This worked fine for me. Just open the attachment and click on the arrow in the center to play it. This is a beautiful and gripping video. I suggested to Nila in a PM that she look into wider distribution. Willby Will - Huntington's Disease Support Center
Nila, Maybe you could e-mail the video privately to people who request it. Try me at geezerjock100@yahoo.com Willby Will - Huntington's Disease Support Center
Well said, Laura & Pete. No snow in North Carolina - just a little chilly. Willby Will - Huntington's Disease Support Center
Dusty, I'm also a dog lover and feel your pain. Aslana will be waiting for you at the Rainbow Bridge. Willby Will - Huntington's Disease Support Center
Steve, You did everything you could for her. May you be at peace also. Willby Will - Huntington's Disease Support Center
I also used this link. My US Rep was already a co-sponsor, but one of my Senators wasn't. You can print out a letter for mailing or send an e-mail to them. I chose an e-mail. Willby Will - Huntington's Disease Support Center
Mare, By coincidence, my next blog post is about giving blood with the HD gene. Steve should be posting it in the next few days in Community at the top of the home page. In short, having the gene does NOT disqualify you from giving. My post talks about dealing with needle fear in addition to other helpful hints and reasons why everyone who can donate should! Willby Will - Huntington's Disease Support Center
This is always a good time to be thankful for what we have. Eat, drink and be merry! Willby Will - Huntington's Disease Support Center
I did this survey when Heather first posted. It's a worthwhile request, unlike some we've seen on the forum. It's well designed and easy to do. I would recommend it to anyone. Willby Will - Huntington's Disease Support Center
I would prefer it not be delivered with a daily enema, but if that's what's needed I'll grin and bear it. Willby Will - Huntington's Disease Support Center
Thanks! The late Jerry Lampson, who founded the Lighthouse, was a Marine. He fought HD for his wife before losing his own battle with cancer. He was a true HD Hero. Willby Will - Huntington's Disease Support Center
It's a dramatically different and more precise way to do gene therapy for HD and other diseases. Willby Will - Huntington's Disease Support Center
Interesting. I wonder how the therapy is administered. I couldn't tell from that article. Willby Will - Huntington's Disease Support Center
Great news! You have a great perspective on life with HD. Everything and everyone is going to be just fine! Willby Will - Huntington's Disease Support Center
Thanks, Eve and Carla. I did finish my 38th Marine Corps Marathon yesterday in a rather pedestrian time of 6 hours, 18 minutes. I was in second place of the 4 Groundpounders, who all finished. Marathons don't get easier with time, especially when age becomes a factor. I had to apply a good dose of gumption to get to the finish this year. I do have a huge, shiny finisher's medal in the shape ofby Will - Huntington's Disease Support Center
Tony, It sounds like you really need to do the genetic test. My health insurance was Blue Cross/Blue Shield of North Carolina when I tested and they paid for the roughly $1,000 that it cost with no questions asked, either before or after. There was a prior approval requirement, but it was granted quickly. You may want to have disability insurance and long term care insurance in place before yby Will - Huntington's Disease Support Center
ENROLL-HD is a new observational study that combines the COHORT study in the US with the REGISTRY study in Europe. COHORT participants have their data rolled into ENROLL at their first visit. Anyone in the HD community is eligible - gene positive, gene negative, at-risk and family members. You can find a list of US sites at I had my first annual visit last week at Wake Forest in North Caroliby Will - Huntington's Disease Support Center
If you could afford it, could you hire the CNA as a self-employed person for one day a week? If she's now unemployed I'm sure she'd jump at the offer. Willby Will - Huntington's Disease Support Center
Laura, I'm glad those are working for you. There are two great things about supplements for HD: 1. They're virtually free of side effects and 2. They're a lot cheaper than most drugs! Willby Will - Huntington's Disease Support Center
Thanks to all for the kind words. Katinka - you're ahead of 98% of the people in the world. You're doing great!! Let us know how it goes. Willby Will - Huntington's Disease Support Center
Thanks to Steve for posting my latest blog piece. Click on Community at the top of the page. It's a sad/happy story. Willby Will - Huntington's Disease Support Center
This doesn't really relate to the current discussion. All Vietnam vets (I'm one) who were in-country when Agent Orange was used are "presumed" to have contracted certain diseases or conditions as a result of exposure. Oddly, one of them is Parkinson's. I'm quite sure I wasn't exposed since I spent my time in the northern mountains part of the country. Agent Orange was used primarilyby Will - Huntington's Disease Support Center
Glad to help. I'm still stable and symptom free. I'll turn 67 next month. Willby Will - Huntington's Disease Support Center
Patty, Here they are. One not mentioned is ENROLL. That's a new name for a long term observational study. It was called COHORT before and participants in that are being rolled into ENROLL. Willby Will - Huntington's Disease Support Center
Mikee, Have you tried ginkgo biloba for vertigo? My non-HD wife has used that with excellent results. Willby Will - Huntington's Disease Support Center
Tenille, Welcome. It usually takes about 3 weeks for the genetic test results, so you shouldn't have to wait much longer. Willby Will - Huntington's Disease Support Center
Bellosh, Many of my supplements fall into the "can't hurt, might help" category. Tumeric and green tea would be in that group. I don't know about those two "ine" things. I do feel that my whole regimen has helped with mental clarity. Willby Will - Huntington's Disease Support Center
I liked it. Downtown has an extensive series of pathways along the St. Johns River, much like Vancouver. That's where I ran during the convention. The city is full of runners and walkers and they're all friendly, waving to each other and saying hello. That was a huge contrast to New York City. For some reason, runners there ignore other runners - they don't even look at you. No idea why.by Will - Huntington's Disease Support Center
I forgot to mention that I ran into a quiet HD hero in Jacksonville - Jimmy Pollard. He doesn't post here often, but he's done an incredible job for the community. Google him to see what he's done for us. I've had my ups and downs with HDSA, but I think they're on a strong track. The convention had a nice dose of marketing (good job, Fred), but it looks like the new strategic plan has a loby Will - Huntington's Disease Support Center
Welcome! I'm not taking either one. See my supplement regimen in my blog. Click on Community at the top of the page and scroll down. I don't think there is any evidence that iron supplements cross the brain/blood barrier to boost iron in the brain. Willby Will - Huntington's Disease Support Center