Hi Jon. You've come to the right place. This site and its support was so valuable when HD entered our lives 5 years ago. My husband has HD, and I have 2 kids at risk. You've got plenty of friends here!! Do your wife and monther in law both live with you and the 4 kids. My that must be busy. I needed to cut down to part time work when my husband was no longer able to help around the houseby patty c - Huntington's Disease Support Center
the new format looks great Steve and Marsha, and anyone else who had input. I like the color scheme, it is very easy on the eyes. The font is different too, I think. I like it, altogether, I like it!! Patty cby patty c - Huntington's Disease Support Center
Still here. I find my logging comes and goes in waves. I was hoping4acure, but my email had changed.... so there is one you can remove. Pattyby patty c - Huntington's Disease Support Center
You can ask her physician to order home health care for the in home assessment. nursing and therapy services should be covered under her health insurance (Medicare or otherwise) for short term needs in the home which are deemed to be medically necessary. Fall prevention and education as well as strengthening for your mom would both qualify. The in home therapist would meet with your parents, aby patty c - Huntington's Disease Support Center
If he has his HD diagnosis, documentation for SSDI should not be a problem. The HDSA has been very instrumental in getting this passed. States vary greatly in their administration of Medicaid, but it can't hurt to apply.by patty c - Huntington's Disease Support Center
Both HD and JHD have been assigned compassionate allowance this year, which means the Ssdi should be approved with proper physician documentation. In most states, he'll need to either spend down to $2000, or move his assets into a special needs trust to apply and qualify for Medicaid. A consult with a special needs or senior care attorney would be money well spent. Good luck with meeting his nby patty c - Huntington's Disease Support Center
Danne. So sorry you are going through this. I've been there and it was a very rough ride for a few years. I also had to endure outbursts of aggression and battery from my husband. This was before his diagnosis, so we did not know what was up. The police was my best defense, any time 911 was called, I was able to get a restraining order from him. If you feel threatened, you can have him barrby patty c - Huntington's Disease Support Center