Dying
Posted by Terilynn
Hello
I haven't posted in awhile. I'm very sad because my brother in law who has suffered from HD for 20 years is dying. He now lays in bed not speaking, not eating , and for the first time in a long time he is still. No chorea. We are thankful that soon he will suffer no longer from this horrible disease. I wish the disease would end here but my husband has the gene and my 3 children are at risk. I just wanted to share with those who understand this pain.
I haven't posted in awhile. I'm very sad because my brother in law who has suffered from HD for 20 years is dying. He now lays in bed not speaking, not eating , and for the first time in a long time he is still. No chorea. We are thankful that soon he will suffer no longer from this horrible disease. I wish the disease would end here but my husband has the gene and my 3 children are at risk. I just wanted to share with those who understand this pain.
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Re: Dying October 29, 2013 03:59PM |
Registered: 16 years ago Posts: 57 |
So sorry to hear this and the others at risk. I know how devastating this can be and it just seems to go on and on. So sorry he has had to suffer so long. Praying for a peaceful transition for your Brother in Law and a cure for all those currently suffering and at risk! I think the answer is out there. SOMEONE has the key, and please know that we are supporting their efforts in every way possible. Drug trials, financially, raising awareness, and prayer!!!!!
V
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Re: Dying November 01, 2013 08:41PM |
Registered: 10 years ago Posts: 12 |
I'm sorry to hear that you are going thru such a hard time. I completely share your pain!!!!
I'm his wife and am the full-time care-giver.
>
> > I am currently trying to get some extra medical
> help (ie: underwear, medical, home help care,
> etc.....)
My husband was diagnosed several years ago and is currently on disability.
>
> We are covered by our scripts (Haloperidol) and
> (Citalopram).
>
> The "underwear" products we use, we have to pay
> $100.00 out of pocket per month in a credit card.
>
> John is doing "ok", but I have to get him in the
> shower in the morning and wash his hair (and other
> things). He hates the shower, but it must be
> done.. After this, he pretty much gets dressed
> by himself. I comb his hair and put on his
> deoderant.
>
> After this, I make his lunch.
>
> I stay with with him all day long......I don't
> work right now, I am on unemployment. Pretty soon
> I will need to get a job, not sure what to do a
> this point.
>
> Sorry for the long message.....
>
> Any suggestions?
> --------------------------------------------------
> -----
> > I appreciate it. She was let go in March of
> last
> > year then when were tested in June. I was able
I'm his wife and am the full-time care-giver.
>
> > I am currently trying to get some extra medical
> help (ie: underwear, medical, home help care,
> etc.....)
My husband was diagnosed several years ago and is currently on disability.
>
> We are covered by our scripts (Haloperidol) and
> (Citalopram).
>
> The "underwear" products we use, we have to pay
> $100.00 out of pocket per month in a credit card.
>
> John is doing "ok", but I have to get him in the
> shower in the morning and wash his hair (and other
> things). He hates the shower, but it must be
> done.. After this, he pretty much gets dressed
> by himself. I comb his hair and put on his
> deoderant.
>
> After this, I make his lunch.
>
> I stay with with him all day long......I don't
> work right now, I am on unemployment. Pretty soon
> I will need to get a job, not sure what to do a
> this point.
>
> Sorry for the long message.....
>
> Any suggestions?
> --------------------------------------------------
> -----
> > I appreciate it. She was let go in March of
> last
> > year then when were tested in June. I was able
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