Great idea, Dusty! Of course everyone has different humor, but one site I like is the Onion...altho sometimes it can go a little too far and get offensive.by eve - Huntington's Disease Support Center
Thanks everyone for your comments. I needed someone else's perspective. I think it can sometimes be difficult for me to see another point of view especially when it's something I really want. I think in this case I wasn't looking at the big picture and wasn't thinking about him. It is interesting that others have had some anxiety type issues with family social gatherings. I am positive that iby eve - Huntington's Disease Support Center
Take good care of yourself. I can understand the mixed up feelings.by eve - Huntington's Disease Support Center
Glad to meet you Lorraine. I wish your life was easier especially in regards to your mom. But I'm glad you're getting tested...that could help some things. I too have a child at risk. It does tear you up inside with worry doesn't it?by eve - Huntington's Disease Support Center
Pete, I know he is apprehensive about last year's episode so I think you're right about him feeling anxiety. My family has no knowledge about HD either. But they certainly aren't judging him. He can't explain why he doesn't want to go except for citing last year's blow-up. He is a very introverted person so he never has liked crowds (altho there'll be less than 20 people there so it's not a hby eve - Huntington's Disease Support Center
Here's a question that doesn't necessarily totally deal with HD. My family has a once a year get together. They live several hours away so we don't see them often. My husband's family mostly lives locally and we see them all the time. Last year at my family reunion my pHD hubby became angry with my son and had a big blow up where he said some hurtful things. Now he doesn't want to go this yeby eve - Huntington's Disease Support Center
THanks for explaining this Marsha! It is still difficult for my brain to totally understand, but you did an excellent job. I sure don't understand why your posting was taken down...it sounds as if it's very exciting information with great potential. One interesting thing I noticed is that photorecptors in the eye are damaged by HD protein. I never knew that...is that a new finding? Haveby eve - Huntington's Disease Support Center
Trina, I'd say food can be like a drug for some people. I am one of those who eats when I'm upset. I have had ups and downs with weight. The thing that works best for me is to exercise. It can be something simple such as walking....walking is actually one of the best for me...it helps to refresh my brain. It looks as if in part of your message you have been looking at advice/help from a nurseby eve - Huntington's Disease Support Center
I have really no comprehension of this, but it just came in our state HD newsletter today and it says it's a new potential therapeutic target so I guess that's promising. I like to hear good news and thought I'd share. It says it's from Neuron Volume 67, issue 2, 199-212, July 29, 2010 and the article is titled: Matrix Metalloproteinases Are Modifiers of Huntington Proteolysis and Toxicity in Hby eve - Huntington's Disease Support Center
Thanks Patty. I'm also very happy and surprised he agreed (he's been to a doctor like only twice in 30 years). I was looking at the meds and it looks as if the one you're on Citalopram (Celexa) or else another one Fluoxetine (Prozac) would have the least side effects: so I'm happy to hear it's been effective for you. Now I'm also wondering if my husband should get a neurologist...I guess onby eve - Huntington's Disease Support Center
Thanks everyone for your kind and informative responses. I feel like I'm in a better place today than yesterday. My husband and I talked and he agrees to try to get on something. He rarely goes to the doctor so this is very huge for him. He and I don't want to disclose that he is HD+ mainly due to the fact that we have a small child and I don't want that at risk status to be known yet...I knoby eve - Huntington's Disease Support Center
I thought I'd heard that most often pHD's are not conscious of any symptoms as far as behavior, but I don't think this is the case with my husband. I believe he is showing some early symptoms with explosiveness. He will then have regrets later. I feel so badly for him because then he feels terrible about himself. I remember reading I think it was something Hope posted on trying to reduce stby eve - Huntington's Disease Support Center
These are very good points and philosophically debatable.by eve - Huntington's Disease Support Center
Wow! A triple play!!! Feeling very happy for all of you!!!by eve - Huntington's Disease Support Center
Great news! Best wishes!!!by eve - Huntington's Disease Support Center
My son was diagnosed with autism at a young age and he has had many sensitivty issues (not so much now that he's older). I feel certain that Eric is on to something. And listen to Barb too. It can be baffling trying to figure it out, but I'd say go in and watch. Lighting, noise (my son has had trouble with loud noise and especially echoes), water pressure, water temp could all play a role. Iby eve - Huntington's Disease Support Center
Wonderful job, Zach! Eric, you must be so proud!by eve - Huntington's Disease Support Center
Glad to meet you, Trina. I'm also very sorry to hear about all the really hard stuff you've had to go thru. I hope you find some comfort here...I have. I've met a lot of great people here with good advice and support. It just helps me to get stuff out of my system and know there is support here.by eve - Huntington's Disease Support Center
My pHD FIL made little humming noises and sniffled a lot (he had late onset...diagnosed in his 70's but had it awhile before that). It would drive my MIL crazy when they were in church. But that doesn't mean your son has it based on that. He could have some other neuro problem or he could just have post nasal drip. I really wish you could get him tested. My son has had some issues too (notby eve - Huntington's Disease Support Center
Thanks Lavonne! I was just reading this this morning, but there was no reference to dose. So I'm glad you posted this because this article does give that info. I am not pHD, but I feel my mind is not what it was and I might try this too knowing it will only harm my pocket book!by eve - Huntington's Disease Support Center
This is another hot-button topic. My husband had once muttered something about suicide if he gets to a "bad state". I've tried to tell him that I will always be here to take care of him and I would do it feeling it is a privledge and out of love. But he too doesn't want to talk about HD. That's one reason why this site is so helpful to me because otherwise I would feel so alone. Iby eve - Huntington's Disease Support Center
I feel the theory of it being more well known is true (altho the general population still is not well informed). My FIL was in his 70's (no known family history, but his father left when he was young and was an immigrant) before a doctor finally diagnosed what was going on. He had seen numerous other docs as well as a neurologist that missed it! When one doc was told the diagnosis he said he neby eve - Huntington's Disease Support Center
Yeah, thanks Eric and Barb. I think you're right to not rock the boat and create unnecessary resentment before it's needed...choose your battles right? But this is something I will keep a close watch on and make sure it doesn't increase and get out of hand. The NA beverage is a good alternative (never thought of that) if we need to go there. Thanks again.by eve - Huntington's Disease Support Center
Sorry to hear this...no easy answers but I guess I'd say let him eat what he enjoys (of course I'm not a doctor either).by eve - Huntington's Disease Support Center
This is a good question. My pHD has about 1/2 to 1 beer every night with dinner. It never bothered me but it sounds as if it's not a good habbit after all. I don't know if I should choose this battle or not (maybe it wouldn't even be a battle to have him give it up). It doesn't seem to affect him.by eve - Huntington's Disease Support Center
Today is Labor Day and I say "THANKS" to you, Steve (as well as Marsha) for what I view as a labor of love in maintaining this site. It's obviously a lot of work and many times a huge headache. There are those who like to rip walls down instead of building relationship "infastructure". But I hope you will stand strong and be here for those of us who are very grateful that yby eve - Huntington's Disease Support Center
Kee Kee, some replies may seem brutal, but HD is brutal. This is the brutal truth. If you are new, you don't know the whole history. I made that mistake myself, in thinking "let's all just get along",but have come to realize in the grand scheme of things this is a treasure of a site. What you may not realize also is that there are also private messages being passed back and forth whby eve - Huntington's Disease Support Center
Hope, you have posted many wise and inspirational things. I'm very sorry to hear that you are going thru this. You have young children, right? You have to think of what they are going thru and learning so I think you are right to have low tolerance for undesirable actions especially due to your kids. But you also have to value yourself and your life too. Like what was already mentioned, maybeby eve - Huntington's Disease Support Center