Good to hear from you Nare and Noreaster. I just returned from Mayo Jacksonville where I spent a great deal of time with my Neurologist who specializes in movement/parkinsons. He is heavily involved in global research with others from prominent hospitals. I won't say I am in complete denial, in fact I am less skeptical now than I was. Luckily my psychological issues are manageable at this time. Mby mikee - Huntington's Disease Support Center
Nikr I am new here as well. I started about the same time. Lots of vestibular problems and ataxia just to name a few. It's a maze trying to get answers and I have had so many dissapointments with doctors. Some just stopped, said I don't know what's wrong and left me hanging. I hope you get good news. As all of this in new to me as well. With a cag count of 36 I'm not convinced I have the disease.by mikee - Huntington's Disease Support Center
Marsha Wrote: ------------------------------------------------------- > I thought that you just wanted some input about > questions for the doctor. I'm happy to provide > more information about the disease. > The number of > times that the CAG code repeats varies by > individual but most people have around 20 repeats. > If the repeat number is too high (40 andby mikee - Huntington's Disease Support Center
Marsha Wrote: ------------------------------------------------------- > Would you like me to explain the disease? Do you > have any questions I can answer? You were probably busy judging from all of your activites. I would like more informtion if you are so willing. Would it be better in a PM? Thanks, Mikeby mikee - Huntington's Disease Support Center
Yes Marsha I would. I don't really seem to be any worse than I was a year ago (I think). As I am skeptical about my diagnosis, I don't deny it may be a reality. Knowing the longivity is not what I expected in life but we aren't gauranteed anything. I have lots of questions. When I go to my Neurologist I would like to be as informed as possible. As I said before, if anyone can think of quesby mikee - Huntington's Disease Support Center
Thank you, Thank you. Marsha, I'll be honest. I'm scared at this point for myself but mostly my family. I've seen some of the stories and don't want to burden them or be remembered that way. I did notice we posted at the same time and after coming back again read your other message and no I'm not upset...... There have been visual problems, tracking I think as well as blurred and shadowy viby mikee - Huntington's Disease Support Center
Thank you both so much...... Yes, I had no idea mrspatwolf. Thank you for you support and whether this pans out or not I now see what a terrible illness this is. My heart goes out to everyone touched by this. Paulabhouck, thank you as well. Yes, after being diagnosed with so many things, having neurotolotist with some very good credentials put their hands up and tell me they don't know whaby mikee - Huntington's Disease Support Center
Hello All, I am new here and obviously need the the support of others as will my wife. My hat is off to all of you whether you, a friend or a family member has this disease. I was told on Friday I was positive for Huntington's and after reading I am not sure it is my problem. Perhaps this is normal. If you will bear with me I will give you my history. Your feedback would be so appreciated.by mikee - Huntington's Disease Support Center