Will, will you and your friend be at the alumni dinner? Both my husband and I will be at that event as well as at the start and finish. (He's responsible for providing all the marines that work the marathon. I'm there for PR!).by mrspippens - Huntington's Disease Support Center
Will, will you and your friend be at the alumni dinner? Both my husband and I will be at that event as well as at the start and finish. (He's responsible for providing all the marines that work the marathon. I'm there for PR!).by mrspippens - Huntington's Disease Support Center
I haven't posted here in several years but I'm back. Hi everyone! Will, are you by any chance running the USMC marathon at the end of the month? I'm going to be volunteering there with my husband.by mrspippens - Huntington's Disease Support Center
Thinking of you and your boys-Loriby mrspippens - Huntington's Disease Support Center
Barb, I am so sorry, My thoughts and prayers are with you. Loriby mrspippens - Huntington's Disease Support Center
I logged on too early, darn I should have kept checking, I was home last night! I'll catch you next week.by mrspippens - Huntington's Disease Support Center
welcome to the forum audrey!by mrspippens - Huntington's Disease Support Center
This has been a hard thread to read. It makes me sad. I love my two children and could never imagine life without them, they are my love, my life, my joy. However if I knew HD was in the family before I had them I would have definitely tested. What I would have done with that positive result? Would of, should of, could of. Its too hard to look back in hindsite when I have my two beautiful, buby mrspippens - Huntington's Disease Support Center
Hi Sara- I'm so sorry for your results, I was really hoping you would test negative. This is a great support site. I also have been following Wills regimen and have no physical symptoms at age 47/CAG 40. I too, rely very heavily on my faith, there is comfort in knowing God is in charge. Loriby mrspippens - Huntington's Disease Support Center
Mine was the 9th!by mrspippens - Huntington's Disease Support Center
Barb, my birthday was last week, we Leo's need to stick together. hope your day was the best! Loriby mrspippens - Huntington's Disease Support Center
Happy B-day Will! Didn't you have a big race coming up this month? How did you do?by mrspippens - Huntington's Disease Support Center
Yay, another happy ending!by mrspippens - Huntington's Disease Support Center
sorry for the late reply-i was out of town hiking in yosemite (which was awesome by the way....) Anyway to answer your questions, it is my mother who has HD, and is still alive at age 79 and in a nursing home. As far as the "softer" symptoms of HD, that is when you experience the cognitive and behavioral symptoms before the onset of the physical ones. For me, I was experiencing some dby mrspippens - Huntington's Disease Support Center
Hi Paula,I'm 47 too and tested positive a few years ago with a CAG of 40. I have no physical symptoms yet, just a few of the "softer" symptoms which I am being treated for successfully with medication. My two children, 17 qnd 11, are at risk and that is the worse part. I have never once regretted testing. Good luck and we will be praying for a negative result. Loriby mrspippens - Huntington's Disease Support Center
The chat was really nice-thank-you everyone! Loriby mrspippens - Huntington's Disease Support Center
O.K. I'll put in on the calendar!by mrspippens - Huntington's Disease Support Center
I am sorry this happened. I would insist on an implant not the partial.by mrspippens - Huntington's Disease Support Center
Keep on runnin'!by mrspippens - Huntington's Disease Support Center
Happy Birthday!by mrspippens - Huntington's Disease Support Center
I am age 47, CAG 40, no physical symptoms I love the outdoors so I stay active by running, hiking, mountain biking, and riding horses.by mrspippens - Huntington's Disease Support Center
Grandfather-unknown Mom-CAG39 Me-CAG 40 sister1-CAG39 sister2-CAG40 sister3-CAG41 Our family struck the genetic lotto;all siblings have gene. 12 neices/nephews at risk including my 2 children 3 grandchildren at riskby mrspippens - Huntington's Disease Support Center
How do you go about getting a representative to sponsor this? (please be detailed in your response, I can easily follow directions but have a hard time coming up with them!)by mrspippens - Huntington's Disease Support Center
You know this is a place you can come for support and encouragement. My thoughts are with you.by mrspippens - Huntington's Disease Support Center
I am so sorry about your nightmarish childhood, but it sounds like you have moved forward with your life. Big pats on the back to you! As far as testing, it is such a personal choice and as you have seen from this site and your research people test for different reasons. If you do decide to test make sure you have insurances in place (health and LTC).by mrspippens - Huntington's Disease Support Center
I don't know what to say except I really and truly do empathize. Keep the faith,one day at a time.by mrspippens - Huntington's Disease Support Center
did itby mrspippens - Huntington's Disease Support Center
2 things I would change: 1. I wish I knew HD was in the family, it would have impacted how I viewed my mother for so long. Perhaps the resentment and hostility could have been replaced with empathy and patience? 2. If I knew HD was in the family, I would have tested before kids. My single most agony continues to be fear that I passed this on to them. What I couldn't change: 1. now that Iby mrspippens - Huntington's Disease Support Center