Just wondering if anyone knows if there's any difference in neuroprotection between the generic and the name brand. I've found some comments on-line from people using Lexapro for depression who swear that the generic was causing many negative side effects that ceased when they resumed the name brand Lexapro. I wonder if it's worth it to change to the generic?by eve - Huntington's Disease Support Center
This is heartbreaking, Frank. Don't give up hope. Check the resources that Steve and Carla listed. Keep us posted. We care.by eve - Huntington's Disease Support Center
Very sorry for your loss, Bob.by eve - Huntington's Disease Support Center
I sort of liked your comments and the link to click on, but whatever everyone else thinks is best I would be fine with. Also, if this way is easier for you then go ahead and continue this way. I just so much appreciate you taking the time to educate us, Marsha!!!!! THANK YOU!!!!!!by eve - Huntington's Disease Support Center
Sorry for all the stress you're going thru. I think a support group would be a good idea...you've got a lot on your plate and it's especially hard when there is a child involved.by eve - Huntington's Disease Support Center
Mare, I'm sorry you regret testing. I feel empowered to know my hubby's results. I feel we can be active in supplements and exercise and watching for any treatments/cures that come out. I would rather know than not know. But I can see your point.by eve - Huntington's Disease Support Center
Thanks for posting!by eve - Huntington's Disease Support Center
I'm so very happy for you!!!! I will miss your posts if you drop out of this group. You have been a voice of wisdom and reason. So very glad you received this great news!!!by eve - Huntington's Disease Support Center
Could she be helped by some sort of orthodontic device? Maybe call some dentists or orthodontist in the area? I'm sorry I don't know much about it. But that's not good she in too much pain to eat.by eve - Huntington's Disease Support Center
I hear what you're saying. My son was diagnosed with autism at a young age and has ADHD with behavioral issues. We didn't know HD was in the family until he was about 4 or 5 months old. So now I have to worry about his at risk status too. I also have many mixed feelings about God...I HATE the expression, "God doesn't give you what you can't handle." I certainly don't agree with thaby eve - Huntington's Disease Support Center
This has been a very hot topic that has been raised here before. Search through old posts and you will find many different opinions about it. We are like Saram in that we never knew HD was in the family until after my son was born. Also my FIL was old when diagnosed. Am I glad I have my son? YES! But he has some issues that are not easy. I do have mixed feelings about bringing a child intoby eve - Huntington's Disease Support Center
I imagine what if this was my son. It does break my heart to see that he has no peers there. I wish he could find a great hobby and be able to share it with someone. I'm glad he's close to you, and hope that things work out.by eve - Huntington's Disease Support Center
Thanks Marsha. Good news that it possibly can help some people with HD related symptoms. For my son, it would not be for HD symptoms (at least I pray to God not) but for ADHD, autism, behavioral type issues (like anger problems). I just don't want to cause him harm. I remember reading about one case study where a boy who was diagnosed with ADHD was put on Ritalin and spiraled into irreversiblby eve - Huntington's Disease Support Center
I am wondering if anyone knows anything about Abilify? It is being discussed for possible use with my at risk son.by eve - Huntington's Disease Support Center
I haven't heard of it being used for HD, but I know it is a valid treatment for some medical conditions. The problem is, it seems to be also listed as a "treatment" or "cure" for some other conditions where it hasn't been scientifically found to be valid/beneficial. So be careful. I don't always believe "testimonials". I would want to see scientific studies thatby eve - Huntington's Disease Support Center
Hoping and wishing that everyone stay safe from the terrible storm Sandy.by eve - Huntington's Disease Support Center
Please remember to take care of yourself... maybe a hursing home would be a good option. This situation sounds as if it's getting too difficult.by eve - Huntington's Disease Support Center
Well, that sucks. You have to sort through your emotions as you try to make sense of this story. It's always rotten when you feel you know someone, but find out there was a part of them you didn't know. You probably feel betrayed and taken advantage of...I would be very hesitant to let him stay with you again since he doesn't seem trustworthy. I think you would feel better letting him know hoby eve - Huntington's Disease Support Center
This makes me so angry to hear that the NH doc decreased his med especially against your wishes! I'm so very sorry you're going through this. I wish I had some advice. How extremely frustrating and very heartbreaking this must be.by eve - Huntington's Disease Support Center
Kind of an interesting study I just heard about. Not sure if it's a well done study or not.by eve - Huntington's Disease Support Center
Very sorry to hear about what you and your husband have been going through. Welcome to this site. Everyone here is great to "talk" with and many will understand just what you're going through. There is a lot of great wisdom and support here.by eve - Huntington's Disease Support Center
I think this is part of HD. My hubby has really no physical symptoms except for leg jerking in his sleep. He's had it for about 4 or 5 years now. He also has other twitches in his sleep. He is very tired in the early evening and your post may explain why...if he is getting poor REM sleep like you maybe?by eve - Huntington's Disease Support Center
Welcome!!! I understand the differering views on getting tested..I can see both sides. But if you do ever decide you're going to test, first make sure to have the insurance in place (such as disability, long term care, life etc.). It doesn't always make sense for everyone to to life insurance for example. But it's better to get it and then cancel rather than testing + and then making it imposby eve - Huntington's Disease Support Center
This guy is amazing. He has lessons for kids too. He was recently profiled in Time magazine as one of the 100 most influential people of 2012 Very interesting man who has a passion to teach many different subjects to all ages.by eve - Huntington's Disease Support Center
Thanks Dusty. As Marsha pointed out, you never know what's around the corner. But on the other hand, I too respect each individual's right to make their own decissions about their bodies/lives. This was very thought provoking. I certainly feel for the wife involved. She seems at peace with the decision.by eve - Huntington's Disease Support Center
Hopefully you can find a doctor that is familiar with HD...maybe a teaching hospital or one of the HD Centers of excellence if you live in the USA. I've read that many times medications need to be adjusted every so often so maybe your husband needs an adjustment again. It would be nice if your mom could help, but is that fair to her? Maybe you should start investigating if there is any sort oby eve - Huntington's Disease Support Center
I think Will gets his from the Vitamin Shoppe. I've gotten their Ubiquinol from there and the brand I usually get is something like Jarco (Sp?). It is expensive. Some people feel it's not "worth" it (hasn't shown that much benefit as to cost/effectiveness ratio).by eve - Huntington's Disease Support Center
Welcome, Sandi! It was very interesting to read your story, feelings and perceptions. You sound as if you are an intelligent woman. I'm sad for what you've gone through, but I admire your style and way of dealing with what life has handed you. I think you will be helpful to many people on this site. Thanks for sharing your story.by eve - Huntington's Disease Support Center
Very sorry to hear you're going through this. I understand you'd like to love and support him since this is likely the disease making him do this, but remember to not put yourself in any danger. How can you help him if you are hurt? If he really is frightening you, right now you need to get a plan in place to leave and protect yourself if you need to. Have a small bag packed with essentials sby eve - Huntington's Disease Support Center
Thanks for sharing this...words can be very powerful and you've captured your feelings very well. I have felt many of the same feelings and thought about the same things you've mentioned (I'm married to a pHD). I wish I had an easy answer for a way to give you some comfort. I remember the person who told my husband his positive results said something like, "We all are going to die from somby eve - Huntington's Disease Support Center