Peggy I'm a PHD who is also struggling with work. My father died from HD a few years ago. I decided to take the test to confirm my neurlogist suspicion of having HD. My work has taken travel away to simplify my job and now just do phone support. Used to do field service work. My workplace has been very supportive since I have let them know I have HD but having a tougher time doing my job. Meby marky S - Huntington's Disease Support Center
Hi Dusty - Just had to say how sorry I was to hear of your loss. Made me tear up a little hear at work. I'm a stage 1 PHD and have a border collie that has gotten me through some tough day's Like Aslana did for you. Perhaps the new dog can visit someone at the vets home like Aslana did. Shelties and collies seem happist when they are working to provide a service like Aslana did all her life foby marky S - Huntington's Disease Support Center
Hi JaniGirl, I'm early stage HD and recently started having problems with sinus drainage that causes me to wake up with a coughing fit serval times a night Never had this problem before. I stated doing a sinus rinses and using a steroid nasal spray that seems to help a little.by marky S - Huntington's Disease Support Center
I look at at as a quality of life issue. True they are working on different things for HD but I don't see anything major in my time frame. I watched my father go through the entire cycle of HD and promissed myself I would choose a time that I still had a little dignity left. This web site has been a great help for me seeing HD through so many different eyes and I have learned that you try to mby marky S - Huntington's Disease Support Center
I have problems most nigts with coughing fits that I never had before. Not sure it's HD related or sleep apnea. Have not been tested for the sleep apnea yet. Between my leg movments and my coughing fits getting a good nights sleep is sometimes a real challenge.by marky S - Huntington's Disease Support Center
Also taking Lexapro - 20mg for depression. Had issues after getting the postive test results. Seems to help. I'll give a update in a week or so as to any improvments I have with the Abilify.by marky S - Huntington's Disease Support Center
E-Gads - Had no idea Abilify was that much. I have a $75.00 co-pay/month which is alot for me but sounds that that is a small fraction. Been on 4mg for a week now and I seem to have a little improvment with my leg movements. I'll update my progress as time goes by. Good luck with finding a good neurologist that your wife likes. It is very important to have a good relationship with your Dr.by marky S - Huntington's Disease Support Center
Hi In the early stages of HD and am getting movements enough with my legs to the point where they are sometime sore. I showed my Neurologist a link to a HD drug list that showed Abilityfy works somewhat better than the Tetra(not sure of the rest) drug commoly used for Chorea. Anyone else taking Abilify for movements?by marky S - Huntington's Disease Support Center
Hi Wendy - I'm in the stages of HD and also seem to have movements worse in my legs to the point of they are sometimes sore. I have twitches in my hands and arms but not nearly as pronouced as my legs. Neuroligist has just started me on Abilify which has shown to help in one study with chorea . Also on a antidessprent Lexapro. Didn't handle finding out I had HD to well as my father had HD andby marky S - Huntington's Disease Support Center
Is anyone taking Abilify for movements. Found a link that said it worked better than Tetrabenazine with fewer side affects. I take Lexapro with good results for depression.by marky S - Huntington's Disease Support Center
I'm in a similar situation where I am currently working but everything gertting harder to do. Father had HD and I was tested positive a year ago. At first had a hard time dealing with the test and my neurolist put my on Lexaprowhich helps. I put off telling anyone at work that had HD until I had a bad day. I work in customer service and forwared a e-mail I shouldn't have. I decided at that timeby marky S - Huntington's Disease Support Center
Casey - I watched my mother have terible days with my HD father until he was put in a home. I have a 42 CAG and feel it's my duty to be sure I stop HD where I can by not having chidren. ( divorced with no kids thank god.) Feel it would be very unfair to put anyone through what my mother went through. I feel I'm doing my part to slow the spread of HD in my little way.by marky S - Huntington's Disease Support Center
Hi Barb, my neurologist wanted me to see a shrink (can't spell the correct title) I think to help build a network of people to help. Didn't click to well with him so I didn't a the follow up visits he wanted me to do. I found speding time on this site seems to do me more good than the so called expert. Can relate to so many stories on here and for me the information I have gotten from peaopleby marky S - Huntington's Disease Support Center
Since my Dad had HD and I had symtoms, my doctor ordered the blood test and had blood drawn same day. No counseling at all. Just a message on the phone 10 days later that the test was positive. Insurance even paid for the test. Needed anti depressent after hearing the news so some couseling bnefore might have helped. The test is just another blood test for the system now. Markby marky S - Huntington's Disease Support Center
Since my Dad had HD and I had symtoms, my doctor ordered the blood test and had blood drawn same day. No counseling at all. Just a message on the phone 10 days later that the test was positive. Insurance even paid for the test. Needed anti depressent after hearing the news so some couseling bnefore might have helped. The test is just another blood test for the system now. Markby marky S - Huntington's Disease Support Center
Hi Mellissa, I have a CAG repeat of 42 and also in stage one. Right now I'm having more difficulty at work at not being able to do what I used to which was field service work. Slowly losing what I used to call my carrer in itself causing depression which I take Lexapro and Abilify for. My movements are borderline for meds yet. Memory issues are also a real problem. My father passed from HD aby marky S - Huntington's Disease Support Center
Thanks very much the Links where nicely done. Intend to watch all the videos poseted. Will the links be active for a while? Markby marky S - Huntington's Disease Support Center
Hi all My name is Mark age 53 with a CAG of 42. Father died of HD when he was 75 but seemed to linger as a vegtable the last 7 years or so Currently able to work but having more issues with motor skills depression and memory. Have 1 sister at risk. 2 Uncles that had HD and are gone. Very thankful to those of you that keep this site going! Markby marky S - Huntington's Disease Support Center
Hi blh, I'm in a simalar situation where I was tested positive for HD while trying to work. I had memory issue and overall a harder time focusing on my work. I work in customer field service and my employer has been pretty good too. They agreed to take away my travel duties as I was having anxciety issues while flying and meeting new customers Still doing phone support and having a more diffiby marky S - Huntington's Disease Support Center
I'm early stage HD GAG 42 and a little older (53) than Carla's kids but would agree with Carla for the most part. I am having cognitive problems.Have to re-do alot of things I do here at work e-mails and such. Memory has really gotten bad and. When I was first tested positive I had to go on med's for depresion. Still taking them. Also have some movments mostley in my legs which seems worse aby marky S - Huntington's Disease Support Center
Mikee - Words so true. Trying to go as long as I can. Job is somewhat techical in Customer Support and frustrating forgeting customer names and such. Try to leave reminder notes around to help me through the day. As long as I can remember who I am and how to get to work I guess I'll keep plugging away. Carla, Read some of your post. Nice to get the Caregivers point of view from you andby marky S - Huntington's Disease Support Center
Thanks very much Will and mikee. Will, I agree I need to last as long as I can with my job. Thanks very much for the link. Trying to gather as much info as I can. Look forward to spending as much time here as I can.by marky S - Huntington's Disease Support Center
Hi all, Been watching for a while and wanted to intoduce myself. I have been tested positive with a CAG of 42. I seem to be in stage 1 of HD My father had HD and I watch the ugly stages from beginning to his end a few years ago. I was having problems with memory and some minor movments and went to my famely doctor. He was also my fathers doctor so was suggested I be tested. As all of you knby marky S - Huntington's Disease Support Center