As I was reading all your posts, I had a thought. I don't know how to cure the people with HD, but I know how to cure the ones that haven't been born yet. Do you think that we'd have any luck convincing the government to pay for IVR for anyone with HD wanting to have a child? Eventually, HD would be gone! I doubt it would work. I was just having a down moment, like you said db, when I posted.by Sally - Huntington's Disease Support Center
Is anyone really wanting to find a cure? Think about it. If someone found a cure to one of these horrible diseases, can you imagine how many people it would put out of work? Why would you want to do something that would put you out of work (except the moral reasons of course)? Can anyone give me a good reason? I'm kind of losing hope because I keep thinking like this. I know the scientist tby Sally - Huntington's Disease Support Center
My first reaction is the date. That article was written about 1.5 years ago. What has happened since then? There you go again, JL...getting my hopes up!by Sally - Huntington's Disease Support Center
Here's another that might be of interest.by Sally - Huntington's Disease Support Center
Just thought I'd bring this thread to your attention in case it interests you. I think there might be a couple more. I'll look for them.by Sally - Huntington's Disease Support Center
Hey all you Canadians! I'm from NS! I'm glad (in a way) to see you all here!by Sally - Huntington's Disease Support Center
Thank you, Marsha. You explained what I was talking about. I'm not good at all the terms...to me HD is HD, no matter what the type!by Sally - Huntington's Disease Support Center
Thank you JL! I completely agree with you. Why would they need a the parent's DNA if they have found the gene? I don't understand. However, with that said, my husband was only tested 2 years ago and they wanted his mother's test results first. They said that it had something to do with (forgive me please because I'm not a doctor) the fact that there are two different types of the gene. I doby Sally - Huntington's Disease Support Center
I can't believe that something like this actually exists! I can't imagine trying to "pretend" to have HD if it wasn't the case. Oops...guess I should have said pretending that my husband has it. Didn't mean to sound like I had it because I certainly wouldn't want anyone taking it that way. Wow!by Sally - Huntington's Disease Support Center
I have just skimmed these messages, so please forgive me if I missed something. I think it was Stacy that mentioned that her family seems to be showing symptons earlier with each generation. Do you think that it is because you know the symptons that you are looking for and your parents/grandparents didn't know? That is what I think (hope) is happening with my husband. He is 33 with a CAG coby Sally - Huntington's Disease Support Center
I know exactly how you are feeling. I live in Canada and my husband's blood was drawn the first part of March and we received the results the end of May. We were told that we had to go through the same counselling programs that it sounds like you are going through, but we never did. My husband's situation was different that way. He has always known that it was in his family and grew up with peby Sally - Huntington's Disease Support Center
If you don't have HD (which it doesn't sound like it), you should still see a doctor because you say you are showing signs similar to it. Go to your family doctor first and go from there.by Sally - Huntington's Disease Support Center
I agree with Marsha. I don't believe I could use this method (getting pregnant and aborting if fetus is HD positive), however, I suppose anyones choice to do this...110%.by Sally - Huntington's Disease Support Center
I can't tell you much about the tests except what my husband said. There was alot of memory things (ie. read story and then get asked questions). Pick the two pictures that match. Here are 20 things...now, I'll take them away....what's left. That's about all that he said.by Sally - Huntington's Disease Support Center
My husband had them done as well, but it was after testing also. It was a full day of tests for him (9-4 with a half hour for lunch).by Sally - Huntington's Disease Support Center
There were mentions about family history, but nothing was defined. The thing that struck me was how fast the test results came back....24 hours! I wish!by Sally - Huntington's Disease Support Center
Did anyone see the show "House" last night? It was excellent! A woman was brought into the hospital with symptons similar to HD. It turned out that it wasn't, but it was interesting to see it on a show!by Sally - Huntington's Disease Support Center
JL, I was stating the laws in Canada as I know them. The 6 month rule might be different elsewhere. A woman can decide at any time to put the child up for adoption. After 6 months, the changes of a baby surviving an abortion (I assume) would be too great for a doctor to take the risk. Once again, this is my opinion and could be VERY wrong.by Sally - Huntington's Disease Support Center
Thanks...my husband is only 32, but already showing some of the mental signs. I'm certainly not giving up hope!by Sally - Huntington's Disease Support Center
The genetic testing place in Nova Scotia (which is where I live) won't test until the 2nd trimester. The reason they give is because it could harm the baby prior to the 4th month. They will not terminate after the 6th month so you have until then to decide. If an abortion is not for medical reasons, they will not terminate after 3 months. Sorry if my previous message was not clear.by Sally - Huntington's Disease Support Center
For starts, I'm in Canada so things may be different in the US. My understanding about the prenatal testing is that you have to wait until you are in your 2nd trimester (in other words, 4-6 months pregnant). Once they test, you have until you are 6 months pregnant to terminate. This is different than a "regular" abortion because it is for medical reasons.by Sally - Huntington's Disease Support Center
the odds are in our favor for what? my husband has already tested positive and we've decided not to have "natural" children. Too late for us, but hopefully not for the rest of the family.by Sally - Huntington's Disease Support Center
I know how you feel. I can't find anyone in my husband's family history that has tested negative....male or female. We're at 100% positive right now....only 3 generations (11 kids).by Sally - Huntington's Disease Support Center
Dusty....it's a small world. As db knows, I'm from Nova Scotia too. Just moved from Upper Musquodoboit in July last year!by Sally - Huntington's Disease Support Center
I picked Cuba! All done...going March 19th!by Sally - Huntington's Disease Support Center
A private message is only seen by the person you are sending it to. If someones name is in blue it means that they have signed in and you can click on their name to send them a private message. When you are at the home page of the forum, at the top it will say if you have any private messages. I would send you one kats but I'm not able to because you aren't signed in.by Sally - Huntington's Disease Support Center
My husband was accepted into the RCMP when he was at risk. They are NOT allowed to deny you for being at risk or because of a condition that MAY affect you in the future. This is just our personal experience.by Sally - Huntington's Disease Support Center
Thank you...I think I understand a bit better how he is feeling. He is very much still in the early stages and I don't want to get frustrated this early. It is just hard because I work full time and he is home...alone...all day long. I do understand better now. I'll keep what you said in mind every time I have a problem. Thanks again!by Sally - Huntington's Disease Support Center
"What I care about is being honest and practical and confronting issues as they arrive. What I care about is having my husband face this disease and fight back WITH me, not AGAINST me. When he works with his neurologist to get the right medications and the right dosages, I'm fine. When he won't go and insists that I'm the worst wife in the Western Hemisphere, I'm not." So, Marsha, caby Sally - Huntington's Disease Support Center
Your situation seems so similar to mine, except that I am still at the fairly early stages. My husband is 32 years old and already off work because he does not have the ability to handle the paperwork...he gets over loaded. I guess the reason that I relate to you is because your wife is so young. My husband's mother should have been in a nursing home when she was around 40...no one could "by Sally - Huntington's Disease Support Center