Marsha, you are truly like a lighthouse. A beacon to those who feel adrift and lost to help guide us with your knowledge and support. I think we all take you for granted and I apologize for that. I really don't know what I'd do without this site. I know there are many that read, but don't post and feel the same as I do. You are a valuable treasure. Thank you.by eve - Huntington's Disease Support Center
We use Triple Strength Fish Oil (from GNC) that has EPA 647 mg and DHA 253 mg and 900 mg total omega 3 fatty acids.by eve - Huntington's Disease Support Center
Congrats! Celebrate! Aren't you glad you went thru with testing!!!by eve - Huntington's Disease Support Center
I know of a couple women who have had endometrial ablation (lasering the lining of the uterus) to stop heavy bleeding. Here is more info: but I'm not sure if she'd need sedation or if she could hold still for it or if it is even what you were thinking might solve the problem. I think you're smart to wait to discuss stuff until you don't feel so over-whelmed, but just don't keep putting it ofby eve - Huntington's Disease Support Center
Sara, congrats and what a GREAT idea! We should share each other's sorrows and joys. It's neat hearing about everyone's wonderful news. Just that is happy for me since I feel as if I care about most of you here and and I feel as if I know you guys.by eve - Huntington's Disease Support Center
Judy, I'm sorry. That just totally sounds like a nightmare.by eve - Huntington's Disease Support Center
Sorry to hear about the huge stresses in your life. I can't be of help except to let you know there are many here thinking and praying for you.by eve - Huntington's Disease Support Center
Hope, this is a great question! I too feel I'm in a similar situation...I want to "do no harm" but then again if there's something to stop/slow the progression and protect what he has, then maybe I'd be for it. In other words I'd hate to rock the boat, but I want to keep on with the relatively smooth sailing we're at now. Mine is on supplements (same as yours except isn't on anti-depby eve - Huntington's Disease Support Center
Moon, altho you say leaving his CAG/HD history out of it he's the most perfect guy...well, you can't leave that out of it....that' part of the package. I agree with Barb that it was irresponsible at best to not inform you of his possible status before he proposed. I personally wouldn't feel I could have a life with someone so secretive sneaking around behind my back and not being truthful. Iby eve - Huntington's Disease Support Center
Check some posts by Will. I think he takes a mounds candy bar (coconut) everyday and that helps counteract the effects of the creatine. Also I believe in another supplement thread a woman said her husband couldn't do the 20 mg so just does 10 mg. I don't know...would taking a fiber supplement help? Did he try easing into the dose slowly? If not, try that (like start with 5 mg for several dby eve - Huntington's Disease Support Center
I'd always heard that pHD's had BETTER than average immune systems. All I know is that my pHD husband rarely gets sick. I am not at risk and I am the one with irritable bowel. So I'd say your findings are not what is happeneing in our house.by eve - Huntington's Disease Support Center
Gene negative HD participants are needed as a control group to better understand the subtle changes in early HD. Also I should mention that I just found out that there have already been 8 articles published from the PREDICT study since 11-09. It seems like there is some helpful info being learned. Everyone participating can feel proud they are helping find answers.by eve - Huntington's Disease Support Center
Like Eric mentioned in another post there's going to be a total genome study of Predict-HD study participants by Harvard and the U of Iowa. They are searching the "whole genome for additional DNA variations between gene-positive and gene-negative individuals hoping to find further clues on how HD develops as well as how it might respond to various treatments. Additionally, the team is atteby eve - Huntington's Disease Support Center
Sorry...that does suck big time. I think you're wise to test. I've heard it said many times before and I agree that knowledge is power. There are proactive things you can do (supplements are one). Also you have a chance to plan. Getting long term care, disability, life insurance are some options you have before you test and you may really want to think about that since you have a child.by eve - Huntington's Disease Support Center
This question isn't directed to me, but I will answer part of it based on my my one experience with my FIL. He was about 80 when he died. I think his CAG was 41. He had very mild chorea (justlooked fidgity) and I think that is why he was diagnosed so late in his life (also there was no known family history before that). He didn't seem to have major mental issues, however he had problems withby eve - Huntington's Disease Support Center
I'm so glad you posted jsr. Life has delt you several blows. It's no wonder you've gone thru some low times and pestimistic thoughts. I think any rational, feeling person would. I think Sara has made a great suggestion about reaching out to a professional. It sometimes takes time to find the right person, but when you do your perspective can take a dramatic change. You sound like a wonderfulby eve - Huntington's Disease Support Center
Very sorry to hear this. Like Hope says it brings back the heartache memories we went thru hearing our positive results. I also agree with Hope saying take time to mourn, but also take strength from those on this forum and where ever else you can find comfort.by eve - Huntington's Disease Support Center
Whenever someone says something to me that I disagree with, I try to understand why they said it and why I disagree. I think I understand why you're offended by your BF's family comments. But as Barb mentioned think about the fact that they respect you enough to feel they can be straight with you. I will be staight with you too but I'm not trying to make anyone feel bad or mad. This is a plaby eve - Huntington's Disease Support Center
I should also mention that in one case study, ritalin was found to bring about what seemed to be a sudden decline in a child who had JHD but was misdiagnosed with ADHD and RX'ed ritalin. I'm not sure if it would be contraindicated for adults who truly do have ADHD and are pHD.by eve - Huntington's Disease Support Center
My son was diagnosed with autism at an early age (very high functioning) and recently diagnosed with ADHD. I know ADHD is different from ADD though. With him, some of the symptoms remind me of early HD symptoms (such as irritability, fidgiting) and I sometimes wonder if it's JHD. I just pray it's not. I guess one way to look at it is they are both problems with the brain's "wiring"/by eve - Huntington's Disease Support Center
Happy B-day wonderful Barb!!!by eve - Huntington's Disease Support Center
I hope you can find useful and comforting information here. It has greatly helped me. I have a pHD hubby and my young son is at risk.by eve - Huntington's Disease Support Center
Thanks Will (also Happy B-day)!!! I never thought about the possible kidney issue. My husband refuses to go to a doctor so this is a bit troubling. Maybe if I mention this he would agree to go. Thanks so much for sharing your great advice.by eve - Huntington's Disease Support Center
Hope 2 That is really funny about your husband only taking just what you put in his hand! My husband is just the same!!! Also, Aren't you supposed to build up slowly on the creatine dose amount?by eve - Huntington's Disease Support Center
Kip, I think Sara's post above says she takes 1 teaspoon of creatine (along with same amount of trehalose mixed with it in water) morning and evening. CORRECTION: see Sara's revised post...it's 2 teaspoons twice a day See also Will's postby eve - Huntington's Disease Support Center
What would be advice about a pHD retiring young? By young I mean a few years under 59 (they have 25 years on the job). And what if they had a small child? The person feels they are having problems dealing with people they come in contact with, but otherwise has no physical symptoms. Any things to think about and feed-back would be great.by eve - Huntington's Disease Support Center
I sent you a private message, but I'm not sure it was helpful information. I really am shocked you haven't been able to make this choice. I hope you can figure it out.by eve - Huntington's Disease Support Center
Very sorry to hear this. There is great support here. I hope you will find some comfort.by eve - Huntington's Disease Support Center
I think you need to treat everyone with respect and dignity. The only HD+ person I ever knew was my father-in-law who lived to almost 80. He seemed to have no dementia of any sort. He was a great man who was intelligent, had a wonderful life and contributed so much to the world. Even at the end of his life when he could no longer speak, he seemed to understand everything. Everyone is an indiby eve - Huntington's Disease Support Center