Thank you very much , please all our journeys it is not easy for either sideby pal - Huntington's Disease Support Center
great info thank you and sometimes you just get beat down and need to know you are not alone again thanksby pal - Huntington's Disease Support Center
Hello, I am a caregiver , my husband has HD he presented over 10 years ago and now approaching 4 years of no job and on disability . I know all cases have differences , my husband has a Physic Degree and very smart , he handles most thinsg very well but of course this disease angers him. For several years he is and has tried to find something wrong with me , says I am the one that needs heby pal - Huntington's Disease Support Center
Sorry Mike maybe soon something will helpby pal - Huntington's Disease Support Center
Hi My husband has Huntington Chorea with movements , but his brother tested negitive and sister will not test , so my question is can you have Huntington and no movements but have other symtoms . I am not finding much information on this. Thanks in advance for any helpby pal - Huntington's Disease Support Center
The first few patients have received doses of an experimental RNA-targeting drug for Huntington's disease, it was announced today. The trial aims to test the safety of an experimental drug known as ISIS-HTTRx, discovered and developed by Isis Pharmaceuticals. Administered by injection into spinal fluid to improve its delivery to the brain, the drug is the first tested in patients that targetsby pal - Huntington's Disease Support Center
1 Samuel 16:7 New King James Version ====================== But the LORD said to Samuel, “Do not look at his appearance or at his physical stature, because I have refused him. For the LORD does not see as man sees; for man looks at the outward appearance, but the LORD looks at the heart.”by pal - Huntington's Disease Support Center
Dear Heavenly Father we ask for Your Healing hand in all the trial medications going on right now and any that need You todaymay they feel Your presence in Jesus name amenby pal - Huntington's Disease Support Center
Thanks for not deleting , satan is very busy these days and tries to discourage us , while in other countries your head can be chopped off for this type thing here we just deal with differences and words. I do love to pray for anyone that needs it , my brother before he died at 50 had a NDE and shared the Angel stories and my life has not been the same , I do not force my beliefs on anyone andby pal - Huntington's Disease Support Center
I spend hard days as a HD caregiver I will not spend my extra time arguing so in the title it said prayer thread , I am use to forums that if that is not you thing you do not enter so this can be removed and this as I said this is not a place for me , time is to short for this ,,,,my last postby pal - Huntington's Disease Support Center
Just Saw 2 request to keep Prayer and Scipture in private messages and that HD is bigger than one religion , I only know one so if this is the feeling of the majority to put God inside private box or owners wishes then this is not the place for meby pal - Huntington's Disease Support Center
Psalm 106 48Blessed be the Lord God of Israel From everlasting to everlasting! And let all the people say, “Amen!” Praise the Lord!by pal - Huntington's Disease Support Center
My husband has HD he is on trial drugh for movements but it is not working that goodby pal - Huntington's Disease Support Center
Hope is all we have right nowby pal - Huntington's Disease Support Center
My husband has this and I think when we get hit with change in pressure or solar flares it effects the brain in way we do not understand , hope you are betterby pal - Huntington's Disease Support Center
I am a prayer warrior and will start looking here everyday and pray with you we are dealing with a terrible disease that man can not cure yet but I have hope in One who can. John 5 6 When Jesus saw him lying there and learned that he had been in this condition for a long time, he asked him, "Do you want to get well?" Dear Heavenly Father ,we come today and ask for Yourby pal - Huntington's Disease Support Center
I hear you ,,my husband of 26 years the most active person I know and one of the reasons I married in the past 2 weeks is having bad apathy and taken to lots of sleeping , will not bath and uses to could not stand to be dirty so I ahte it as well thanks for postby pal - Huntington's Disease Support Center
Will do and Thanksby pal - Huntington's Disease Support Center
by pal - Huntington's Disease Support Center
Just finished , not sure how I felt aabout it , I guess I like it finished in 2 days , that is good for meby pal - Huntington's Disease Support Center
What a kind reply , we live very rual and I have been thinking of starting a group because there are many care givers here for different things and no group , and his yelling is not at me it is at odd things like the TV or other stuff just never know , like when at a ball game type yell. We are about to be married 26 years and I have got better at not taking it personal and get out daily. It isby pal - Huntington's Disease Support Center
My husband has Huntingtons , he can be very mean and very nice as many know, but this I have not seen discussed. For several years he wants something to be wrong with me, blames me for most things wrong in our family and says I make him worse by doing to much, is this normal maybe they do not want to be sick alone ?? He be littles and at times try to make me feel small, inadaquate and problby pal - Huntington's Disease Support Center
Hello My husband is no miserable , he is hot all the time but his temp is only 97 , how many HD patients take melatonin and does it help. Thanksby pal - Huntington's Disease Support Center
Hello Everyone , my husband has taken a hard turn and did not understand what was happening , he feels like he is burning up , but no fever and now has infection in protrate , how do you help Hypothalamic dysfunction ?? Thanksby pal - Huntington's Disease Support Center
I can not find anything on Huntington Disease and Herpes as my husbands has got worse , it makes sense but not one article on this anyone have any information thanksby pal - Huntington's Disease Support Center