Hi steve & Marsha Looks like you got it fixed, Recieved the email responses again this morning, All Clean and Sparkly.Appreciate you Two & all you do.. Ron C.by Ron C. - Huntington's Disease Support Center
Very Hard nut to crack, Does the Family member ever mention HD, and aknowledge that they may be having problems? It may be that you need to think long & hard on this before proceeding, hard to say what Emotional problems and Stress this could generate, Though your heart is in the right place, give it some time. in the Matter of Testing ,Only your family member has the right to make that Choicby Ron C. - Huntington's Disease Support Center
Hi Steve Just a "Heads Up" I posted the other day and inadvertantly checked the Box "Send Replies Via Email" yesterday I recieved a Call from my ISP followed by an Email, The 12 Replies sent from this Site were Infected, they were distroyed on the Spot. Thought you might like to know, Spray more "BUG SCREEN" Ron C.by Ron C. - Huntington's Disease Support Center
Hi PaulaH Stacy is right, if you don't feel comfortable with your counselor then by all means try to find one that you have a good repoire with. I started councilling 3 months ago ang got real lucky with the VA recommended counselor, i have seen him 6 times now, i am on a two week schedule for a one & a half hr.session each time. He has been very Interested in learning about HD, and my fby Ron C. - Huntington's Disease Support Center
OK now Since i feel the teeth knashing and rabid spittle flying, let me just say, please read my post through again, Yes Marsha, research is Ongoing, You do a wonderful job of keeping everyone informed on all the Irons that are in the "RESEARCH" Fire.As for the Blueberry, creatine,BDNF, Excersize, Whatever, Thats Fine too, Granted it is Good to be healthy, Even if your only problemby Ron C. - Huntington's Disease Support Center
Hi De We can read any number of claims about folks Beating HD,there are so many variables among Phd's it is hard to verifiy any claims that you will see on these groups. granted, Scott's Story gave desperate Phd's something to cling to as well as Will's. However one fact remains, Scott was NEVER willing or able to back his claims with Medically verified Facts.And one fact is irrefutable, NOby Ron C. - Huntington's Disease Support Center
Relax JL You did nothing wrong, i am the one who screwed up by replying to your post.I'm Sorry. Ron C.by Ron C. - Huntington's Disease Support Center
Hi All I have tried to keep my mouth shut here, and think I still should, However i think I should remind Folks that there are no "ORACLES" on these boards.No one can be "the all" for anyone else on this board.When i first started on "HUNT-DIS" I had so much grief built up that no one understood, I was literally going Nuts with worry and loss, I soon became a &quby Ron C. - Huntington's Disease Support Center
Hi Appleseed I don't quite understand, Will this help Diabetics also? I am being put on insulin in May, and I am not looking forward to going this route. Ron C.by Ron C. - Huntington's Disease Support Center
Dear Sharon I have searched for words of comfort, but there are none to soften the loss that you have suffered, it is a blessing for you at this time to have Friends at hand, Lean to Gordon, he knows your loss and will be a great help to you.Please accept our Families Sympathy and Condolence, You are Strong Sharon, you have all of us here for you. Many are stunned, but relieved for Bobby. Weby Ron C. - Huntington's Disease Support Center
I was just pokin along readin the post's yesterday, noticed one that commented " No one should have survivor guilt, it would be like feeling guilty that you weren't hit by a train". A lot of folks on this site suffer from survivor guilt, maybe afraid to talk it out, I will tell you that it is Very real, very complicated to explain, and very damaging to one's sense of Being and Belongingby Ron C. - Huntington's Disease Support Center
HMMMMMM, You sure you have the right Ron?by Ron C. - Huntington's Disease Support Center
Welcome Leslie What a welcome post, i hope all at risk folks will read this and be given hope for a Negative test result, I too tested negative, and had a hard time accepting the result, i too was guilt ridden,and still to this day wonder why i was spared. but for all those at risk, untested and so sure they have the disease, take heart, here is further proof that stress and worry are big cby Ron C. - Huntington's Disease Support Center
My Choice is CELEXA, Does wonders.by Ron C. - Huntington's Disease Support Center
A lecturer, when explaining stress management to an audience, raised a glass of water and asked, "How heavy is this glass of water?? Answers called out ranged from 8 oz. to 20 oz. The lecturer replied, "The absolute weight doesn't matter. It depends on how long you try to hold it. "If I hold it for a minute, that's not a problem. If I hold it for an hour, I'll have an ache iby Ron C. - Huntington's Disease Support Center
Hi Robert Looks like you are Sympton hunting, trying to do a self diagnosis. Testing is your choice Robert, But what you are doing to yourself is so very destructive to yourself and your relationship with your family. You can not Diagnose yourself, If you came here looking for sound advice, Then Fine, if however, you came to pick and choose what you want to hear to fortify your own theory, tby Ron C. - Huntington's Disease Support Center
Hi Robert Two words Struck me in the first line of your post " possible HD", that means that it is only possibe at this stage, There is still a 50% chance it is not HD. right now there are so many other Stress factors in your life that you are putting the worst spin on things at present. You dont't know nor doe's your Dr. if you even have HD, And there is only one way to find out. Dby Ron C. - Huntington's Disease Support Center
Hi Barb Beginning with ADOBE READER Version 6 And now in 7, there is a function called "READ OUT LOUD" Where you can bring up a File in PDF Format Click on "VIEW" Select Either a single page Or the Entire Article And it will be Read to ypu in English, I remember when i set this up for Brother D. 2 years ago, you had a choice of Readers, Male or Female, ACCENTS, BRITISH ORby Ron C. - Huntington's Disease Support Center
Counseling Session: A husband and wife go to a counselor after 25 years of marriage. The counselor asks them what the problem is and the wife goes Into a tirade listing every problem they have ever had in the 25 years They've been married. She goes on and on. Finally, the counselor gets up, Walks around the desk, embraces the wife and kisses her passionately. The Woman shuts upby Ron C. - Huntington's Disease Support Center
Hi Twiggy & Lesa The nice thing about posting on this site is that you can say anything thats on your mind, We never know if our posts will help someone, a good for instance Twiggy, is that you struck a chord with your post and gave lesa the ability to post her thoughts, See, you are already a sucessful Poster that definitely had something to say, We can all find common ground in each otby Ron C. - Huntington's Disease Support Center
Ron C. in Idaho, 63 Y.O Seems like I have been living with HD forever, Only male to test Neg, in my Immediate Family, The loss goes on, We just learn to Adjust to the Damage in any way possible. i appreciate the Folks on this Site, only wish I could Do more to help. Ron C.by Ron C. - Huntington's Disease Support Center
As marsha says, this is an all to common situation. I am very sorry for your Families situation and hope your attorney can pursuade the court to understand what has happened and get your FIL some help.I believe if you view this as an oppurtunity, and as this situation is resolved, you can use this to educate all parties concerned about the affects of HD, Make it a Mission in your Community, anby Ron C. - Huntington's Disease Support Center
This is certainly going to be a NO GO for most HD Families whose financial well being is a thing of the past due to the Wrecking Ball of HD.In my Opinion, What with the Extended Timeline, and Increased Price this information remains in the catagory of "FALSE HOPE". In My Opinion Ron C.by Ron C. - Huntington's Disease Support Center
Very Nice Photo site, it is a pleasure to see you all, this is a real good thing for all of us. Ron C.by Ron C. - Huntington's Disease Support Center
All the responses You have recieved are good strong advice from very knowledgable(sp) people.I have only One thing to add, TALK First, Keep talking as long as you are seeing some measure of understanding on his part, Sound to me like he is displaying very compulsive behavior, it can take many forms.I can only say , DO NOT turn him in to the police, you will Literally Ruin your family social acby Ron C. - Huntington's Disease Support Center
Hi JL We all exist in this world, both physically and Spiritually I am not ALighned with any Church, but respect all peoples beliefs, our heart & soul will guide us, and mainly I Truly believe i will be united with my Family when I leave this Physical realm. It Keeps me going. Hang on to that Anchor, I know i Am. Best Regards Ron C.by Ron C. - Huntington's Disease Support Center