This is fine by me. -Brett Tby Brett T - Huntington's Disease Support Center
Barb, I only wish to have what I write be read the way it was intended, nothing more. As for your involvement in this conversation I would suggest you think about about what Benjamin Franklin once said, " He that blows the coals in quarrels that he has nothing to do with, has no right to complain if the sparks fly in his face." You get a lot of leeway with me, Barb and I have evenby Brett T - Huntington's Disease Support Center
Marsha, Never has there been any question if you are good enough. I am not sure how you are reading this, but I assure you I never intended to suggest this. Nor did I mean to suggest you were being vague in your original response. I got it. You answered my question and I thank you for it. It was others I did not get. BTW, other than starting HDAC web site you and I have a lot in common.by Brett T - Huntington's Disease Support Center
Oh boy, for this reason I did not ask this question at first ( even though this is what someone else was looking to know ). I really do not know that much about you guys or whether in fact, Marsha you may be a doctor, yourself. I find there to be many great things about this site, which is why I was recommending it. What I do know is you have done a good job in attracting some top researchby Brett T - Huntington's Disease Support Center
This thread began due to someone wanting to know whether information placed on here was overseen by a doctor. The use of the word moderator was not defined as someone who controls or limits what is said, but rather checks it to make sure it is accurate and up to date. This was not a condition of whether they would join, but rather something they wished to know. I did not originally add thisby Brett T - Huntington's Disease Support Center
Eric, Why you think this post has anything to do with you is beyond me. My interest in whether you get moderated or not is nil. I too like free speech as gives everyone a chance to show just how little they know. Post away, my friend. Brett Tby Brett T - Huntington's Disease Support Center
Marsha, I think the fact the question is asked indicates it is not that obvious. What I am missing here is why some are so sensitive to this topic. I really don't care one way or another. Was just asking a question. Why a vague answer is considered sufficient is not clear to me, when more could be said, but I don't plan on losing any sleep over it. Someone I know who is new here,by Brett T - Huntington's Disease Support Center
Eric, I will tell you what, you decide what are good answers and questions on the threads you originate, and I will do the same on mine. Your behavior here has forced me to quote the late, great Jackie Gleason, in the Honeymooners, by saying, "I'll thank you for no suggestions." -Brett Tby Brett T - Huntington's Disease Support Center
A little by your interest in not wanting to see this topic elaborated on. From what I can tell you have never been a fan of short answers. -Brett Tby Brett T - Huntington's Disease Support Center
I kind of feel the person asking the question would be better equipped to determine how well it was answered; considering it was their question. -Brett Tby Brett T - Huntington's Disease Support Center
Why is that, Eric? -Brett Tby Brett T - Huntington's Disease Support Center
Does this board have a moderator? ( I am not saying I think this would be a good idea, I just want to know if there is such a person or not ). I know there is some confusion out there about this. -Brett Tby Brett T - Huntington's Disease Support Center
Barb does this mean you will not be accepting my facebook friend request? No, but all joking aside please do not bring up jl's name in this way. She is not here and this is not cool. If you have a problem with me leave it between us. -Brett Tby Brett T - Huntington's Disease Support Center
Eric - "And who said someone with HD is LIKELY to become violent?" You, when talking about rage: "I would not say that everyone with HD is abusive... on the other hand.. that it is a real possibility." Eric - "Also who defines it by late stage only?" Historically and still today it is difficult to be diagnosed for having HD, or being considered symptomaticby Brett T - Huntington's Disease Support Center
Thanks Jimmy. Good work! -Brett Tby Brett T - Huntington's Disease Support Center
Barb, This is not what I wrote: "...if someone just knows one or two people with hd, those two people would be very different." Right now we have no treatment for the disease, just the symptoms, and we need to be treated individually for the symptoms that affect us, not ones in general. We have HD in common and a need for a cure, we don't need to take it any further than thby Brett T - Huntington's Disease Support Center
HD is disease that can last decades. It moves at different rates of progression even within the same family. It affects the brain. This means it can do many different things to those who suffer from it. To know a couple people with HD does not mean you know all people with HD and how they are affected by it. We are not the same. We are not all violent. We are all just very misunderstood. -by Brett T - Huntington's Disease Support Center
1- DO ALL PHD'S GET ALL THE SYMPTOMS ATTRIBUTED TO HUNTINGTONS? OR JUST SOME OF THEM? Some of them. I think it may be hard to find someone who has/had all of them. I say this because the list is long. 2- DO ALL PHD'S GET MENTAL ISSUES? To some extent yes, but this can mean many things. HD is very much a mental illness. I wish there was greater understanding of this. 3- DO ALL Pby Brett T - Huntington's Disease Support Center
Happy B Day Will. Brett Tby Brett T - Huntington's Disease Support Center
Those are great Paula. Made my day! Brett Tby Brett T - Huntington's Disease Support Center
I am sorry Brent. I hope it can be worked out soon. -Brett Tby Brett T - Huntington's Disease Support Center
Hi Tellie, Ladycashel puts up lots of great threads about this on the HDA site: Here is one of them. Hope this helps. Brett Tby Brett T - Huntington's Disease Support Center
Thank you very much for doing this, Will and to those others on here who have done the same ( but I should mention the raffle is not for Lexus this year, but instead a vintage Duesenberg J /SJ /SS ) I will still let you know if you win, though. Also, I just learned the organizers just set up a fistgiving page for this event so, if some of you others cared to support their efforts in ANY amounby Brett T - Huntington's Disease Support Center
Liz, You can send him a PM through this site here: ...or you could shoot me a private message with your email and I could pass this along with a note saying you are looking to plan a HD event in TX and need help getting started. I know he would get right back to you asap. Anyway, either way I will pass on to him that we spoke and ask him to find you here. I am happy you have been tby Brett T - Huntington's Disease Support Center
Sara & Barb, I agree how amazing this whole thing is, thanks again for your post. Carell, you just made my day, and I look forward to meeting you both. -Brett T PS The group has set up a facebook page if any of you would like to join to learn more about what is planned or show your support - search under "Cape Cod HD Awareness Fundraise" once you login and you should findby Brett T - Huntington's Disease Support Center
Thanks all for your kind words of support. carell - I think it would be so wonderful if your family could make it. If there is anyway I could help out with that please let me know. The New England Development Director Virginia Goolkasian will be there to give a speech, and I hope this turns into an opportunity for you to meet many new friends. Send me a private message should you have anyby Brett T - Huntington's Disease Support Center
On July 24th from 4 - 9 pm there is going to be an event which will serve an all-you-can-eat Jamaican Grill Buffet, live music, tons of great raffle items, and an outstanding silent auction. It is set to take place at the Coonamessett Farm in Falmouth, MA. Click here for directions. Tickets are $25.00 PP and include your meal and entertainment. They can be purchased on-line here: Theby Brett T - Huntington's Disease Support Center
Thanks guys for thinking and writing to me. I really am fine. I will get my meds and will see the doc, it just will not always be the day I want to or should. I do have quite good insurance, but my ability to earn consistent pay is not there. This has everything to do with my health and nothing else. -Brett Tby Brett T - Huntington's Disease Support Center
Brent, I would agree with Lavonne here too. Although depression, itself was the overriding symptom that caused me to seek out a prescription - I did speak with my doctor about these concerns as well, and was given the all in one pill as suggested above. But I think it takes some work to find the right one for you, though - at least it did for me and I'm still not sure I have found it yet.by Brett T - Huntington's Disease Support Center
I have asked the folks running a trial I am in, in Boston ( Charlestown ) to look into it, and will share with you, Lavonne & co. what they say. -Brett Tby Brett T - Huntington's Disease Support Center