I'm always cold!by mrspippens - Huntington's Disease Support Center
Will, Don't forget though, that half the course is biking, so the 8 min/mile average was not all on foot. If it was, I'd certainly be joining you and Matt at the next marathon!by mrspippens - Huntington's Disease Support Center
Hey everyone, Just wanted to share with you all that one of my friends and I participated in the "muddy buddy" yesterday and we came in 15th in our age group! The race was a 7 mile course where you and your partner alternate between mountain biking and running, and then switching every mile. We finished the course in 1 hour and 1 minute. I owe this accomplishment to Eric and Matt anby mrspippens - Huntington's Disease Support Center
I have to agree that the bus comment does appear to be universal, and indeed it is very frustrating. And I am also find myself becoming increasingly disconnected from my friends who mean well, but truly do not understand. That is why I like this forum so much, everyone here gets it. After being on the website, my capacity to tolerate frustration with those who don't (get it) increases significanby mrspippens - Huntington's Disease Support Center
Thank-you Marsha- I too am grateful for all you do. (that rhymed...perhaps we should set it to a tune...)by mrspippens - Huntington's Disease Support Center
Great job Matt! Very inspirational!by mrspippens - Huntington's Disease Support Center
Eric, If this isn't too personal...Do you mind me asking how old Teresa was when she first started showing symptoms and how old your boys were? Mrs. Pippensby mrspippens - Huntington's Disease Support Center
My husband and I just told our kids, 16 and 11, about my HD status. It was time because I am showing "soft" symptoms (by the way, I really dislike the term soft symptoms....there is nothing soft about temper outbursts,impatience, and uncharacteristic behavior) There was no secrecy in our family growing up-we just didn't know. My mother was diagnosed about 4 years ago at age 75 afterby mrspippens - Huntington's Disease Support Center
sara, I also recommend getting your insurance in place before you test. Also-the fact that your mother hasn't even been diagnosed yet will allow you to answer honestly on all questions. It's worth the few months premium. If you don't mind me asking...why are you getting tested? Just curious.by mrspippens - Huntington's Disease Support Center
I am thinking of you. So sorry for your loss.by mrspippens - Huntington's Disease Support Center
Eric wrote in a recent thread "...I do think there maybe some modifiers that determine how HD acts if you have the gene.. age of onset for example." Eric or someone else, Can you elaborate on that? And I would also be interested in hearing what some of the other modifiers might be.by mrspippens - Huntington's Disease Support Center
I can empathize with you....You guys know our story-4 siblings all HD+ It doesn't seem fair that at least one of us might have dodged that bullet, but I agree with Eric that the ones who post here are the ones who have been affected by HD. Here's to hoping that OUR children might win that coin toss.by mrspippens - Huntington's Disease Support Center
That is great news to hear Barb! Do you mind me asking how old you are? ANd at what age you first started noticing symptoms?by mrspippens - Huntington's Disease Support Center
Hi Julia As a mother of two children I will say the thought of having inadvertently passed on the HD gene to them (didn't know HD was in the family until after they were born) is the hardest thing about coping with my gene positive status. If you can afford it, IVF with PGD is something to seriously consider. Good luck!by mrspippens - Huntington's Disease Support Center
Don't you think a pair of HD sucks goggles, with HD on the right lens, and SUCKS on the other; is a great idea for a fundraiser???? I do!by mrspippens - Huntington's Disease Support Center
Hi Linda Lou! I am so glad you are on here too! Love from, your baby sister!!! (yes, we really are sisters everyone!)by mrspippens - Huntington's Disease Support Center
Will- That is not "one small" claim to fame....it is a great big one! Wow, I can't even begin to imagine running that monster that many years in a row!by mrspippens - Huntington's Disease Support Center
Will--Yes, my husband is still active duty and is currently the CO of a helo squadron out here in So Cal. He flies the CH46 which I am sure you are well familiar with if you were in the Marines from '67 on. Can you believe there are still 46s up and running that were operational during Vietnam?by mrspippens - Huntington's Disease Support Center
My 16 year old son finished 11th with a time of 23 min and change, my hubby finished in 29 min (but he wore his full utilities and boots....had a lot of extra weight) and I finished in 30 min and 10 seconds!!!! We had a lot of fun. Will-did you do boot camp in San Diego or Parris Island???? My husband is a marine, too.by mrspippens - Huntington's Disease Support Center
Hi everyone, Tomorrow my son, my husband, and I are participating in the "boot camp challenge" at a military base near our home. It is a 3 mile run with 20 obstacles set up throughout the course. Apparently, there are DI's at every obstacle who encourage (yell and shout at) you. Ha-I bet I can give them a run for their money if they invade my personal space! (just kidding) Wish us lby mrspippens - Huntington's Disease Support Center
Happy Birthday Barb! We are only 4 days apart, my birthday was on the 9th! I got to spend it backpacking in the eastern Sierra's and it was glorious. I hope you had a great b-day too!by mrspippens - Huntington's Disease Support Center
Will, I started posting here last November, and I wanted to thank you for inspiring me to take my diet and exercise much more seriously then I had been. I feel so much stronger, happier, and more energetic then I had in a very long time. Thanks again! Mrs. Pippensby mrspippens - Huntington's Disease Support Center
That is great news!!! I am so happy for you all!by mrspippens - Huntington's Disease Support Center
Praying for good news.by mrspippens - Huntington's Disease Support Center
Trey and Deborah, Me too, and the exact same thing of knowing the response is inappropriate and feeling badly about it. I went on a low dose of Celexa (an SSRI)-the best thing I ever did!!!by mrspippens - Huntington's Disease Support Center
Exercise and supplements over the course of the past 6/7 months have made a huge impact on my energy, mood, and cognitive abilities. (just my personal experience, obviously not a controlled study)by mrspippens - Huntington's Disease Support Center
Great newsby mrspippens - Huntington's Disease Support Center
KAG-are you comfortable telling us what city you live in? If any of us live in the same area maybe we can help you find resources.by mrspippens - Huntington's Disease Support Center
finally had a chance to read the article... definately worth it!by mrspippens - Huntington's Disease Support Center