Sorry to hear this news. I hope you and your family have many happy memories to help get you through this timeby eve - Huntington's Disease Support Center
I also have low blood pressure (in spite of needing to loose some pounds), but I am negative. My pHD husband has slightly high BP, but pretty normal. It will be interesting to see how many others have low blood pressure though.by eve - Huntington's Disease Support Center
Best wishes to you!!! If I had known HD was in the family, I would have done just as you are doing. I am praying for a negative for you!!!by eve - Huntington's Disease Support Center
Wow Mike! Sorry to hear about your back! I hope you're doing ok. Do you need surgery? Anyway, I'm really glad you asked this question. I never knew anything about it. I wonder if it is related to exercise levels? As Barb points out about calcium not being processed correctly in the brain, makes me wonder if a PhD should stay away from calcium supplements? Also, I wonder if they should havby eve - Huntington's Disease Support Center
If it's just urinary maybe even feminine pads might work. Otherwise I'm not sure what diapers to recommend.by eve - Huntington's Disease Support Center
This is really nice to hear. It's still got to be heart breaking to see your loved one change, but it's great to hear he is still amazing and wonderful. It's really interesting how HD affects people differently.by eve - Huntington's Disease Support Center
I wonder if you should try another doctor. I don't like how this other one just sort of seemed to dismiss you. Although maybe a year and a half ago things and symptoms were not as they are now. If you've noticed changes, I would get back to the doctor and tell him or her about your continued increased symptoms or new symptoms. I don't know if HD always shows up on MRT's in early to mid stagesby eve - Huntington's Disease Support Center
I think stress can exaserbate (sp?) HD symptoms and feelings. Hopefully getting back into the routine will help him simmer down.by eve - Huntington's Disease Support Center
Wow! This is fabulous Will. Thank you so very much for sharing this!!! We will check this out.by eve - Huntington's Disease Support Center
I think you should tell them. My FIL was in his 70's when we found out. Our son was an infant. It was shocking news. There was no family history, but probably something like your story where the CAG was low and maybe it expanded. There is something called anticipation which in genetics means that the CAG count can expand to higher numbers with offspring of those who are positive for HD. Soby eve - Huntington's Disease Support Center
Congrats!by eve - Huntington's Disease Support Center
Can you take a picture and post it? Sounds nice.by eve - Huntington's Disease Support Center
Beautiful couple and story. Glad you have great memmories and shared the story with us. Very sorry for your loss.by eve - Huntington's Disease Support Center
I've not heard of this before, but try looking through old posts here (use the search feature) and maybe it's been discussed before. Maybe try investing in a device you can listen to calming music through ear phones? Sorry I don't have very good info/advice about this, but maybe someone else will.by eve - Huntington's Disease Support Center
You sound like such a kind person, but you need to be kind to yourself too. I think you should not put up with any physical abuse. The verbal abuse isn't good either since it will cause you stress. My son has issues and he has occasional rage problems (I don't think it's at all related to HD, but he is at risk). His doctor has said that the connections in his brain aren't quite right. Afterby eve - Huntington's Disease Support Center
Thanks for the holiday wishesby eve - Huntington's Disease Support Center
Very sorry to hear about this stress. Not a nice thing to have hanging over your head at Christmas. Find what joy you can and be good to yourself. You will need energy and strength to get through this rough time.by eve - Huntington's Disease Support Center
My son (who is at risk for HD but not symptomatic...but he has other issues) has a similar problem. He will fly into rages occasionally (thankfully getting less frequent as he gets older), but often doesn't remember much about what has happened when he's in that state. He had one at school the other day because another kid punched him at recess. I happened to be picking him up for an appointmeby eve - Huntington's Disease Support Center
Glad to hear from you Dusty, but your words brought tears to my eyes. My dog is getting older too and I can't imagine the pain I will feel when he's gone. I'm happy you had that treasured relationship with your girl.by eve - Huntington's Disease Support Center
Sorry for your loss.by eve - Huntington's Disease Support Center
I am not pHD but I talk to myself all the time and to in adament objects! Maybe I'm just weird, but it's always been a habit of mine. But perhaps it's also a symptom of HD. I remember my FIL never used to talk to himself, but the one time whenI was with him while he was driving (which was sort of a nightmare because he would press hard on the gas,then let up completely so the car would surge fby eve - Huntington's Disease Support Center
Thorflower, you might want to private message Carla or start a new thread in case your question gets lost in the shuffle and she doesn't see it. I'm sure she'd like to answer you and share with you. She's a very wonderful mother with a lot of good advice.by eve - Huntington's Disease Support Center
Cool! I almost feel as if Will is a relative or something...I feel as if I know him and I feel proud of his accomplishments!by eve - Huntington's Disease Support Center
My husband takes some supplements (fish oil) that are likely causing him to have loose stool (not really diarrhea).by eve - Huntington's Disease Support Center
Thorflower, I'm so sorry about the disappearing "friends". That is something that seems to unfortunately be a common theme posted here. It's got to hurt. But I just love the wonderful support and great ideas everyone shares on this site.by eve - Huntington's Disease Support Center
I'm glad you have some peace in your life.by eve - Huntington's Disease Support Center
Maybe she grinds her teeth (could be at night so she doesn't realize) or clentches her jaw. Maybe it's TMJ and you could look into treatments for that if so. Could some sort of mouthpiece work? Maybe you've already tried a trip to the dentist. I'm sorry, I'm not sure what is going on. I hope she can find help and relief.by eve - Huntington's Disease Support Center