hope and spouse i feel the exact same way. i wish i left a long time ago. this disease destroys so much not just the person that inherited but the family too. i have such guilt i destroy my girls lives at age 21 and 14 and my own life in 22 years of marriage i just keep asking why i didnt leave a long time ago. im not in love w him its been years i love him but just as a person who inherited thisby jendoc6262 - Huntington's Disease Support Center
ltd he will have to have his doctors and counselors send in all appt notes an answer questions .his std should last a year i think and about 8 months in he will recieve paperwork on ltd start filling out paper right away so there is no lasp in pay between std and ltd also write down the date time and name of person you talk to any questions you can email me jendoc6by jendoc6262 - Huntington's Disease Support Center
i would move back to mississiipi asap. your husband, im so sorry to say, is going to be angry either way at least this way when he gets angry and starts yelling at you , you can run to a family or friends house for a minute im sorry at this point you deserve a couple minutes of peace at a friends houes who cares if you force him just do it you need to stay strong your husband will rant and rave wby jendoc6262 - Huntington's Disease Support Center
marlyssa your post is exactly what i wated to say but i can never put it in words . its amazzing my story is identical to yours its weird i hate that anyone has to go through life like this but its comforting reading someone else is and we can share things that people seem to understand but cant unless they live itby jendoc6262 - Huntington's Disease Support Center
i have the same problem i want to become guardian but the expense i just cant afford at this time. it is so frustrating he really needs a nursing home or care at home but its always a dead end because he always refuses services. we rearranged the bedrooms about a year ago and he nows lives in the basement which is redone nicely with a full bathroom. he is constantly telling me i abandoned him butby jendoc6262 - Huntington's Disease Support Center
im sorr my situation is pretty much the same but my husband is home . maybe if you speak with your local police department about his driving they could have a suggestion so maybe he would loose his license and then he would have to stay with you. im sorry this is all i thought of at this time. if the doctors not able to see him when he returns i would be furious tell them its an emergency make soby jendoc6262 - Huntington's Disease Support Center
just like my situation too!!!!!!!!! concerned post says it all esp the last line. ggrace mood swings were my husbands first signs and only signs for awhile than his way of thinking, movements walking slowy all changed over the years .. it is a long hard life to be married to a person with hd on the entire family esp w control issues and anger issues as you stated. it wont get easier meds will helby jendoc6262 - Huntington's Disease Support Center
hey marlyssa dealing with HD is so hard on the caregiver but to be without family is many times worst . personally if he agrees to mover i would, only because in my situation my husband( diagnosed in 2005 and i think started in 2001) will agree than change his mind and then the yelling would begin and would be all my fault and the language so bad . i completely unsterstand about the meaness . iby jendoc6262 - Huntington's Disease Support Center
marsha your post was so helpful . i just wanted to say thank you . it just amazes me everyday how the brain works your just so clear you make it easy for me to understand why my husband can book a trip but cant understand when i told him to put his ticket in the pencil case because when i gave it to him first i told him it was for his camera and money .. he never did put the ticket in it he carriby jendoc6262 - Huntington's Disease Support Center
im so glad you called now theres a little relief in knowing hes thinking about testing or seeing a doctor. hes prob only getting angry at you because your his wife and he knows what might happen if he has hd. there is no way your thinking about yourself in this situation he is just saying that to make you feel bad. he knows he has to talk with you about it but it scares him most likely because thby jendoc6262 - Huntington's Disease Support Center
im so glad you called now theres a little relief in knowing hes thinking about testing or seeing a doctor. hes prob only getting angry at you because your his wife and he knows what might happen if he has hd. there is no way your thinking about yourself in this situation he is just saying that to make you feel bad. he knows he has to talk with you about it but it scares him most likely because thby jendoc6262 - Huntington's Disease Support Center
i would def talk to his mom you dont have to tell him just tell the mom you dont want him to know . i have to tell little white lies all the time so i dont upset my husband with hd . his mother had hd and i would love to be able to talk to his dad about how he did it but he died 3 years after his wife from cancer . you have to have someone to talk to who can understand what your going through okby jendoc6262 - Huntington's Disease Support Center
fhcutie546 i want to thank you for posting your feelings . i have 2 daughters 14 and 21 neither really talk about HD but i have more of an undnerstanding how they feel thanks to you. you do write very well. my husband has hd hes 47 and diagnosed when he was 39 but i saw symptoms when he was prob 35 which means most of my childsrens life my husband had hd and his symptoms are hard hes verbally abuby jendoc6262 - Huntington's Disease Support Center
my husbands family his grandmother was diagnosed wrong was sent to a mental hospital we now kmow it was HD his mother and brother died from compicatiions of HD his sister has HD and in a NH with dont have any contact with her..there are 6 grandchildren all under age of 21 to 14 none have been tested yet. my husband was diagnosed in 2005 but i know symptoms started in 2001. kjuni you post was worby jendoc6262 - Huntington's Disease Support Center
danne our lives are so so similar. my husband is refusing to go to a nursing home. the last time he was in hospital the attending doctor social worker and phy rehab drs wanted him to go to nh but he said no . back home he is living in lower level of house we redone and he hates it . i would have your husband agree to power of attorney so u are able to make theses decisions . i am looking into guby jendoc6262 - Huntington's Disease Support Center
well todays a new today im stil at parents with the girls. after another lovely week of shawn divorcing me tell me im worthless i abandoned him he agreed to increas his meds see a therapist and stop divorce preceedings yea for me he apologize also which is hugh 2 times in 20 years. im not ready to go back because of the girls an i need to get myself together to help him . i was very positive on tby jendoc6262 - Huntington's Disease Support Center
thanks everyone for all the support . i am going to a chapter office tomorrow . im just having a hard time what to do next .its so hard to keep everyone happy but my girls come first thanks again jenby jendoc6262 - Huntington's Disease Support Center
thank you everybody for their advice . if it was just me involved id stay i can handle it but its the children they need to get away and get help . hes now telling me i abandond him when he told me to leave. it is the hd causing him to treat us this way 1 day divorce next day marriage couns and tahn divorce i have to go get my daughters stuff because my husband is locking us outby jendoc6262 - Huntington's Disease Support Center
thank you everybody and i will look into a local chapter i also live near my parents 2 miles so i can stay with them . i live in delaware county pa his parents have past away he has no one my dad said not to make any big decisions right now stay with them but i cant go back im going to call a lawyer my work has services i can go through but im scared cause i know he will apologize and act like evby jendoc6262 - Huntington's Disease Support Center
i just told my daughter her dad has hd. she is 19. the situation isnt good my husband wants a divorce after 20 years of marriage . he was diagnosed 4 years ago symptoms were much longer. i cant do this anymore its not healthy for my children but he cant be by himself he thinks he can. can i get him into a nursing home without his consent . im lost my daughter need to talk to someone and i dont knby jendoc6262 - Huntington's Disease Support Center
my husband phd kicked me out of our bedroom 4 years ago then wanted me back recently. i had a hard time with it, but did some nights. i slept in the other room due to work he would loose it lets just say i still didnt sleep i should of stayed in the room. now hes selling our house and divorcing me (like he divorces me every month)because i havent slep in the same room with him this is after 20 yeby jendoc6262 - Huntington's Disease Support Center
oh judy my life sounds like yours . my husband hd cant understand why i go to any of my 2 daughters softball games or anything that they are a part of and forget my family functions i pick and choose what to attend. now after 20 years of marriage my husband want to divorce me sell the house and take every penny i have in the divorce which is nothing .every month he threatens divorce this is thby jendoc6262 - Huntington's Disease Support Center
when did start taking these supplements do you wait till your in your 40 or when your 18 thanksby jendoc6262 - Huntington's Disease Support Center
patty thank you for you post it made me cry. the post to me was beautiful. my husban has hd. i have 2 girls and i feel guilty alot knowing they might inherited the gene and my girls dont know about hd yet. i just hope they are as STRONG as you are when we tell them about hdby jendoc6262 - Huntington's Disease Support Center
trey, ill keep you and your family in my prayers.by jendoc6262 - Huntington's Disease Support Center
ill keep heavenlie in my prayers and my daughters middle name is Rae for my husbands mothers maiden nameby jendoc6262 - Huntington's Disease Support Center
oh my so many of these post sound just like my husband. Every other day he is divorcing me i say let me get the phone book (JK). its so harddddddddddddd. each day you walk on eggshells. today was a day they all cracked all because the dog threw up.The verbal abuse its just so tiring you know its the disease but some days are horrible and you can hate the person too even though you know its HD. Myby jendoc6262 - Huntington's Disease Support Center
My husband has HD diagnosed 2 years ago and is on SS. He has shown signs of HD for 10 years.verbably abusive not all the time but enough of the time and you want to ignore it but its so hardso i yell back but its like fighting with the wall. Im never ever right its so frustrating just like Marsha was saying its amazing what she was saying i thought she was writing about my husband.My husband wontby jendoc6262 - Huntington's Disease Support Center