I also have extreme tiredness and I have for many years. Ive had hd about ten years. for me its like heavyness and tiredness in my head. it does not matter how much i sleep i'm still tired. to humor the dr I tried an antidepressent but that didnt help. even after walking I dont feel that much better. Lauraby lauraandpete - Huntington's Disease Support Center
SSDI is a federal program not a state program so it doesn’t matter what state you live in. If you become disabled and are no longer able to work you would apply to Social Security for disability benefits which include a benefit payment and Medicare health insurance which you pay a monthly premium for. The premium is deducted from the monthly benefit. Long Term disability Insurance is a policby lauraandpete - Huntington's Disease Support Center
Turkey wine dressing (stuffing) wine cranberry sauce wine mashed potatoes wine gravy wine corn wine Rye bread (home made) wine pumpkin, pecan and apple pies Keeping it simple. It seems like I am missing something though? Something green maybe or wine? Everyone! Pete & Lauraby lauraandpete - Huntington's Disease Support Center
That’s great! What a relief. Is she ok?by lauraandpete - Huntington's Disease Support Center
Laura gave up regular cigarettes maybe a year or so ago for e cigs. They are a blessing for us both. She doesn’t have to go outside to smoke and I don’t have to worry about flame. Nothing sucks more than having to go outdoors in the middle of winter at the crack of dawn and torch up. And. . . nothing sucks more than wondering if and when I will ever need the services of the local fire departby lauraandpete - Huntington's Disease Support Center
Wow! That’s something! I haven't heard of anything so extreme but I am sure it happens and we just haven't heard about it. Pete BTW - I'm sure I stink up the place too but I only get called out on occasionally.by lauraandpete - Huntington's Disease Support Center
I got tested for the exact reasons you listed. Body jerking and anxiety I was sure that I had HD and I did. I wanted to be sure of what benefits I would qualify for at work and through Social Security. Lauraby lauraandpete - Huntington's Disease Support Center
thanks guys. I would like more time to think about it and get a second opinion .I was just scared of all the blood this month. they had to give me high dose progesterone to stop it. amazingly my blood count came back almost normal.by lauraandpete - Huntington's Disease Support Center
Laura’s Grandfather had HD but it wasn’t a 100% diagnosis. Her grandmother took him to a Dr who told them that it looks like HD. When he died Laura’s Mom and aunt insisted on an autopsy to find out once and for all about HD. This divided the family with Laura’s Mom & Aunt wanting the autopsy and finding out about HD and Laura’s two uncles who did not want anything to do with an autoby lauraandpete - Huntington's Disease Support Center
thanks for the positive info. I am 45 and i just wish menapause would get here already. when did you get yours? Ive been bleeding for a full month so thats why were worried. I never want to go through this bleeding again. and i HAVE TO GO HAVE BLOOD DRAWN TODAY TO CHECK MY COUNTS AND i HATE THAT. if I can just figure out a why to make them go down and lighten my period that would be great. mayby lauraandpete - Huntington's Disease Support Center
Laura went to the obgyn for a heavy period and they found uterine fibroids which I guess are pretty common. The Dr is recommending a hysterectomy and we are concerned about the possible risks involved with minor surgeries and HD. We are aware of the anesthesia warning for the drug Isoflurane (thanks Marsha ) for HD sufferers. Any Phd’s out there that had to have surgery? Any out of the ordinarby lauraandpete - Huntington's Disease Support Center
You are grieving. There I said it and I think it is normal given the circumstances. I have been grieving for a while & I try to keep it to myself but that’s just me. I think grief comes in waves and mourning is temporary. Peteby lauraandpete - Huntington's Disease Support Center
OK. Let's give it a try. . . . ? Seems to work in the preview screen. How about now. . . . ? Yup. Still works. How about two or three or more at a time. . . . ?? ??? ???? ????? LOLby lauraandpete - Huntington's Disease Support Center
Sorry for your loss Mango. Laura & Peteby lauraandpete - Huntington's Disease Support Center
I take about 1 softgel a day. and green tea. and I just started trehulose. Lauraby lauraandpete - Huntington's Disease Support Center
I have very little and it used to be worse. i think fish oil helps with mine. I have hd about 10 years. I think people think my hd isnt advanced because they dont see it. and that includes docters. I have never taken medicine for it, Lauraby lauraandpete - Huntington's Disease Support Center
We ordered from on Oct 8 and it came today (Oct. 12). They even threw in some raw sugar packets (promo). Laura is going to give it a try. Maybe a teaspoon in the morning coffee and then again with tea in the afternoon. We ordered three lbs. for $21.99 no freight or tax. Its refered to as Neurocoat on the site. Pby lauraandpete - Huntington's Disease Support Center
I like fish but i only eat it once a week. thats why I like to take the fish oil. I tried the oil but it was a little gross so now I take capsulesby lauraandpete - Huntington's Disease Support Center
dusty, do you take fish oil? it really helps with my movements. and my moms were really bad and fish oil calmed hers down. luckily I dont have any pain good luck Lauraby lauraandpete - Huntington's Disease Support Center
fish oil helps mine i used to feel them alot now bareley ever. I would also suspect the meds. Lauraby lauraandpete - Huntington's Disease Support Center
Welcome aboard May. Laura & Peteby lauraandpete - Huntington's Disease Support Center
today is my birthday! my daughter gave me a beautiful book and card! pete is bringing home my favorite lunch and cooking dinner later. instead of cake i'm having apple pie.by lauraandpete - Huntington's Disease Support Center
Here is the link to the "Basic Research" page right here on HD Lighthouse Family. When you get there just type in "expansion" in the search box at the top/right of the page and several articles are available. Peteby lauraandpete - Huntington's Disease Support Center
Hi BG Lady. Welcome to the forum.by lauraandpete - Huntington's Disease Support Center
Hey Bates. Welcome to the forum.by lauraandpete - Huntington's Disease Support Center
Sorry for your loss Steve. Our condolences. Pete & Lauraby lauraandpete - Huntington's Disease Support Center
Hey Char81 & hbrooks. Welcome to the forum. Pete & Lauraby lauraandpete - Huntington's Disease Support Center
how does he and his now wife feel about getting tested? he knows about your mom and you right? it would be hard to say for sure until he is tested! Good luck! Lauraby lauraandpete - Huntington's Disease Support Center
Hey Cowcard. Love the screen name. Do a search for Smiling Sara. She went through the process over the past year and always had good advice regarding testing. I just checked and she hasn't posted here in several months. Peteby lauraandpete - Huntington's Disease Support Center