I know some people in ME working very hard at this, Steve. Keep your fingers crossed for them. Brett Tby Brett T - Huntington's Disease Support Center
Charlotte let me know their new web site is up. Please takes a look, and Steve if you could add this to the lighthouse news they would be grateful. thanks, -Brettby Brett T - Huntington's Disease Support Center
Laura, no minus points for smoking as far as I can tell I am also very pleased you are trying to catch the fitness bug too. Stay with it and let's see if we can do better than Will and Sara. LadyC, I can not thank you enough for putting this up. Will, those bands are very cool, and if LadyC changes the scoring each week she may also save me from needing to buy that brain game you pointeby Brett T - Huntington's Disease Support Center
Will, Yes, I believe the scoring at the bottom is based on a weekly total so, you my friend are on pace to receive an A+ ( even playing under protest due to a debunked, European, H2O scoring system ) I think "they" think the amount of sleep ones needs varies now too. But thanks for responding and giving me a goal to try and beat . Brett T PS If you had a few extra drinby Brett T - Huntington's Disease Support Center
I'm thinkin' going forward each person who places a bad joke on this thread should donate 5 bucks to their ride.by Brett T - Huntington's Disease Support Center
So you are in then, Gordon? I am glad to hear this, but you may need to subtract 5 points for listening to the Vengaboys ( no, I don't even know who they are, but am a little afraid to find out ) -Brett T PS Ok there we have it Gordon & I are in so far....by Brett T - Huntington's Disease Support Center
I read and accepted this challenge on the HDA site and thought I would share it with you guys. My hope is a lot of the phds here will join me. To be honest I could use some motivation to improve my general health. Maybe this too could be an excuse for some of you who do not post much to do a little, I mean come on, I think we hear enough from our beloved caregivers here No, I am joking and seeby Brett T - Huntington's Disease Support Center
Thank you Nila I always like hearing from you. Buddybird be careful what you wish for. You never know in 2011 I could be showing you how to hit like Ted Williams. For now don't worry about hitting only one 1 out of 100, the best only hit 30 out of 100 -Brett Tby Brett T - Huntington's Disease Support Center
TJVFamily, I just wanted to say welcome, congratulations on your soon to be wedding day, and have a wonderful honeymoon! Brett Tby Brett T - Huntington's Disease Support Center
Debbie, you are the best. Where my head is now, from the time I left that building, is a completely different place. The sun is out here and my son has his 1st baseball practice of the new season. I am not coaching him this year ( for the 1st time ) but I will be going early with him and working out a little before hand, with just him. He is very excited to meet me there and so am I. ( It's tooby Brett T - Huntington's Disease Support Center
I have heard some good things here especially from you, Will. I have not played that game but have been doing things like it in an effort to stay sharp. I too allowed the crickets to play when asked to name as many words as I could that start with the letter f, you know the f word did not even come to mind ( however it did plenty while trying to find the place, before I arrived ) Anyway,by Brett T - Huntington's Disease Support Center
Thank you very much, rj for your thoughts. Most of the testing was verbal with different types of timed reading or reciting, and a lot of recall. There was some work on a computer too. It was strange to sit before a kid who just got out of college ( who was giving the test ) who had his whole life ahead of him. I made some small talk with him and he was telling about all the different plaby Brett T - Huntington's Disease Support Center
During this last week I have been put through two separate and unrelated cognitive test. One by my new doctor and one for researchers working for Mass General. ( The appointments just happen to line up this way ) Anyway, today I feel quite down as I did not do well in either one. The one is Boston was quite long and I really stunk that one up. I write to ask if others have found this pby Brett T - Huntington's Disease Support Center
Thanks Sara & Steve. I have been in touch they are very nice people who mostly stay in churches during these rides. I am hoping to help them out with about 4 night during their trip. If others could do the same I know they would be grateful. There is just two of them. If you think you or someone you know could put them up let me know and I will send you Charlotte's contact info ( she is inby Brett T - Huntington's Disease Support Center
"BTW, if you reside in any of these cities and would like to offer Marie and her team a place to rest their VERY weary feet please let her know. Thanks". Does she have an email address we could use to reach her? ( If you don't want to share it here could you PM it to me ). I may be able to help her find places to stay. Thanks, Brett Tby Brett T - Huntington's Disease Support Center
Thank you for letting us know, John, and again for the work you do. I will be praying Jennifer and her family. Brett Tby Brett T - Huntington's Disease Support Center
BJ, I am not sure if this will or could help now, but it was suggested to me by someone on the hunt-dis list to start keeping a journal of what I like and what I am going through. This way when I can not express these emotions other would have an idea where to start. I also see this being helpful in referencing it and asking someone, "you once felt this way does this still give you a haby Brett T - Huntington's Disease Support Center
Perhaps some do go from being less symptomatic or symptom free to having rapid onset and it becoming noticeable, but I can tell you this was not the case with me. I consider myself to have been symptomatic for period of 7 or 8 years, but long before even this I began experiencing difficulties. An example would be in 1997 when I worked for a finance company. Each morning I would log into our sby Brett T - Huntington's Disease Support Center
by Brett T - Huntington's Disease Support Center
by Brett T - Huntington's Disease Support Center
Thanks for sharing this Robi. BJ how many free throws do you think you could drain in the time it took me to read this? I will not ask, in the time it will take me to understand all of it. -Brett T PS if anyone is up for telling us caveman what this means I would not mind, either.by Brett T - Huntington's Disease Support Center
BJ, I hope you don't mind me sharing this, but you did a great job and had some great things to say and wanted to give the people here a chance to watch it too if they have not. I 1st got to see your uplifting message thanks to Matt. If others are reading this and have a couple minutes take look. Brett Tby Brett T - Huntington's Disease Support Center
Patricia, Thank you so much for all you work, and filling us in on your experience. Brett Tby Brett T - Huntington's Disease Support Center
Start here and find out what else is around you: Even if these are not close I would call ( there may be others ). Also, I would contact the place that tested you and see what they know. I am gald you are on here, and do not want to see you try and handle this on your own. Your new friend, Brett Tby Brett T - Huntington's Disease Support Center
Is there a local HD support group near you? You may find speaking to people there to be a great help. I can tell you some do not have much luck talking to friends about it, who do not really understand what HD is or what it means to have it. I am glad you have them at least right now. Brett Tby Brett T - Huntington's Disease Support Center
Welcome Angle_flirt_83, I am sorry to hear about your result, and hope you are doing alright with the news. I am also sorry to say I think there are many who are like you, in that they know, but others in their family do not, and do not want to. This places you in a tough spot. I hope you can find one or two people in your family you can talk with, and go from there, as to how to handle it.by Brett T - Huntington's Disease Support Center
I read this a while back, not sure if it helps or relates, but thought I would post it again. -Brett Tby Brett T - Huntington's Disease Support Center
Matt, I would like you to know the group putting it on in Boston is almost full. I am going to meet with them next week and may end up helping with a differant trial that needs more humans. I can not speak for other places, and do not mean to suggest others should not join up, but just wanted to report what I knew about it in my corner of the world. -Brett Tby Brett T - Huntington's Disease Support Center
Good work. I think it is great! -Brett Tby Brett T - Huntington's Disease Support Center
Hi LauraLu, I live in Mass and have HD too. Welcome. Brett Tby Brett T - Huntington's Disease Support Center