Hi Mary Yes, Obsessive Compulsive Behavior can be a Big Part of HD. However the Ritual Obsessions that you speak of as a Young person are also present in folks who are HD free, as a young child my mother became very Ill, Siezures similiar to Epilepsy"sp" It Frieghtened me so bad that I was Convinced that I could help protect her with a ritual Prayer, this was repeated Evey Time i lby Ron C. - Huntington's Disease Support Center
Anyone have a copy of Jim Pollards "First Shift" pamphlet that you could send to me? I need to run off some copies but no longer have an original to work with.Thanks Ron C. wabbittwacks@custertel.net Ronald B. Cleveland PO Box 992by Ron C. - Huntington's Disease Support Center
What would have to be done to update the Physicians Guide from it's Present outdated Version?. Any Ideas? is it even Doable?. Ron C.by Ron C. - Huntington's Disease Support Center
Hi Barb Several years ago during a stressful time for many on the list, we had a young lady who was quite active, her name was Kelly and She Also was from Canada. She wrote many articles for the Lighthouse about dealing with HD as she was HD+ herself,She lost her Mother to Cancer not too long ago, her mother was also an active Contributer to the forum. Anyway, Peter from Brisbane was alwaysby Ron C. - Huntington's Disease Support Center
PONDERISMS I used to eat a lot of natural foods until I learned that most people die of natural causes. Gardening Rule: When weeding, the best way to make sure you are removing a weed and not a valuable plant is to pull on it. If it comes out of the ground easily, it is a valuable plant. The easiest way to find something lost around the house is to buy a replacement. Never takby Ron C. - Huntington's Disease Support Center
Hi Peter Always nice to see you post, And really never knew you to be a malicious person, Remember the "HAGEROO" hope i spelled that right, Don't guess you have any of that brew still stashed ? I guess you folks are slipping into spring & Summer, Snow starting to fly here, Take Care Peter. Ron C.by Ron C. - Huntington's Disease Support Center
As you all know, my Sister Barbara is under Hospice care for End of life.Last week she recieved a visit from her Long estranged Daughter who she hasn't seen 26 years. Barb has 3 children from 2 previous marriages, all are HD+. The Daughter who visited lives in Texas, I had an oppurtunity to speak to her at length on the phone prior to her visit, and she was so guilt ridden for blaming her Mom onby Ron C. - Huntington's Disease Support Center
A Newfie was proudly showing off his new apartment to a couple of his friends late one night. He led the way to his bedroom where there was a big brass gong and a mallet. "What's with that big brass gong?" one of the guests asked. "It's not a gong. It's a talking clock," the Newfie replied. "A talking clock? Seriously?" asked his astonished friend. &quby Ron C. - Huntington's Disease Support Center
Mediaman writes"You will put your morals up against mine any time, how na?ve of me to challenge such a superior individual. Quick, run to Steve and have this post removed as I am sure I am inferior to your greatness and I have pointed out an insensitive fact." Mediaman I see you still don't understand the concept of Discussion do you. You seem to posses(sp) basic speech skills,by Ron C. - Huntington's Disease Support Center
Margaret I have to find one that won't cause a rash of Computer Crashes. Ron C.by Ron C. - Huntington's Disease Support Center
Thank You Eric I really appreciate the chance to do this, though these photos are old, these are the images i hold in my heart, Thank you for all your help. Ron C.by Ron C. - Huntington's Disease Support Center
Anyone direct me on how to post Family Photos, who do i contact and is it Safe? Thanks Ron C.by Ron C. - Huntington's Disease Support Center
Hi All just a little reminder, lots of new posts you all might like to read.We don't want anyone to feel left out.just a little jab with a sharp stick. Ron C.by Ron C. - Huntington's Disease Support Center
Hi & Welcome The stress & fear of being at Risk is Overwhelming, I wish I had a Magic Answer for you, but one doesn't exist as all persons touched by HD handle it in so many different ways, it is alway good to have a relationship where you can sit down and talk and give comfort and understanding to each other, The problem sometimes is that HD is so brutally frieghtening that folks trby Ron C. - Huntington's Disease Support Center
ERIC That is Not True I am all for having Women Rulers, Just take a look at that Lady "Zena" The Warrior Princess, Now that gal could Kick Butt and look great doin it, And her Vice President, the little Blonde with the Staff, I wonder why they moved that show? Oh I almost forgot "Buffy" the Vampire Slayer as Sec. of state, What a Combination huh? Ron C.by Ron C. - Huntington's Disease Support Center
Steve Wrote "Personally Ron, I think it will be up to a future generation to reclaim their freedoms". I agree Steve, I'm too old to Lift a musket, and That bag of balls is heavy too. (OOPS) Musket Balls. I like your thoughts on ins coverage, but it seems like anytime the govt. has a decent idea,"Medicare Prescription Coverage"the govt steps aside and letsby Ron C. - Huntington's Disease Support Center
I had to speak out folks, and I must agree with all the posting that has occurred since my "Vent" for lack of a better word. but just think!, we are a HUGE nation, and it's taken a long time for our intended protections to be tied in such a ball of Legalise that it is impossible for us Citizens to Extract ourselves and begin any sort of repair, granted, over the past 50 years we have seby Ron C. - Huntington's Disease Support Center
This has been a very amusing thread, great for a laugh or two, but otherwise it is useless. i am truly suprised that so many adults in this country continue to pay homage to a concept that no longer exists (DEMOCRACY). For all you folks to ramble on about Change When deep in your heart and Mind you know that fixing this long imbedded circle of power is not going to happen until people realise thaby Ron C. - Huntington's Disease Support Center
JL WRITES " I check things out pretty thoroughly before forming an opinion." OK, here's what we can do, We form a study group, We hold our opinions till the 2012 election, which may start in 2010. we all agree to meet back here to see if our opinions have changed and or has there been any change, if so, Who did it, Who paid for it? Did it make a Difference? and are we Out of IRby Ron C. - Huntington's Disease Support Center
Marsha says Group hugby Ron C. - Huntington's Disease Support Center
Dave Wrote "George Bush lowered taxes across the board to stimulate the economy out of the Clinton recession." Stop The Presses!! lets see now, Seems as though there is a Mistake in the History books according to Dave,Hmmn, How does this work? Clinton Leaves Office with a Surplus in the Nations Account, Bush Enters Office, Spends Surplus, Immediately Spends Country into TRILLIOby Ron C. - Huntington's Disease Support Center
Donna55 Several weeks ago my Sisters Dr. wanted her put in hospice care for end of life care, she has been in a NH for 9 years, presently uncommunicative except for times when she seems to rally briefly, when she wakes she is hungry but does not eat much, she is kept hydrated with IV fluids, a DNR is in place , and hospice will keep her Comfortable, her daughter who is HD+ is Visiting her thby Ron C. - Huntington's Disease Support Center
"The question I wanted to ask is this. Is money the answer? " Yes, and fear of a worldwide epidemic of biblical proportions. IMHO Ron C.by Ron C. - Huntington's Disease Support Center
Just Don't Try to Chew It, I'll bet it sticks to your teeth.by Ron C. - Huntington's Disease Support Center
Hmmm, no one seems to want to discuss this matter, is it because "The Yellow Brick Road" Leads to the door of the NYSE? Ron C.by Ron C. - Huntington's Disease Support Center
Gene Patenting has been going on for quite a while now, Do you feel this is Good or bad for HD Research, Who Actually owns The HD Gene Now? And are Efforts to Discover a Cure or treatmeng Being Sidelined for more Profitable Ventures? Ron C.by Ron C. - Huntington's Disease Support Center
I love Peanut butter, but being Insulin Dependent Diabetic I can not eat it at all. My wife Diane came across a product Called PB2, she ordered several Jars a couple weeks ago and this is a great invention, it is totally Dry like a powder, all the oil has been removed, 75% of the fat is gone, you reconstitute it with plain Water, or mix it with sugar free jelly, put it in ensure or shakes, this iby Ron C. - Huntington's Disease Support Center
Well friends, after much discussion and soul searching i have decided to relinquish the Medical PAO For Sister Barbara. It only makes sense, Brother Russ is so much Closer and can Keep a Better watch on Barbara's Care than I can from 3000 miles away, after all, her care and comfort takes priority over Everything Else. I Trust my Brother and now realise that his Heart is concerened only for her wby Ron C. - Huntington's Disease Support Center
Thank you everyone for your support at this turning point in my Sister Barbara's Long Journey with HD. Most all of you who have dealt with End Stage HD, and the Ensueing need to move on to end of life issues involving Hospice,and being the one who had to OK the final steps to be taken has been quite Disturbing to me. Never once in the years I have been Barbara's medical POA have I ever heard a woby Ron C. - Huntington's Disease Support Center
Hello Brandon I am happy for you, you got home in time to say your good byes to your Dad, It is so important to have Closure. Your Dad is Free of HD, that is a wonderful Thing.I hope you can rest from your ordeal in IRAQ, and Know that we Appreciate the Efforts of all the Young Men who Step up in Defense of America. Peace On Your Journey Ron C.by Ron C. - Huntington's Disease Support Center