I know this is 2 years late but thought I'd post in case anyone else was looking for resources. It was recommended to me to purchase the book called "Why is Daddy Different?" By Amy Francis. It really helped my boys understand what is going on with their father.by Sally - Huntington's Disease Support Center
I was on this site years ago but have been using Facebook for most of my information and support. I googled something this morning and this group came up. Just wondering if there is a group of Facebook with people from this group. I miss Pat and Marsha. Lolby Sally - Huntington's Disease Support Center
I know your message was posted 6 years ago but I haven't been on here for a really long time and I just found it. I'm wondering how things turned out for you. I think I'm in exactly the same situation now that you were in then. I have twin boys that are 8. I think I'd feel differently about staying if we'd had a loving relationship before HD kicked in. There is no love on our marriage. When Iby Sally - Huntington's Disease Support Center
I have successfully been thru IVF with PGD. We have twin boys that are 7. If you are interested, there is a facebook site set up for people trying to go thru IVF PGD for Huntington's.by Sally - Huntington's Disease Support Center
We live in Canada and waited almost a year before the clinic was ready for us to start ivf. Good luck...it can be a long wait!by Sally - Huntington's Disease Support Center
Eve....your husband sounds just like mind. It has been 2 weeks since he has spoken to me. It is hard.by Sally - Huntington's Disease Support Center
Found all of them except the second one. Can you send me an link?by Sally - Huntington's Disease Support Center
Hope the right link comes through but read this article.by Sally - Huntington's Disease Support Center
I actually had to send the email through his HD clinic nurse who only works on Tuesday and Thursday. I sent it Friday so there is no way I would have heard anything yet.by Sally - Huntington's Disease Support Center
I wish it was the same hereby Sally - Huntington's Disease Support Center
Anti-oxidants are effective on a 1:1 basis. In other words, you can't eat enough anti-oxidants to keep up with all the free radicals in your body. Prodantim works on a cellular level and upregulates your body to work like its own pharmacy. It has been proven to reduce oxidative stress by up to 40% in 30 days. Can anti-oxidants do that? You could never ingest enough anti-oxidants on a daily bby Sally - Huntington's Disease Support Center
I have posted twice and for some reason neither is showing so I hope this one works. Protandim is a one per day dose, however, if someone is in a disease state, it is suggested you take two per day for the first while and then go back to one per day. One husband is taking one per day because he is only the being stages of HD.by Sally - Huntington's Disease Support Center
Posted once but not sure what happened to it. Everyone takes one pull per day. If you are in a disease state, you can start with two to get it in your system faster.by Sally - Huntington's Disease Support Center
.by Sally - Huntington's Disease Support Center
Is there a Facebook site that anyone finds useful to share or receive information on HD?by Sally - Huntington's Disease Support Center
Yes!! The first thing I noticed was his sleep. He was actually able to sleep 8 hours without waking. I also noticed a change in his attitude. He became friendly again....even singing. This was probably because of the sleep, but still an improvement. Also, I noticed his twitches disappear. He is only starting to show signs and has them when he is tired, but they were there. Will....thaby Sally - Huntington's Disease Support Center
I have been doing some research and found that oxidative stress increases symptoms of HD. I was recently introduced to a product called Protandim that has been proven to reduce a person's oxidative stress levels on average of 40% in the first 30 days. I have started my husband on it and can't believe the difference (although he doesn't seem to see a difference). Has anyone else heard of this pby Sally - Huntington's Disease Support Center
How long did he take it?by Sally - Huntington's Disease Support Center
Has anyone here taken this and if so, how has it affected you? Thanks!by Sally - Huntington's Disease Support Center
I wonder if this could benefit HD patients?by Sally - Huntington's Disease Support Center
by Sally - Huntington's Disease Support Center
My husband and his brother both have a CAG count of 42, same as their mother. She was showing signs when I met my husband. She was 40. My BIL was about 35 when we noticed signs. He is now 42 and has severe signs. My husband is 39 and has no signs at this time. Hopefully, that continues. It used to make me wonder if they messed up his testing. At least until we went thru IVF PGD and the doby Sally - Huntington's Disease Support Center
Anxiously awaiting a trialby Sally - Huntington's Disease Support Center
So....Marsha, can you honestly say if this worked what sort of time frame we would be looking at before it is fully approved? We are getting to the point for my hubby that he will probably start showing signs REALLY soon. Even a couple of years will make a difference for us. Do you think it will be in time for him?by Sally - Huntington's Disease Support Center
Your situation sounds 100% like mine was at your age. My husband and I have been together since I was 16 and he was 17 (I'm now almost 38, and he is almost 39). He did not want to get married until he knew his results and was too scared to test. Eventually, he changed his mind and we were married when he was 28 (almost 11 years ago). 8 years ago May 31st, we received his test results...positiby Sally - Huntington's Disease Support Center
Barb, did you figure it out? It is because your computer is set to French instead of English. My place to switch it is on the bottom task bar. There is a little thing that looks like a keyboard. Just left click on it and pick "US". Hope that works!by Sally - Huntington's Disease Support Center
My experience with PGD is the same as Stacy's. The clinic we used at McGill University in Montreal only used embryos which inherited the low CAG count from my husband....meaning it was inherited from his father's side of the family (ie. no risk of HD). McGill took blood samples from my husband, his father (unaffected), his mother (affected) and me. The reason they took my sample was to determiby Sally - Huntington's Disease Support Center
How long do trials normally take?by Sally - Huntington's Disease Support Center
Love your comment Eric! I think the sperm would still be viable, but I would question the consent.by Sally - Huntington's Disease Support Center
Jojobeano... My situation is exactly like Luz's. I am also from Canada and had IVF PGD done the end of April, first of May 2009. We have twin boys that were born in early December 2009 (yes, if you do the math, they were born 7 weeks premature). I knew this was the only option for us because my husband did not want at risk children (neither did I) and I knew I would not be able to abort (100%by Sally - Huntington's Disease Support Center