My husband couldnt be tested unless he showed the results from his fathers test.This is in Australia.We dont pay to have the test done here.I dont know about other countries.by Julie 03 - Huntington's Disease Support Center
Thanks guys for all your replies.You are all so kind. As for the more babies question,(which made me laugh)we just need to get over the whole ordeal of what we have just been through first.But I will keep you posted.by Julie 03 - Huntington's Disease Support Center
Hello K2, I know how you are feeling but in my case it was my husband at risk and it was like it was me not him who was at risk. I used to watch him all the time for signs to appear.It was also on my mind 24/7.We both made the decision for him to go through the testing,which is a very personal decision but for us we just needed to know either way. All I can say is find a geneticby Julie 03 - Huntington's Disease Support Center
You dont have to worry I will be always checking out the forum. And I hope that I can help other people that have been in our situation. Testing is not an easy thing to do and it took us a long 4 months(we live in Sydney Australia)but it just got to the point we just had to know what ever the outcome. I do thank you all,you are are great support.by Julie 03 - Huntington's Disease Support Center
I would just like to say a big thankyou to you all. I have only posted one message on this forum and I have read all the other messages and all of you offer so much support to everone.I would just like to say a BIG THANKYOU. My husband was at risk for HD and today was the day to find out the results,which where negative.It was the hardest and most nervous time of our life and we both decideby Julie 03 - Huntington's Disease Support Center
Thanks for that Dave. Im not sure how long the testing has been at Penrith,but they are only there monday,Tuesday & Wednesday,but just like Westmead there is a waiting time. We did go & speak to Fiona at Westmead who told us about Penrith which is closer to us,as we are past 10mins past Winsdor. As for the kids,we have one,but we did know about HD when we had her,but all we knewby Julie 03 - Huntington's Disease Support Center
Thanks Dave Did you have your children before your mum was diagnosed? We are just going through the process of the testing.Im gathering you went to Westmead hospital for your testing? There is now a genetic testing at Penrith(Nepean Hospital)now so thats who we are dealing with.by Julie 03 - Huntington's Disease Support Center
I would just like to thank you all for your comments and honesty. The problem with living in Sydney is that there are not many people with or who knows about HD.(including the drs).So I thankyou for all your support. Julie.by Julie 03 - Huntington's Disease Support Center
I agree.you think about testing for a long time and when you want to go for the testing it just seems to drag on. Can I ask if you think its true that when passed on by the father,it starts at an earlier age with higher CAG repeats? Its just that our dr was certain my partner would have a repeat of 31 or 44. Sometimes I wonder do I know more about HD than she does!by Julie 03 - Huntington's Disease Support Center
Barb, what is procedure with testing there. We have to go to see the dr & councellor,then see a neurologist,then to see a psychologist,then have blood drawn and from then its the 6-8 week wait for the results.by Julie 03 - Huntington's Disease Support Center
4 weeks is quick.Its takes us that long to get in to see a dr.He made the appoinment today to have the blood taken & he cant get in till 17th July,then it will take 6-8 weeks for the results to come back.That is a long time when its on your mind all the time. The blood was tested at Sydney now it gets sent to Melbourne,but the testing has changed since his sister went in 1999.by Julie 03 - Huntington's Disease Support Center
Thanks for the info.We have the privacy issue on all our medical reports here. The dr told my partner when his reults are in(that seems to take a life time to happen)that they do not open the letter,they wait and open it when he is there,so they will find out his result at the same time. I asked her does she take a peek at the results,because i would if I was in her shoes.She said No I wait.by Julie 03 - Huntington's Disease Support Center
Everyone is covered,thats why I was asking do you have to pay to have the HD test done?by Julie 03 - Huntington's Disease Support Center
Everything is covered but if you go to a public hospital you will be put on a waitlist. You can have your own doctor under health fund,but that is your choice and you do pay for that. How the world is different!!!by Julie 03 - Huntington's Disease Support Center
As soon as a child is born you need to fill out the paper work so a medicare card can be sent out. We need a medicare card to go and see our local doctor.by Julie 03 - Huntington's Disease Support Center
In Sydney we have what is called Medicare.So when doing the test for HD it is payed for by Medicare.Everyone has a medicare card & nearly all medical procedures are payed for by the government.by Julie 03 - Huntington's Disease Support Center
What do you mean by socialized care?by Julie 03 - Huntington's Disease Support Center
Eric you are right.Even though he has not been tested you still seem to look out for any signs.Your mind is always ticking,wondering. Just a question.In sydney we do not have to pay for testing,but reading other articles Im gathering people overseas do?by Julie 03 - Huntington's Disease Support Center
Hi there to all.I live in Sydney,Australia & have been browsing through all your comments. My partners father has HD.His father repeat is 31/44.He is 63 years old now & living in a nursing home.We are just in the process of going through testing & the doctor told my partner his repeat would be 31 or 44.After reading all your comments & doing research Im lead to believe if HD isby Julie 03 - Huntington's Disease Support Center