Maybe this has already been posted, but I think the coenzyme Q10 study in premanifest patients is starting. Here's a link if you want to check it out:by eve - Huntington's Disease Support Center
Sara, you are a lovely person and I'm sure everyone is wishing good news for you.by eve - Huntington's Disease Support Center
Our Sunday newspaper has a supplement called the Parade magazine with a section called Ask Marilyn (who's supposed to be a really smart woman named Marilyn vos Savant). Today someone wrote in asking if they have a 50% chance of inheriting a terminal illness and can get a genetic test to see if they have the gene, how could they find out if the test is negative and they want to know, but if the tby eve - Huntington's Disease Support Center
I'm sorry too. I remember the blow it was to hear my husband's news.by eve - Huntington's Disease Support Center
I am new here and don't know the history...I maybe should stay out of all this...but I decided to share what I think is my non-biased opinion. It seems JL is intelligent and has made some fine points, but it looks like she is loosing perspective about appropriate social interaction. It would be sad to cut her off of this forum because she has offered insightful and helpful comments and also thiby eve - Huntington's Disease Support Center
Maybe this has been posted before, but FYI I just thought I'd share. There has been some discussion about the variations in onset of HD. I jsut read this article about epigenetics and wonder if this is yet another piece of the puzzle in the answer to that question and maybe to an eventual cure? I guess the mouse study was done in 2006, so probably it's old news, but it was new to me. The Timeby eve - Huntington's Disease Support Center
I wonder if late onset HD isn't as rare as everyone thinks? Maybe I think that because my father-in-law had it diagnosed in his 70's (there was no prior history that we knew of before that, but maybe other family members had late onset and the myth of "you don't have it if there's no symptoms by age 40" was perputuated to them back then too...it took a while for the doctors to figure oby eve - Huntington's Disease Support Center
I'm trying to make sense of this...I admit I had a difficult time understanding the abstract (didn't see the paper or graph). According to jayb's explanation, this paper is really refering to those who had a higher CAG repeat and if their second allele was also high then they had a later onset...is that right? So Luz is saying her MIL had a late onset because one allele was 38 and the other wasby eve - Huntington's Disease Support Center
I'm new to the forum and this is a great question. We didn't know HD was in the family until my father-in-law was diagnosed around age 80 and our son was only a few months old. I immediately and instinctivly decided that we should not mention the gene positive status of my husband (once he was tested) and he agreed. He is a very introverted and private person anyway, but I mainly was thinkingby eve - Huntington's Disease Support Center
Thank you all for your compassionate and wise words. This site is really a treasure. I feel I can't discuss this with anyone since I don't want to jeapordize my child or husband's insurance etc. It's a great comfort knowing I can come here for advice and strength.by eve - Huntington's Disease Support Center
Thanks to everyone for your opinions and support!!! I really appreciate your replies. We are currently doing a glutten free/casein free diet, but I don't believe there's any change with his behavior or how he's feeling in regard to the diet. I will check out the Feingold diet...thanks so much for that link! It seems it could be a tricky situation trying to sort out everything going on with myby eve - Huntington's Disease Support Center
I feel every situation is different. I've seen a recent post from a mom who wanted to know the status of her daughter and the overwhelming response was that she would be violating her daughter's right to decide. The arguments made sense, but I want to present another case and hear responses. Here is my story: My 5 year old has a gene positive father. We had no idea HD was in the family until mby eve - Huntington's Disease Support Center