My husband was in late mid stages, when a series of falls, where he knocked his head, caused brain bleeds. He is now in a nursing home and not doing very well. We never expected it to change so rapidly. I don't wish this to happen to anyone! Please be super careful!by traveler - Huntington's Disease Support Center
I don't know about the brand of vehicle, but my husband found that getting into/out of a hip high vehicle was much easier. He would bang his head or get stuck in regular cars. We also looked for leather seats to make turning easier and a handle above the door (or at the door) to pull on when he got out. It also made his walker and wheelchair much easier to stow away/retrieve. We keep handi wiby traveler - Huntington's Disease Support Center
Just posted on the board, a response that I would echo here. Also check how long sick leave will carry him between when he would have to stop work and when SSI would kick in, if you are eligible for SSI. My phd had sick leave built up to carry him for months while the paperwork and waiting period passed, thankfully.by traveler - Huntington's Disease Support Center
My husband's extended family was in denial or not wanting to discuss what the problems were and/or if it could be inherited. They had an uncle in a nursing home, but not diagnosed. His grandfather "was going blind" so fell a lot, but he died early of a heart problem and was never in the later stages. His mom refused to be diagnosed until the symptoms were obvious. Once she was diaby traveler - Huntington's Disease Support Center
My husband, HD positive, as well as his mom(now deceased) and I were in the same situation as you are now. We also lived life to the fullest in the event that HD reared its ugly head. It eventually did. The years prior to testing were difficult for me as I was always watching for symptoms, although my phd seemed not to worry...it seemed to be a sort of denial. I did see subtle symptoms that wby traveler - Huntington's Disease Support Center
Hi, So glad you posted this but not glad you went thru this. My HD husband also went thru some of this. We thought the first episode was due to his heart valve problem. He passed out, fell, and hit his head, or vise versa (no one saw what actually happened first) and laid on the floor, turning gray for a few minutes before coming around. A year or more after his heart surgery he again had anby traveler - Huntington's Disease Support Center
My phd is now using a walker and a wheelchair, other times my arm. He falls constantly and the point came when he couldn't walk 6 feet without being overwhelmed by the distance. I always had the walker nearby and asked first. He realized he needed it. We use a transport wheelchair when out and about because the walker is incredibly slow and embarrassing for him. He also doesn't have the streby traveler - Huntington's Disease Support Center
I have been so fortunate that my phd has not had the psychiatric symptoms (yet?). He has had an occasional outburst when he becomes frustrated, but it is shortlived and quickly forgotten. His earliest symptoms were so subtle. A hesitation when he wanted to change direction in walking, more "fumble finger" accidents. More hesitation with things in general (driving got scary for passeby traveler - Huntington's Disease Support Center
Hi Milestone, I would recommend starting yoga, The benefits of core strengthening, balance building, as well as meditation, will serve you well as you get older. You may have 20 years before noticeable symptoms and you have much time to make your life what you want. There will probably be a treatment by then, so many advances are being made now. Breathe...by traveler - Huntington's Disease Support Center
No meds at all. Hasn't had any treatable symptoms. Avoiding med if at all possible.by traveler - Huntington's Disease Support Center
My Phd seemed to have what I would term as a total hallucination in the middle of the night this week. He seemed conscious, but in a totally different world (an hour long episode before I could get him to return to bed). He didn't recall it at all in the morning. He got angry at me for not comprehending him, but didn't get violent. I have read that hallucinations can be a part of HD, but haveby traveler - Huntington's Disease Support Center
cioall, I totally agree with you. Thanks for posting.by traveler - Huntington's Disease Support Center
I wonder if more research needs to be done on associated symptoms in HD people still living at home. His symptoms seem identical to my husband. We have been to doctors-- no relief with various tests/meds. He needs a urinal at night because he falls trying to get to the bathroom. Sometimes 10 times a night, every time he rolls around. Is the constant thought of urinating in my husband's headby traveler - Huntington's Disease Support Center
Hey M, I too was in a location that was very isolated. We had not lived there long, and I found that friends were not stopping by, medical facilities were far away, as well as other support. My husband wanted me with him 24/7 and if I wasn't home, he would try to look for me which caused other complications. One day I felt as if I was going to lose my mind, even though I loved the area. I paby traveler - Huntington's Disease Support Center