several years ago, my ex's HD neuro was telling him how he MUST take care of his teeth. He told us the story of one of his patients with several rotten teeth who refused to go to the dentist. The neuro told him if he didn't go, he would have to release him as a patient because the infection could go to his heart, and he would not be be able to help him then. He went to the dentist and kept theby mrspatwolf - Huntington's Disease Support Center
Is there any HD in her family? Psychosis?by mrspatwolf - Huntington's Disease Support Center
I SOOO agree about the restraining order. This is just terrible.by mrspatwolf - Huntington's Disease Support Center
I have felt this way for a VERY long time. I don't understand why people not only worry about their lawn, but spend $$$ to get rid of the crab grass and dandilions... it seems soooooooo stupid, and such a waste of $$. Yet I can break down and sob, if my cake falls, or I can't get a stain out of a blouse. IDMCLEAN, I agree with not knowing WHEN things will happen. I even want to know exacby mrspatwolf - Huntington's Disease Support Center
Steve and I have seen some people we are sure have HD also, mostly by their gait. I never know what to do either, so I'd like to ask, our lovely Phd's on here what would YOU prefer people do if they think they recognise HD with you? Would you rather they move on or gently ask? I'd really like feedback on this. Thanks, Patby mrspatwolf - Huntington's Disease Support Center
So sorry to hear, it was worth a try Mikee... thinking of youby mrspatwolf - Huntington's Disease Support Center
Mikee, My former husband was also noise sensitive. We had gone to many rock concerts in our day and he always enjoyed it. We were at a BIlly Joel and Elton John concert whom he loved, people were screaming as usual and he turned around and almost slugged these 2 girls yelling at them to shut up. My close friends who joined us never went out with us again! Also our oldest son is in a R&Rby mrspatwolf - Huntington's Disease Support Center
If your brother gets stressed or upset about something, his chorea can become worse, and then improve in a day or so. Just be patient. Also a trauma or injury or illness can make his HD worse or if no symptoms a trauma or injury can kick start the symptoms. Patby mrspatwolf - Huntington's Disease Support Center
What a wonderful experience and realization for you. I hope you can keep this realization in your life. I don't think I'm quite there yet, I rarely feel like I can not talk about HD or not wrap it around my social (LOL) life. Guilt? I don't think it's anyone's fault tho. It's in my husbands family and mine too, so it's hard with so many people I love involved. I AM happy tho with no regrets,by mrspatwolf - Huntington's Disease Support Center
I totally agree with your decision to tell your children. If it helps to tell them while your husband is not present then do that. Again, I encourage him to test so HOPEFULLY you won't have to worry about your kids anymore. Have a good trip! Patby mrspatwolf - Huntington's Disease Support Center
Rest assured you did the right thing telling the other two siblings, no shadow of a doubt. Can you just imagine them getting married, having kids, maybe God forbid, one of the kids having JHD, THEN they found out the family knew? These family secrets are INSANE. I also would tell your kids to prepare them. Until I got MY brain wrapped around my former husband testing positive, I told my kidby mrspatwolf - Huntington's Disease Support Center
Proud of you Dusty, I'm sure that was a huge undertaking! You DA BOMB!by mrspatwolf - Huntington's Disease Support Center
I really enjoyed reading the story of your wedding, You tell a tale soooo well. How amazing that you were able to find the exact light fixture you were married under.. what a treasure~! Thanks for sharing! Patby mrspatwolf - Huntington's Disease Support Center
No we haven't met, and this sounds like you don't take what I said seriously. I am an aunt, and a NaNa, and I've been around a while to know that having children at risk is a horrible, life changing thing for all involved. If I could have avoided, I would have.by mrspatwolf - Huntington's Disease Support Center
Well, I'm really glad you've been able to enjoy your life, I really am, that's wonderful.. I DO hope you are also living responsibly and understand it's even more important to use protection against pregnancy. Patby mrspatwolf - Huntington's Disease Support Center
You are not being paranoid, do NOT let her babysit.by mrspatwolf - Huntington's Disease Support Center
Thanks Kelly, you are amazing!by mrspatwolf - Huntington's Disease Support Center
Yes, obsessions are part of the "soft" symptoms, but most of us don't like the term "soft" as there's nothing soft about HD. I think that term was coined by the hdsa. Patby mrspatwolf - Huntington's Disease Support Center
I know you are concerned so call the doctor, specially a Neuro right now as it could take a while to get in. THEN, relax, stay healthy and stay buzy. Do things you enjoy doing, eat healthy food and do some excercise. Stay with us and let us know how you are doing. Patby mrspatwolf - Huntington's Disease Support Center
I'm having a hard time believing you are symptomatic for HD also concerning your CAG count, however I surely am no expert.. we'll let Marsha come in when she sees this and talk to you. I'll bet your thinking now that you should have gone to the dr's right away when you fell off that ladder huh? WOW I'm sorry you've been through all of this! My parents have gone to Mayo multiple times and theyby mrspatwolf - Huntington's Disease Support Center
Hey Barb, don't worry about it, I got one from MYSELF! LOL.. and I didn't like it either! Love ya, Patby mrspatwolf - Huntington's Disease Support Center
HI Will, You're right, it wasn't a virus as my virus checking confirmed. A friend also told me to change my password on Facebook as that could have been hacked so I did that also.. ARGH.. it's soooooooooo annoying to not just me but all my email buddies too, HA, my senators, congressmen and Kim's neuro got it along with a SLEW of others!!!! Patby mrspatwolf - Huntington's Disease Support Center
I'm so sorry if anyone received spam from me.. I did not send it, does this mean I have a virus? my virus protector should have caught it, I guess I'll run it manually.. So sorry, to anyone who got it, Patby mrspatwolf - Huntington's Disease Support Center
this is great news, keep those bums away from the desperate!by mrspatwolf - Huntington's Disease Support Center
May everyone in my HDFAMILY have a WONDERFUL New Year. May it be the year for the CURE, OR Treatment, I'll take either! May we find a way to meet in person, CHEAP! lol. Peace to all! Love Patby mrspatwolf - Huntington's Disease Support Center
I wouldn't view this as a threat if I was you, although I can understand how initially you may feel that way. I think they are merely covering their own butt here. Probably documenting missing hair, bruising etc when she comes in that probably happened at home verses what happens in school that they could be held liable for. I would talk to them about this if I were you in a non combative wayby mrspatwolf - Huntington's Disease Support Center
Have a very Happy Holiday Season and New Year! ENJOY! Love Patby mrspatwolf - Huntington's Disease Support Center
Marsha is %110 correct on all her thoughts, The first stage in SOME, not all is emotional, psych symptom which can lead to danger and SOMETIMES DEATH, as in murder. The Apathy is very hard to deal with also. We need to be taken seriously by the Drs, I know young adults who are dead now as a direct result of not being tested becuase the symptoms were psych and could have been something else, evby mrspatwolf - Huntington's Disease Support Center
My step son is considered presymptomatic but we, his Dad and I know differently. I think this is a good thing to talk about as the powers that be REFUSE to recognise what the HDSA used to call "soft signs". My step son has been in a mental hospital 3 times between the ages of 16 and 23. For suicidal talk, and psychotic episodes where he was SURE I was trying to poison him. He has chby mrspatwolf - Huntington's Disease Support Center
Life is very much worth this trouble, stick with us and you'll see many happy people! Hope you get your answers soon!by mrspatwolf - Huntington's Disease Support Center