Kirsten...HI welcome to this site. I am 53 and my HD hubby is almost 55, he was diagnosed 3 years ago almost but the docs think he has shown symptoms for about 10 years now. We have been married now 13 years so to look back I have only known the HD person I married. I want to tell you RUN... run as fast as you can but on the other hand I was able to run and because I love him and wouldn't wby Marlyssa - Huntington's Disease Support Center
Chicago, I also am going through torment with my HD hubby, he is so mean and speaks so evil to me but then when his adult kids are around he is so nice and positive to them. I hurt all the time and have to fight with his kids that what their dad says about me (he talks behind my back), is not true, he is now making them think I am moving out so all of them are ganging up on me to make mby Marlyssa - Huntington's Disease Support Center
I posted a couple weeks ago and had no responce, I am really going through HELL with my HD hubby and I could use some help,by Marlyssa - Huntington's Disease Support Center
care giver...you are something to be doing this for 20 years, I think I have been doing it for about 10 years but only diagnosed 3 years ago. My HD hubby is a pill, angry ALL THE TIME, hard to get along with and now his sons are moving to the area and are causing trouble. The don't want to know or learn about HD they just want to visit with dad, the only problem with that is dad tells sby Marlyssa - Huntington's Disease Support Center
rj I am sorry for your loss, what an ordeal I am sure you and him went through. Bless you rjby Marlyssa - Huntington's Disease Support Center
I have not written in here in a while because there has been too much going on...from my HD hubby catching the bathroom on fire by dropping his smoke onto his oxygen tube, to one of his adult sons (wife and 2 - 3 yr olds) moving into my house. My step son doesn't understand HD and that makes it difficult for me, he just wants his dad to be happy, that is all well and good and I am proud of him cby Marlyssa - Huntington's Disease Support Center
Welcome my friend...this life is a hard road and if she has HD it will only be harder, read my stuff and you will see what I and others are talking about "What I deal with daily" I had just married my man and on the honeymoon everything changed, 12 years later we found out he had HD. I so wanted to divorce the mean person he became but like was said before would you divorce if she hby Marlyssa - Huntington's Disease Support Center
I waited a few weeks to share this with everyone here because I was so angry I did not know how to say what I felt with out sounding like a mad woman. My HD hubby was without some of his meds because his family doc I think forgot to send for them so without his meds he became a zombie, then his xenazine (spelling?) was 3 days late so not just a zombie but a lifeless zombie. He would need to uby Marlyssa - Huntington's Disease Support Center
J...my HD hubby mumbles to himself, sometimes he mumbles just loud enough so that I can hear him telling me what kind of a (^%$$%^9038370478286657^%%$&%^&& I am. I hear him mumbling at the sink or in the refrigerator or on the toilet. I don't know if it is HD related or not. I talk to myself out loud too but the way he does it is much different. Marlyssaby Marlyssa - Huntington's Disease Support Center
Oh shit it has been a long week, I had to go to another town 70 miles away to have a procedure done and I had to stay for 2 days in a hotel by myself, wow you would think I would like that. Well anyone my age knows you have to drink a gallon of puke liquid and sit on the toilet for hours then go to a strange place get put to sleep and wake up groggy and in some discomfort from this procedure..by Marlyssa - Huntington's Disease Support Center
WOW it has been almost a year since I have been on this forum, so many things have changed with my husbands HD, I have aged about 5 years in this one year, I hate this HD, no one tells you the reality of the disease ie: doctors, but as soon as you are living with it you learn how hush doctors really are. Thanks to this forum and people I have met on fb I have learned so much about what I am liviby Marlyssa - Huntington's Disease Support Center
I have to tell you that according to my HD husband I have been and am now still having an affair, even though I do not go anyplace except the grocery store and I am only gone for about 1 hour and come back with groceries. If I watch a program on TV I am looking lustfull at a man on the program...and it goes on and on... This is HD, and as his doctor told me "get tough skinned"by Marlyssa - Huntington's Disease Support Center
Verbal abuse? that is what I think this disease should be called!! I am bitter right now, so much Twilight zone moments, so many "caught off guard" moments, everytime I see him I just don't want to look in his direction or make eye contact. Mornings are liveable, afternoons are tough, evenings are tourment, late nights early mornings 1 or 2 am he is real nice. What this has done toby Marlyssa - Huntington's Disease Support Center
Jennie, I hear ya girl !!!!! I don't get the silent treatment anymore but when I did it lasted for many years, sometimes 3 or 4 times a week,before we even knew about HD. Now He is into the yelling in public at me. I too feel I'm not being noticed, everything has to do with him, if I bring something up about me he changes it to him. I truly hate HD!! I am a caregiver/wife, I live iby Marlyssa - Huntington's Disease Support Center
WOW Sky...what I am dealing with, with my hubby having HD I wouldn't wish on my worst enemy. I want to say run as fast as you can, get away because if something so important he won't deal with now, what happens if you have another important thing come up?, will he check in or out. No this is life or death for him and or children you two could have. This is NOT A GAME!! If you want a relatiby Marlyssa - Huntington's Disease Support Center
I think one of the hardest things I go through is I have to hide or sneak to be open with my friends about just everyday life, I do not do anything wrong, I don't hurt him or our relationship in any way but he can take the smallest thing and enlarge it, then blow it out of context and then accuse me of doing what he has made up. Today was an ok day, I just kept myself to myself, I am startingby Marlyssa - Huntington's Disease Support Center
I have not been on here since Nov 5th, last month...thought things were going ok then shit hit the fan this last 2 weeks. The only time we get along is when he is in a depression (weird right?) He is now a awful person again, if I have to leave the house for what ever the reason it is like I am being timed, why did you take so long? who were you with? I bet you were doing...bla bla bla. If I dby Marlyssa - Huntington's Disease Support Center
I have not been on here since Nov 5th, last month...thought things were going ok then shit hit the fan this last 2 weeks. The only time we get along is when he is in a depression (weird right?) He is now a awful person again, if I have to leave the house for what ever the reason it is like I am being timed, why did you take so long? who were you with? I bet you were doing...bla bla bla. If I dby Marlyssa - Huntington's Disease Support Center
I understand it like this...God is there to hold you when things go bad, to be that wonderful shoulder when life on this earth is hard to deal with. God didn't give us HD or any other problems but he will give us strength to endure. I have a husband with HD and he is a very mean person and has been for many years, if I didn't have the strength I have from God I don't know how I could get throuby Marlyssa - Huntington's Disease Support Center
Fevre: I have the same question you have, I did get in touch with Dr. Ladue he called me back but I don't remember what we talked about because he called me while my hubby was beside me and I won't talk openly when he is in ear shot. I have really considered moving to the Memphis area, I have 2 adult children there so I figured I could get some help from them and saw someplace that there is a bby Marlyssa - Huntington's Disease Support Center
So so sorry for your loss, great that you have the children. I want to say about the same things everyone else has said to you. Your hubby was very blessed to have a wife like you and even more blessed to leave his children in the capable, loving hands of a woman like you.by Marlyssa - Huntington's Disease Support Center
Wow Arnold, just reading that you and your parents have not told your brother kind of makes me mad!!! He is an adult, what are you thinking? Try this...If you knew there was a needle on your couch and your brother was about to sit right there...knowing he may and may not sit on it...would you warn him??? The chance he could be at risk for HD is not something to play with, TELL HIM Give him thby Marlyssa - Huntington's Disease Support Center
It has only been s few days since I have written on this forum, as of today I can't cry enough, I am so frustrated with this disease!!! Today I actually was able to talk person to person (on the phone) to someone who has dealt directly with HD, we prob talked for at least an hour. She told me something that I just didn't get anyplace else. I have been freeking out because I could not get my HDby Marlyssa - Huntington's Disease Support Center
That is a great tat, I took a pic of it, hope that is o.k. I want to put it on my fb page, my hubby suffers from HD and I have shared a lot with my fb friends.by Marlyssa - Huntington's Disease Support Center
WOW, I can't believe I am still thinking and breathing today. Yesterday was a very bad day, we fought all day until I threw a fit and kicked a empty plant pot and slammed a door. I just got to the point that I couldn't take it anymore. He is so manipulative and a rebel that we can't even fight like a normal couple, I say it is blue and he says it is not even there, what? all our conversationby Marlyssa - Huntington's Disease Support Center
Jennie yes please listen to Marsha, she said it very well. Let me tell you tho that I met my HD hubby 13 years ago and got married 9 months after we met, 12 years later we find he has HD. I have lived in hell for 12 years, tried to kill myself one time within the first year of the marriage because he was able to continually hurt me so deeply that I couldn't think anymore. He was a jerk, anby Marlyssa - Huntington's Disease Support Center
This HD thing is so awful !!!! Today I had to drive 70 miles to a dentist to get a root canal, had to take my HD hubby with me, the root canal was easy compared to taking him to Home Depot after. He uses the elec cart so he doean't fall but this time he kept crashing into things, if I tried to help him he would get angry at me and say mean things to me as if I had done something that caused hiby Marlyssa - Huntington's Disease Support Center
Nila, WOW I feel ya girl !!!!! Today was a bad day for me as well, had to drive 70 miles to my dentist to have a root canal, my HD hubby had to go with me. The root canal was good compared to what happened after. We needed to go to Home Depot to get just one thing, he uses one of those elec carts so he does not get tired and falls, he kept crashing into things and I was getting very frustratby Marlyssa - Huntington's Disease Support Center
I hope you get life ins before you do the testing, you know once you are tested and if it comes out positive you can't get life ins.by Marlyssa - Huntington's Disease Support Center
Thank you for telling me about his timeline, we are not at that point yet and I hope it doesn't go that direction(but ya never know). My hubby has been diagnosed now since August this year but looking back maybe 8 to 10 years. My fears are hard to ignore, reading what all you caregivers go through I hope and pray I can be a good caregiver.by Marlyssa - Huntington's Disease Support Center