Myrna, for me it was not a hard or difficult decision. THEY WILL NOT GET BETTER. I remember them, as they were; I have many gooooood memories. As I sat with my brother often during the last few months of his life, we talked of noble things. These are the things I will always remember. They had no wish to prolong their lives. I can not speak for Rikki, but if you think she wouLD say, "LOVE MEby bob netx - Huntington's Disease Support Center
Melissa, MILs are family; bet she shared some tremendous moments with you. 'tis great you care - therefore, we care. Bobby bob netx - Huntington's Disease Support Center
You asked, "Would it be better for Rikki if she doesn't have the j tube fitted & let nature take it's course sooner than it might?" One responded she doesn't have any experience. I have experience, and have repeatedly visited nursing homes. I and five of my siblings have/had Huntington's Disease; Years ago I directed one life support system be terminated - not gastric. Recently, Iby bob netx - Huntington's Disease Support Center
Norah, Please understand, "advice is worth what it costs". All of the people responding here have nothing to gain, and we are inputting based on our related information, Huntington's history and personal experiences. I am almost 71 years old and am a carer as well as HD Gene positive. My opinion: you are making allowances for your friend. He has not been forthcoming with you, and thereby bob netx - Huntington's Disease Support Center
Hello, Diane. I am 70.75 years old and have a CAG repeat of 40. I am pretty much asymptomatic and have never experienced excessive dry eyes. One middle to moderate stage daughter (CAG43) has not either. I would expect a byproduct of Huntington's Disease effecting facial changes to be dry eyes. My opinion is, "in no way do dry eyes portend HD". Bobby bob netx - Huntington's Disease Support Center
It's difficult to say anything meaningful at a time like this...a double blast...all of us have empathy...I buried my brother last week ...try to think back and enjoy their special days and events...Bobby bob netx - Huntington's Disease Support Center
Marjorie A Miller, MS & Associate Professor co-authored Anatomy and Prysiology in 1972 and updated in yearly at least until 1979: The 16th edition of the textbook for nursing students was prescient in the genetic areas of reproduction and conception. We are fortunate to have notable Millers involved in the HD arena: Marsha, Jean, and perhaps others. Any relation?by bob netx - Huntington's Disease Support Center
Greeeeaaaaaaaaat, teej; it is indeed wonderful news and is positive and uplifting for all of us. One of my daughters is your sister's age. Bobby bob netx - Huntington's Disease Support Center
I don't know the correct answer; there are too many variables to plot. My recommendation that my granddaughter (10 year old) stay here with her mother, at least for a couple of years, was ignored in the mother/father decision making. I think they are relying heavily on the desires of a 10-year old; she wants to be with her single father who dotes on her...I have not pressed it..the father appearsby bob netx - Huntington's Disease Support Center
I have a similar situation; I am the grandfather of an at-risk 16-yr old boy, 15-yr old boy, and a 10 year old girl. The Phd mother and father are divorced and are physically separated by forty miles. The 15-year old has lived with his dad for two years. The 10-year old plans to go with her dad next school year. The 16-yr old wants to stay with his mother; he and his dad do not get along well. Alby bob netx - Huntington's Disease Support Center
Maggie, thank you for sharing; somehow, it's especially fitting on this Great American Independence Day...bobby bob netx - Huntington's Disease Support Center
I am the 6th child in a row (youngest at 70.75 years) with hd (CAG count 40). My two daughters are hd positive (CAG 43 and CAG 40). All my uncle's living children appear to be hd symptomatic...eight youngest in a row with hd.....My brother's two children appear symptomatic. My sister's two children are suspect. The statistical probability In my family, it's approaching 100%. What makes the 50/50by bob netx - Huntington's Disease Support Center
Giuseppe, I feel for your entire family. I have only one opinion that I have translated into action over the years - I am 70. I would never artifically extended a life for which there is no hope - mid to latter stage HD is in that category. I and five siblings have the expanded CAG count, and I am strongly recommending this action to one SIL for a brother. Depending upon progression in my immediby bob netx - Huntington's Disease Support Center
And a beautiful morning to you, Barb. Would you please change my bob netx on your alpha listing as follows: "I am 70; have a CAG repeat of 40; and have some symptoms. Have two beautiful, wonderful daughters (CAG 40-age 43, and CAG 43-age 45. I have been on a heavy, continuous regimen of vitamins and choline since 1983; have often supplemented those with HD-helpful 'things'. We track HD bacby bob netx - Huntington's Disease Support Center
My 78-year old brother should be placed in a N/H. He does not want to go, but it's way past time; he requires 24/7 care, and his wife has done a great job but needs surgery herself before paralysis. He is a danger to himself and others; he crawls now, but can't walk. He will attempt to stand/walk and falls. One child will not help. My Phd daughter and I will drive down tomorrow to visit and worby bob netx - Huntington's Disease Support Center
Sharon, Liz and I share in your sorrow. We send our love.by bob netx - Huntington's Disease Support Center
Thanks, Ron. Rereading (meditating) your post pointed out the critical item/lesson that's applicable to me right now - that of an external constant stress. One particular external stress factor caused me to seek a tranquilizing effect of an antidepressant for several years. I reached an unhealthy plateau from where I chose not to interfere with emotional abuse within my family - or intercede on mby bob netx - Huntington's Disease Support Center
And a beautiful morning to you, Barb. I am 70; have a CAG repeat of 40; and am pretty much asymptomatic. Can't say the same for two beautiful, wonderful daughters (CAG 40-age 43, also has CP..., and CAG 43- age 45 - three at risk children). I have been on a heavy, continuous regimen of vitamins and choline since 1983; have sometimes/often supplemented those with HD-helpful 'things'. We track HDby bob netx - Huntington's Disease Support Center
Marsha, over the years I have read much/most of what you have written (that I know about). All have been very helpful/meaningful. Do you have a site which contains a listing of your writings? In addition to hd, I am very much interested in Pathological Narcissism - how to perhaps better intervene with my spouse when she is emotionally abusive to my live-in daughter who has CP and a CAG count of 4by bob netx - Huntington's Disease Support Center
One of the Dallas, Tx TV stations collected twelve of the peanut butter Product 2111.... containers for testing...most were sent in by users...Under lab testing, no Salmonella was found.by bob netx - Huntington's Disease Support Center
Huntington's may be the beginning/continuance of an evolution - not necessarily gone awry but leading to a next generation of something very special. In time, left alone, 'it' will 'evolve', and if necessary will be self correcting. All pHD's are special, and many are extremely intelligent unless afflicted with another 'temporary' problem. The age of our universe can be dated - other universesby bob netx - Huntington's Disease Support Center
Dusty, I am amazed AND INSPIRED by you resiliance.Sometimes, more often lately, I almost reach a meltdown, then I think of you and press on. I do much of the housekeeping (cooking, grocery shopping, ironing, vacuuming, etc). I hope you have a wonderful day.by bob netx - Huntington's Disease Support Center