Please also do not feel guilt over your fantasy of his death. I belive they are protection thoughts to help you feel there will be an end soon to the violence.. but it IS a fantasy. You must not dwell on your thoughts but go into action and help yourself and your kids be safe. If you are hiding his guns, and he knows it, then you were right he was going for it. GET OUT. You also need to thinby mrspatwolf - Huntington's Disease Support Center
Redwife, You know I honestly don't remember if I told them before he tested or not. To me it was all the same. We were also blindsided by this as we never knew it was in his family and his father tested positve very late in life. By the time my father in law tested positive, I KNEW Joe had the same thing, so you see I always knew he was positive as he was already showing symptoms. I believe hby mrspatwolf - Huntington's Disease Support Center
I wrote a letter to my parents and had my brother bring it to them as they didn't live near me and I didn't want them to read it alone. They really didn't understand the significance of HD at the time and it took several years for it to really sink in. I felt I had to tell them as I told my kids and it'd be pretty impossible to keep it from them when my kids knew. No one can really tell you whby mrspatwolf - Huntington's Disease Support Center
Lori, I'm sure it's the HD. You've got to get control somehow. Go see an elder care lawyer to see what your options are.. Also can you go to the bank and get a debit card so you can get your groceries? You can go online and follow your balance that way. Also I'm pretty big on keeping the kids safe, physically and mentally, So if you have to leave for a while, maybe you should. I WISH theby mrspatwolf - Huntington's Disease Support Center
Don, so sorry for your positive results, that really sucks. Little did you know so long ago the impact your decision would make in your future life. Again, so sorry, but stick with us it will help you I believe. Patby mrspatwolf - Huntington's Disease Support Center
I read the wikipedia post, very interesting Eric. Please keep us all posted Adrienne, and I wish you all the best. Patby mrspatwolf - Huntington's Disease Support Center
Brokenchair, so very very sorry to hear you sad news. Know I'm thinking of you.. Patby mrspatwolf - Huntington's Disease Support Center
Bridie, I think you make perfect sense! She had those years of dreaming taken away from her instead of gradual realization that all's not always perfect with life. Our family is rather different. My husband was married to Phd Kim and entered the marriage knowing she was at risk and knew her Phd Mom and had two OOOPS kids. I was married to Phd Joe and found out my Father in Law had HD (then ofby mrspatwolf - Huntington's Disease Support Center
Dusty, I had hopes that the botox would help you out.. sorry to hear they weren't much help.. hope you feel better soon. Patby mrspatwolf - Huntington's Disease Support Center
Just an aside. Several months ago.. maybe beginning of May or end of April, my Paxil CR didn't seem to be helping me anymore. I'll skip the reasons why and the Dr's explanation, but instead of stopping it, he added Wellbutrim. Well, within a few weeks, I began to experience a complete distaste for cigerttes. I was about a pack a day person.. Within a couple weeks, I realized I was only reachiby mrspatwolf - Huntington's Disease Support Center
Dusty, I remember going to a Christening party for my former Fatherinlaws grandchild... He had HD. When we got there, my mother in law and his other son, actually wheeled him to the back wall and parked him there, instead of putting him at one of the front tables with the rest of the family.. I went back and got him and told him over my dead body was he going to stay against the back wall, and wby mrspatwolf - Huntington's Disease Support Center
I just hope that everyone who has at risk children doesn't wait to tell them about their status until they marry. Many teenagers end up being teen parent. I feel once at an age where they are able to procreate, whether we like to admit they are having sex or not, they should be told so there are no accidental pregnancies. With HD our children need more than the safe sex talk. Patby mrspatwolf - Huntington's Disease Support Center
Dusty You said, "In your case I think your husband should have told you before you had the baby . but it is very hard to deal with pregnant woman." I thought you read Bluegrasslady's post. Neither SHE NOR HER HUSBAND knew about HD in the family as her husband's mother kept the news from them until AFTER the baby was born. SOooooo How could her husband have told her BEFORE the babyby mrspatwolf - Huntington's Disease Support Center
I'm with you on this, I'd be pissed as hell, sick or not sick, how far back do we have to go to determine when she was affected by HD and when she was NOT? I know this is new to the both of you, but I think your husband should consider testing for the sake of everyone involved. You know he has a %50 chance of NOT having HD then your son will be in the clear and I'd STILL consider moving away !!by mrspatwolf - Huntington's Disease Support Center
No one can answer that question for you but you.. reach deep into your soul for that answer. Good Luck, Patby mrspatwolf - Huntington's Disease Support Center
Mango, I'm so very sorry for your loss and thank you for letting us know. I hope some of your fond memories help you through this difficult time. Love, Patby mrspatwolf - Huntington's Disease Support Center
Barb, this is one of the reason I love you so much. You are so open about yourself and you understand yourself so very much. I love that you told the story about your grandchild on the sofa, thanks for sharing that. You always offer insights into the life of our Phd's thanks! love, Patby mrspatwolf - Huntington's Disease Support Center
I was in your shoes at one time, we had no idea HD was in my former husband's family and we already had 2 sons when we found out and Joe was already symptomatic. It took about a year or 2 before Joe decided to test after finding out about his Dad and he did it for our kids sake. I was an absolute MESS for a LONG time. I worked in a school as an aide and took every moment I could to hang by theby mrspatwolf - Huntington's Disease Support Center
Oh Howard, I am SO very sorry for your loss. I remember you AND your daughter as I met her when Jimmy was running the NH she was in and Steve and I and several others stopped in for a visit. Your daughter really knows how to light up a room btw. As much as I'd like to say you're better off without those people in your life, I know you really do need them and it's just horrible this has happeneby mrspatwolf - Huntington's Disease Support Center
Gene positive means you have tested and do have the HD gene and will get the disease eventually. Gene negative means you have tested and you do NOT have the HD gene and will not get the disease. Patby mrspatwolf - Huntington's Disease Support Center
What wonderful news thanks for sharing!!!by mrspatwolf - Huntington's Disease Support Center
Sometimes a year can seem to go by too fast can't it? I too am glad you were with family today surrounded by happiness. I think you have made a lot of progress in this year Barb, I always look forward to hearing from you. Love you, Patby mrspatwolf - Huntington's Disease Support Center
Have a VERY Happy Birthday AND a piece of apple pie for me too! Patby mrspatwolf - Huntington's Disease Support Center
BLUEGRASSLADY, I was in a SIMILAR situation tho not exactly the same situation. My inlaws did NOT know about HD but my Father in Law was diagnosed later in life ( in his late 60's ) and I KNEW my husband had the same thing. Our kids were in 5th and 8th grades at the time. My husband (sorry but ex now our marriage did not surivive, but we are sill friends) decided to test so the kids would knby mrspatwolf - Huntington's Disease Support Center
How about your Grandmother? I'm very close to my grandson and he can talk to me about anything. A grandmother or aunt or close adult friend can help you start the conversation. Good luck to you, just please don't keep this to yourself for long. I care, Patby mrspatwolf - Huntington's Disease Support Center
My family found out about HD being in my former husband's family when our kids were just a bit younger than you. We decided to not tell them at first as we needed to get our own emotions in check first. Maybe that's that's what they are doing? My kids Dad very quickly decided to test so our kids would know if they were at risk but not everyone would decide to do that, it's very individual. Soby mrspatwolf - Huntington's Disease Support Center
You say your grandmother was diagnosed, but what about your parent, her child? It doesn't skip a generation but the CAG can go up or down a bit. Good luck on getting your results and keep us posted please, Patby mrspatwolf - Huntington's Disease Support Center
OH How sorry I am to hear about Jordan's passing! I'm sure you miss him terribly. Please stay with us I know you'll be a huge help to others. Patby mrspatwolf - Huntington's Disease Support Center
Oh Steve, I am so sorry about to hear about the loss of your Dad. I hope the next few days go smoothly and give hugs to your daughter and Mom for me. Love you, Patby mrspatwolf - Huntington's Disease Support Center
HI, Bluegrass, Wow, except for ages, your story could be mine. We never knew about HD in my former husband's family either and my father in law had very late onset at about age 65. He was the only one out of 8 children that we KNOW of who had it. I have my suspicions of about at least 2 of his sisters but no proof. As soon as my Father in Law was diagnosed, I knew my husband had it also due tby mrspatwolf - Huntington's Disease Support Center