Huntington Disease Lighthouse Families

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Hello

Posted by suezq 
Hello
May 31, 2008 06:54AM
Hello Everyone!!
I haven't been on here very much lately....sometimes life just gets in the way.
Some of you may remember me,,,, Ray is my brother and I take care of him.He is doing fine except for the few falls he has had recently.
Ray's 1st granddaughter was born on March 29th,she weighed 1 pound and 14 ozes,she'll be in the hospital until July.Her name is Heavenlie Rae.Not fond of the name but who am I to judge.Ray went to see her once and he just said it was too heart breaking to go back. She now weighs 4 pounds.
I hope all of you are doing o.k. and I'll try to be on here more.I have missed you guys!!!!!!!!!!!!!

Sue
Re: Hello
May 31, 2008 07:58AM
So glad to hear Heavenlie is making such great progress, and I hope it continues. Thanks for the update! Pat
Re: Hello
May 31, 2008 06:02PM
Today is Ray's b-day. He wanted a movie,so I got him one and I got him a cake.He's 47!! Geez,that sounds so old!!smiling smiley



Sue
Re: Hello
June 01, 2008 11:20AM
Thanks for the update. I'm glad to hear that Heavenlie is growing well.
Re: Hello
June 03, 2008 10:23PM
ill keep heavenlie in my prayers and my daughters middle name is Rae for my husbands mothers maiden name
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