Like you, my dad passed from HD. I also haven't been tested. Part of me doesn't want to know, part is scared. My advice is, that only you know if you are ready. You have to be able to deal with the rest of your life if your tested. It's a huge step and only you can make it. Only people living at risk can know exactly how you are feeling, which it's another challenge in itself. I'm here if you neeby chriss6007 - Huntington's Disease Support Center
I feel your pain. You need to start seeing some doctors. It sounds as if her behavior fits in the HD symptoms but it could very well not be. Start off by talking to her primary doctor and explaining she is at risk and never been tested. That's step one. Keep up the hope and faith. Christineby chriss6007 - Huntington's Disease Support Center
Oh Liz, You're story is heart breaking, as is all the stories with HD. Have you reached out to his doctors about how bad the outbursts have got? Your husband has a terrible disease, that will kill him. And I fear you may be at the point that you need to save him from himself and protect you and your kids. Making these difficult decisions doesn't mean you are selfish. If your husband had he mindby chriss6007 - Huntington's Disease Support Center
Hi Jackie, Being a young kid and growing up with my dad having HD I can understand where your kids are coming from and feeling. My dad passed when I was 16. Feel free to reach out. Christineby chriss6007 - Huntington's Disease Support Center
Hi Mike, We are all here to support you. Yes, your symptoms may get worse before you finish school, not going to lie. But that should absolutely not stop you from doing what your heart says. If going back to school makes you feel good.....do it! Also, don't be afraid to speak to your mom. I can tell you that your mom probably already senses what's going on but doesn't know how to talk to you aby chriss6007 - Huntington's Disease Support Center
Hi, I am going through almost the same exact thing! E-mail me. I had a rough start but can try and help you. Christine Chriss6007@comcast.netby chriss6007 - Huntington's Disease Support Center
Hi New Again, You may need to ask a Dr that question. If he starts meds it will slow his movements. I don't believe there is any help to starting them early. But he if he does start the meds given his job, they may place him in danger. Check the HDSA.org for support groups. Try e-mailing a few Doctors as well. I did that with a Dr Bird thats on the west coast. He was awesome and answered anythiby chriss6007 - Huntington's Disease Support Center
If you ever need to talk Chicago-T, please please e-mail me anytime. We can use each other to vent. I live outside of Boston, not sure where you're from. If anyone wants to e-mail me, please do not hesitate. Christine chriss6007@comcast.netby chriss6007 - Huntington's Disease Support Center
Thank you guys. I am the bad guy. My sister hates me right now, and usually i'm ok with that because I know shes at a place right now where shes being treated great. Funny, my sisters name is Vicky as well. It seems as if we are all in the same situation. I find it almost impossible to deal with the child like symptoms, you can't reason at all when she focuses on one thing. I can tell you, that fby chriss6007 - Huntington's Disease Support Center
Chriss6007: Hi, i'm Christine. A 37 year old female at risk. I am married with 2 boys ages 4 & 5. My father passed from HD when I was 16 years old. At age 40 he found out he was positive, before the genetic tests were available. He died at age 51 from stomach cancer but my guess was he was close to the final stages but he only really had movements. I have a 47 year old sister who tested posby chriss6007 - Huntington's Disease Support Center
Hi Everyone, I am very new to this forum, but am looking to see if anyone has been down the road that my sister is currently traveling. I have a 47 year old sister who has tested positive from HD. My dad was diagnosed when he was 40 and died at 51 but really from complications from cancer although he was near final stages. My dad was very passive, and seemed to mostly have the physical movementby chriss6007 - Huntington's Disease Support Center
Hi, I am at ask risk person who had a father pass away at age 51 with HD and now have a 47 yr old sister who is in a State Hospital with HD. Although my sister doesn't have those violent outbursts, I do have a friend whos HD father did the same exact thing. There's a great guide on the HDSA.org that explains things to expect and unfortunately I think it is. Its so hard not to hold anger towardsby chriss6007 - Huntington's Disease Support Center
Hi, So sorry to hear the news. I am newly going through this with my sister right not. My best advice, is tomorrow, call the HDSA.org and ask who is the social worker in your area. They are amazing. A great social worker will help you with the paperwork. I am in those steps right now with my sister. Finding doctors and facilities that are HD is KEY. It makes a world of difference. If you want tby chriss6007 - Huntington's Disease Support Center