojo - I am so glad you are looking at all of your options. It is a very personal decision and it is so very complicated there may be no right or wrong answer. But my personal experience as a mom of 2 at-risk children is that I would do anything to know that they were not HD+. We knew that my husband was at risk when we started having children but it really wasn't affecting our lives at alby Hope2 - Huntington's Disease Support Center
Fantastic News!!! Congrats!by Hope2 - Huntington's Disease Support Center
Hi JoJo - Welcome. So sorry to hear about your results. There are a few people on this forum that have first hand experience with these issues - I am sure they will chime in eventually. As the parent of 2 at-risk children I can tell you that you are doing the right thing by learning what you can and taking steps to avoid having children who are at-risk. Good luck!by Hope2 - Huntington's Disease Support Center
You are very fortunate. If it can happen to you there is no reason to think that under the right circumstances it could happen to someone else too. Isn't it surprising that they are not doing more clinical trials for Memantine at lower dosages for HD. So happy for you!!by Hope2 - Huntington's Disease Support Center
Thanks Eric - that makes sense...by Hope2 - Huntington's Disease Support Center
Just curious - CAG # of everyone HD+ around here seems to be between 40 and 45. I think that JHD is high 60's. Is there a jump over high 40's and 50's - is there any reason there isn't anyone on these boards (or caregivers) with CAG #'s in that range. Or maybe there are and I am not aware of it.... just wondering...by Hope2 - Huntington's Disease Support Center
Awesoome Will! Sounds like a great workout with self-defense perk. Great job - you are truly an inspiration for the those with and without HD!!by Hope2 - Huntington's Disease Support Center
What a wonderful report Barb! So happy that you are doing well despite it being such a difficult time. It is great that you have found docs and a clinic that you are so happy with - we are still searching for that. Are you near NYC by any chance? What do your docs attribute it to? the memantine? other things you are doing? Great news!by Hope2 - Huntington's Disease Support Center