Welcome Anon1. Step back a bit and take a deep breath. Keep in mind you don't know what is going on at this point. Try to be patient, go through the testing and then take the next step for you and your wife. Keep in mind you want to put in place disability, life and health insurance prior to testing. There are so many different presentations and just as many progressions. I am not discountby mikee - Huntington's Disease Support Center
I'm sorry. I didn't include everything in my post or at least be clear. Vitamins, exercise and all the things in the link from kelki are important. One our posters here "Will" has an article or post on supplements and he remains non symptomatic years beyond what would be expected. Kelki, that was a good article for me to read. Thanks for sharing. Mikeby mikee - Huntington's Disease Support Center
Yes Rdylan, you are lucky to have someone who cares. Not everyone has a network of support. I can't tell you more than I've been told but as far as vitamins go you probably can't get enough dose (at least safely and economically) to match the studies. You may want to check into clinical trials. This may be a way for you to create a helpful bridge between yourself and the HD community. I wouldby mikee - Huntington's Disease Support Center
Welcome Rdylan. I don't know how anyone could say it better than Steve did. As I read your post some of the same things came to mind as Steve. You do need someone such as your Mom to be your advocate. She's a parent and will worry whether you have HD or not, I do. Keep in mind what you describe may not be HD symptoms. Try to think positively. Have you talked with a medical professional about thby mikee - Huntington's Disease Support Center
Welcome to the forum Whitney...reach out to us and someone will help you find your answers. This is a fantastic community of pHD's and wonderful caregivers. Steve and Marsha do a fantastic service to us and do so with personal connections to HD itself. Like Steve said there are some dark places for all in this process but they don't all have to be so dark. Many here manage remarkably with theby mikee - Huntington's Disease Support Center
Nila, I feel like I know both of them. I keep watching, seeing the love he gives Exeter and Exeter him. Even the movements we once made to pet our animals is apparent to me. This is a high point for me. I told a friend to watch and she texted me this morning saying she bawled. I hope my friends and family can understand this is where I am going in time. It is an invaluable contribution. Thankby mikee - Huntington's Disease Support Center
Thank you very much. You sound like a good person to do what you are for your ex-husband. Good people don't keep count of good deeds. I am in the early stages. It has been confirmed genetically and symptomatically. Sooooo many thoughts a day go to HD. Mikeby mikee - Huntington's Disease Support Center
Nila, I am in tears. I really don't know what to say. They look so happy together. I see some of my movements in Bob although not as bad and the same love for animals. I hope someday I can get a service dog with Exeter's personality; I actually would never have thought of a service dog. They look great together. It is apparent how much they love each other. It is a happy note. That video andby mikee - Huntington's Disease Support Center
Yep and a lot of adults. We have or have not had the fortune to see HD symptoms. Children no matter what age are somewhat made of Teflon, just like we were at some point. I am having difficulty this Christmas and no matter how I feel you have to ask if it's HD progressing. It really sucks. Mikeby mikee - Huntington's Disease Support Center
Hang in there Jackie, it will level out in time. Glad things have settled somewhat and everyone could muster together. Simplicity is best sometime. I think misdiagnosis is not uncommon. I had several as well as surgery. Hang in there. Mikeby mikee - Huntington's Disease Support Center
Reading this post again reminded me of one of my visits to Mayo. This was the day I got my results but prior to seeing the Doctor. While in the lobby, a man was wheeled out and when they got to the elevator area just outside the lobby he began yelling and becoming as unmanageable as he could be. This was very disturbing, not personally but knowing he probably had no control of this outburst fby mikee - Huntington's Disease Support Center
I understand the feeling. Lost a sister on Christmas Eve a few years bacn and I was diagnosed the next December. Not fun anytime. Do you have to deal with all of this at once or can you prioritize. I'm only trying to make a suggestion to lessen the stress. Some things will take care of themselves at the proper time. My children (similar in age) to Mark's didn't pay a lot of attention or wereby mikee - Huntington's Disease Support Center
Hi New Again. I think I remember you posting. Glad to hear from you but not for the reason you have to post. I can understand the job dilemma and you are probably correct about the outcome. Balance is a one of many issues that can show early. Progression is different for just about everyone. Without a Doctor testing there is no way to know. Before testing and if you can, take care of yourselby mikee - Huntington's Disease Support Center
Let me know if the email works. I would like to see it as well. Mikeby mikee - Huntington's Disease Support Center
Merry Christmas from my family as well. I hope today and those to come find you peace and happiness. Mikeby mikee - Huntington's Disease Support Center
Wow and your are very welcome. Merry Christmas. Mikeby mikee - Huntington's Disease Support Center
Thanks. I'm not doing anything the rest wouldn't do. You have good days and worse days with this. I caught this on a good day. We have some very compassionate caregivers here. Think for a minute about triggers and MS as well as other neurological disorders. Personally, I don't hide the fact that I have HD. I get a lot of uh huh's but they mean well. Sometime I ask if they really know what itby mikee - Huntington's Disease Support Center
Wow Dusty, that's tearful. I'm sorry you lost your companion. She had a great life from the sound of things. We are animal nuts as well. It's tough letting go of one of them as well. They have souls too. Mikeby mikee - Huntington's Disease Support Center
So sorry for the loss. I just saw the post and will be thinking of you all and may peace find you in this time of need. Mikeby mikee - Huntington's Disease Support Center
I am so sorry to hear the news. I went back and read some of your previous post and I'm glad I did. I apologize but I am going to get off subject a bit. It seems sometime that when things get tough (especially with children involved) we at some point dig deeper and find a part of us we didn't know was there. Then we take what has been dealt and push forward even harder. You sound like a veryby mikee - Huntington's Disease Support Center
During my test, they reported nearly 300 leg movements in 6 hours. I don't know if it is HD but it's funny that was one of the first things the Neurologist ask my wife if she had noticed. Mikeby mikee - Huntington's Disease Support Center
Does anyone know any reason a person should not undergo Hypnosis if they have HD? It isn't to cure HD of course but other reasons. I came across a little about it and it seems it has been looked into, however only slightly. There seem to be some benefits in some areas that a person with HD would encounter. Thanks, Mikeby mikee - Huntington's Disease Support Center
Just for what it's worth. I have severe sleep apnea, even with a cpap. Upon a ten year follow up test it was discovered that my oxygen levels were poor. Now I sleep with a bit of oxygen fed to my cpap. Doc says it is Apnea as the cause and not lungs. Mikeby mikee - Huntington's Disease Support Center
You know, I have read this post a number of times and support is what you need. That's it. So many people have differing opinions about everything from politics to potty training. You and your spouse are ultimately responsible for your actions. I have found in my years that if you ask for an opinion you will get two. Those offering an opinion sometime feel if you ask you should take theirby mikee - Huntington's Disease Support Center
My oldest son is Army and they are expecting their first child. He faces the unknown with HD as does his younger brother. I believe when a loved one is in the military the family is in the military in many respects. Thanks to all of them and a special thanks to Will for serving and being so much help here on the forum to so many of us. Mikeby mikee - Huntington's Disease Support Center
I would like to extend to our Veteran's in our community past and present a special thanks for their sacrifices for each of us. It just occurred to me that although they may have survived battle, they may still face a battle with Huntington Disease. Some have already passed and we owe them a lot. Mikeby mikee - Huntington's Disease Support Center
Hang in there. It's good you are there for him. Mikeby mikee - Huntington's Disease Support Center
Hang in there. It's good you are there for him. Mikeby mikee - Huntington's Disease Support Center
Thank you all. It is a great feeling and I respect their decisions. Congrats to you Tellie1. All of you are inspirations as well. April 2014 isn't as far as it seems. Mikeby mikee - Huntington's Disease Support Center
Terilynn I am so sorry. Words cannot express what I wish to convey. Prayers are with you all. Mikeby mikee - Huntington's Disease Support Center