Thanks for the update, Marsha. It's also important to know if something is not working. I seem to recall the late Jerry Lampson (Lighthouse Founder) was against a CoQ10 clinical trial. Willby Will - Huntington's Disease Support Center
Mike, Yes, your doctor should be consulted. There are drug interactions with some supplements. The only drug I take is Androgel. My regular doctor knows all the supplements I take and knew about them when she initially prescribed it. Willby Will - Huntington's Disease Support Center
It has been said that Microsoft should have added a special function key to RESTART Windows. That has always fixed a lot of computer ills. Glad your shopping trick worked! Willby Will - Huntington's Disease Support Center
Barb, Click on Control Center at the top, then Forum Settings at the bottom. There's a choice for Language - Default or American English. Not Spanish. Mine shows Default. If yours shows American English, try switching back to Default. If that doesn't work we'll have to wait for His Steveness. Willby Will - Huntington's Disease Support Center
Trehalose and Curcumin are probably good bets to add to your regimen. There is some science behind each. As I understand it, Creatine and CoQ10 act in similar ways on the brain. I decided to go with just Creatine. There are clinical trials going on with both, so we'll know more in the future. Blueberries have a lot of science behind them, including studies with the HD mouse. If the real onesby Will - Huntington's Disease Support Center
Sandi, Great post! Willby Will - Huntington's Disease Support Center
Mike, There won't be anything in the sent mail unless you check a box that says put a copy there. Willby Will - Huntington's Disease Support Center
As a reminder, there is a world-wide Phase III trial going on with high dose creatine. It's the CREST-EHD study. I don't know when results might be, but subjects are going to be followed for 37 months. Willby Will - Huntington's Disease Support Center
Yes, I'm sure my CAG is 40. I was tested in 2003. Willby Will - Huntington's Disease Support Center
Wayne, Welcome. Your supplement regimen is very similar to mine, which I believe is helping keep me symptom free at almost 68. I do have a fortunate CAG of 40. Will Raleigh, NC USAby Will - Huntington's Disease Support Center
I am American and have travelled to Norway with the United States Marine Corps. I have fond memories of the beautiful country you live in. Most of the Norwegians I met were calm, cool and collected. You have become totally obsessed with being at risk and it has become your whole life. I have the gene, but am not obsessed with it. The only time I think about it is when I'm writing here. I thiby Will - Huntington's Disease Support Center
Have you been tested? What is your CAG count? Willby Will - Huntington's Disease Support Center
Eric, This is far beyond me. I'll let someone else chime in. Willby Will - Huntington's Disease Support Center
WONDERFUL! Willby Will - Huntington's Disease Support Center
Pete and Laura, It comes in capsule form. CON-CRET Creatine HCL one capsule daily 750mg I continue to have no gastrointestinal side effects. Willby Will - Huntington's Disease Support Center
Dallas. Willby Will - Huntington's Disease Support Center
Pete, I can't find an article, but I'm pretty sure this refers to an ISIS/Roche partnership that will be doing human trials with their ASO (AntiSenseSomething) gene therapy drug. I believe primate safety trials have been done. This can be injected into the spinal cord and will go straight to the brain where it needs to be. Injecting into the brain involves major surgery and doesn't guarantee tby Will - Huntington's Disease Support Center
A recently developed technique will make what are called pluripotent stem cells from one's own skin. That should eliminate moral and political issues. Willby Will - Huntington's Disease Support Center
I was there for just Saturday. I had the pleasure of meeting Patty C in person., albeit for a quick encounter. This was my 4th, including a World Congress in Vancouver. One thing that was very encouraging for me was the vocal presence of several of the BIG drug companies. I sat at a table at the grand gala dinner with some folks from Lundbeck. They weren't just convention goers going through tby Will - Huntington's Disease Support Center
Welcome. You'll be among friends here. Talk to us anytime you feel like it. If your brother's heel pain prevents him from running, he could try using an exercise bike or some other way to get aerobic exercise. Willby Will - Huntington's Disease Support Center
mare, One of my favorite running authors, George Sheehan, said, "We're all Experiments of One." Welcome aboard! Willby Will - Huntington's Disease Support Center
He was asking if you were balding and ugly.by Will - Huntington's Disease Support Center
I am going to be out of e-mail touch until next Tuesday. I'll be glad to "talk" then. Willby Will - Huntington's Disease Support Center
Protandim = LDN. Both will be a waste of your money IMHO. If you want to take something that might help with HD, take creatine, fish oil and wild blueberries. They can assist with neurogenesis. The major benefit of Protandim and LDN is to the wallets of the manufacturers. Runningfor Life - you're about as naïve as they get. Do your homework before jumping on bogus medicine bandwagons. Rby Will - Huntington's Disease Support Center
Your exercise routine is ridiculous and will hurt you in the short run no matter what kind of drug you're taking. I suspect you're a LDN Troll. If you are really at risk for HD, wait until something has gone through proper clinical trials. Willby Will - Huntington's Disease Support Center
Patty, Is RisperiDONE a generic form that would work the same way? Walmart has it for only $13.30 for 60 tablets, far cheaper than Risperidol. I assume mail order pharmacies in the US would ship anywhere overseas with a proper prescription. Willby Will - Huntington's Disease Support Center
One more suggestion. You might tell him that you ran across a retired Marine who has the HD gene and is still asymptomatic at age 67 - me. Here's a piece about me from the Marine Corps Marathon. I guess the 4 of us are sort of legendary. I would be glad to correspond with him by e-mail and tell him what I believe has worked for me and tell him having the HD gene is not a death sentence.by Will - Huntington's Disease Support Center
Kirsten Ann, Patty has some great advice. If he is at risk, but has not tested, he probably should be tested if he has any thoughts of making the Marine Corps a career. If he has tested and is gene positive, but asymptomatic (and still wants to stay a Marine), he should tell his Commanding Officer (CO) and request official medical and legal advice about his career. Same thing if he is showinby Will - Huntington's Disease Support Center
Sanela, Welcome. Your English is just fine. It's far better than my Croatian. Patty has some good advice. Haldol is an older medication for HD in the US. I believe it is only used in late stages when nothing else is working. It would be a good idea to find something else for him. Willby Will - Huntington's Disease Support Center